http://health.groups.yahoo.com/group/APLsurvivors/ The APL Web Center Wed, 25 Nov 2009 23:04:51 GMT Mark Steven http://health.groups.yahoo.com/group/APLsurvivors/message/447 http://health.groups.yahoo.com/group/APLsurvivors/message/447 Hi Marta , I'm glad that you are though the hardest part of the treatment. I have had a relapse and a stem-cell transplant, so if you need any info or Wed, 25 Nov 2009 22:24:08 GMT Ellen Nicewander http://health.groups.yahoo.com/group/APLsurvivors/message/446 http://health.groups.yahoo.com/group/APLsurvivors/message/446 Marta, it may help to hear other people's experiences. I was diagnosed in 2004 and at that time the last intravenous treatment was a fourth one that lasted Wed, 25 Nov 2009 01:57:31 GMT Marta G. http://health.groups.yahoo.com/group/APLsurvivors/message/445 http://health.groups.yahoo.com/group/APLsurvivors/message/445 Hi All, I am 31 and I am new in this group. First, thanks a lot Jeanne for creating APL survivors. Reading your posts have supported me a lot this year. I have Wed, 25 Nov 2009 01:57:11 GMT Marta G. http://health.groups.yahoo.com/group/APLsurvivors/message/444 http://health.groups.yahoo.com/group/APLsurvivors/message/444 Hi All, I am 31 and I am new in this group. First, thanks a lot Jeanne for creating APL survivors. Reading your posts have supported me a lot this year. I have Thu, 19 Nov 2009 02:09:44 GMT Diane Weinberg http://health.groups.yahoo.com/group/APLsurvivors/message/443 http://health.groups.yahoo.com/group/APLsurvivors/message/443 Sands720 – I’m not sure anyone understands why, but, statistically, you are more likely to suffer relapse if you have a high WBC at presentation. Maybe it Wed, 18 Nov 2009 22:35:36 GMT Jeanne LaTorre http://health.groups.yahoo.com/group/APLsurvivors/message/442 http://health.groups.yahoo.com/group/APLsurvivors/message/442 I'm not sure what risk group I was in because my doctor didn't say, but I don't think my WBC was extremely high---I would have remembered that. I think the Wed, 18 Nov 2009 22:05:09 GMT sands720 http://health.groups.yahoo.com/group/APLsurvivors/message/441 http://health.groups.yahoo.com/group/APLsurvivors/message/441 Thank you for your replies. Jeanne, which risk category did u fall in? I'm a little apprehensive about stopping the chemo drgus because my husband falls in the Tue, 17 Nov 2009 03:32:29 GMT Sonja Godbey http://health.groups.yahoo.com/group/APLsurvivors/message/440 http://health.groups.yahoo.com/group/APLsurvivors/message/440 My husband only took the Atra for his Maintenance. His doctor was told the other 2 were not necessary for him per the doctors at City of Hope. I believe his Tue, 17 Nov 2009 00:18:39 GMT Jeanne LaTorre http://health.groups.yahoo.com/group/APLsurvivors/message/439 http://health.groups.yahoo.com/group/APLsurvivors/message/439 In your husband's place, I would stop taking both the 6MP and the methotrexate, because I think the small decrease in relapse risk is not worth the misery and Mon, 16 Nov 2009 23:46:46 GMT sands720 http://health.groups.yahoo.com/group/APLsurvivors/message/438 http://health.groups.yahoo.com/group/APLsurvivors/message/438 Hi ... In August-09 the Atra was reduced to 15 days per month 50 mg per day and the remaining 2 were continued at the same dosage. He plans to continue this Sun, 15 Nov 2009 21:57:54 GMT Paul Herndon http://health.groups.yahoo.com/group/APLsurvivors/message/437 http://health.groups.yahoo.com/group/APLsurvivors/message/437 Roy, Thanks for sharing your story. My oncologist is Dr. Anthony Nguyen, based in Las Vegas, NV. I have to say that although he has always supported me, he has Sun, 15 Nov 2009 15:08:38 GMT Roy Nierenberg http://health.groups.yahoo.com/group/APLsurvivors/message/436 http://health.groups.yahoo.com/group/APLsurvivors/message/436 Hi, Paul Herndon's story is great. I would like to know his oncologist because he went beyond the conventional wisdom, and appropriately balanced the benefits Wed, 11 Nov 2009 20:03:30 GMT Ellen Nicewander http://health.groups.yahoo.com/group/APLsurvivors/message/435 http://health.groups.yahoo.com/group/APLsurvivors/message/435 A survivor of APL for 5.5 years, I had my gallbladder out last week. The anticipation of that surgery made me very apprehensive. I was shocked how good I Wed, 11 Nov 2009 16:21:03 GMT Jeanne LaTorre http://health.groups.yahoo.com/group/APLsurvivors/message/434 http://health.groups.yahoo.com/group/APLsurvivors/message/434 ... From: Cristen Barry To: APLsurvivors@yahoogroups.com Sent: Tuesday, November 10, 2009 5:34 PM Subject: Re: APL Survivors Group Update Great news Gail !! Wed, 11 Nov 2009 16:20:40 GMT Cristen Barry http://health.groups.yahoo.com/group/APLsurvivors/message/433 http://health.groups.yahoo.com/group/APLsurvivors/message/433 Hi Paul ! Thanks for sharing - i'm glad you made it in to your oncologist when you did !! :) Hope all remains well, Cristen