11q_disorders at Yahoo! Groups

NEW JS/11q BLOG SITE - NEEDS YOUR INPUT!

Heather — Sun, 22 Nov 2009 01:02:12 GMT

Hello everyone, I sent this message to everyone's email directly (as long as the member directory had a valid email address) in hopes of encouraging your

Re: JS Website... Moving to a blog type site

Marie Hardey — Sun, 22 Nov 2009 01:02:08 GMT

Hi Erin, I have answered them next to the questions thought it might be easier to cut and paste that way!! Also have attatched a pic of Dylan and am happy to

Website

Erin — Sun, 22 Nov 2009 01:01:52 GMT

I am always curious as to where everyone lives. Maybe adding a list of people and what state or country they are in? If you are up for that Idea I need this

Re: conference

cathy jaeger — Sun, 22 Nov 2009 01:00:35 GMT

Hello, I hope to go to the conference in California next year but I was wondering how much information on interstitial deletions is given or discussed. I

Re: weight

joan romig — Sun, 22 Nov 2009 01:00:06 GMT

I don;t know if this help you or not, but all we needed to do was get a letter of medical necessity and prescription for Nick's primary doc, took it to the

Amity — Thu, 19 Nov 2009 14:21:20 GMT

Any help you could provide would be great! We are in Kentucky. Any help you could provide would be great! We are in Kentucky.

Re: weight

amityylynn — Thu, 19 Nov 2009 14:20:20 GMT

I would need a size 7, and am in Kentucky. Any information you could provide would be fantastic! Thanks!

JS Website... Moving to a blog type site

Erin — Thu, 19 Nov 2009 14:19:44 GMT

I am in the process of moving the JS site to a blog site. I can not access any of the info that I had on the other site now. So please if you can send me Pics,

Re: weight

Peggy St.Clair — Wed, 18 Nov 2009 16:22:57 GMT

If you odn't care where are you located and I will research and see what I can find.What size diaper do you need Peggy ... From: Amity

Re: weight

Peggy St.Clair — Wed, 18 Nov 2009 16:21:00 GMT

I can't believe you don't have help with diapers. Here is Arnasas you just need a script.We ordered Grace's from a company out of state. I willook for

Re: weight

linzee_carroll — Wed, 18 Nov 2009 15:06:31 GMT

Amity, I know the feeling! Neither of my boys are potty trained and they are 8 and 10. Luckily they still fit into size 6, but I have looked around and the

Re: weight

Peggy St.Clair — Wed, 18 Nov 2009 14:49:01 GMT

Everyone does know that if your child is over 3 yrs of age and still wets you can geta prescription for diapers and medicaid and some insurance's will pay

Re: weight

Amity — Wed, 18 Nov 2009 14:22:16 GMT

I have tried a couple of local pharmacies, and none of them have the size 7 I need for her. Right now i'm paying $42 for a case online, but don't know what

Re: weight

Ms Reckless — Wed, 18 Nov 2009 03:32:15 GMT

Amity, Have you tried your local pharmacy for the diapers? I buy in bulk from my pharmacy, and it is cheaper. Although Nathan is only in a size 3-4. If

Re: weight

amityylynn — Tue, 17 Nov 2009 20:02:49 GMT

My daughter, Kaylee is 11 yrs old, and still only weighs about 45 lbs. She is very small, no one can believe she is 11. She has no problem eating, she is not