http://health.groups.yahoo.com/group/CAHwith3BetaHSD/ Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency. Mon, 10 Jan 2000 02:04:28 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/45 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/45 I'm not sure my messages have been getting out, but I'll need someone as a replacement for the 3 beta list. If one person e-mails me, I'll know this message Sun, 05 Dec 1999 00:37:29 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/44 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/44 http://www.infotrieve.com/freemedline/cgi-bin/std_format.cgi?med98-99+378882+(adrenal+hyperplasia) Check out the link above entitled: Prevalence of Fri, 03 Dec 1999 10:05:05 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/43 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/43 Ok, we need three more people who are receiving this mailing list to fill out the survey, otherwise it will be changed without having everyone's input. I plan Wed, 24 Nov 1999 23:29:33 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/42 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/42 I'd like your comments on this please... I recently went to see the doctor at the teaching hospital I go to, and I mapped out a plan via fax ahead of time. Sat, 20 Nov 1999 13:01:28 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/41 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/41 ... Only one person has answered this so far. Maybe I can ask another way that's clearer. If you had your choice of symtoms that you could make disappear, Fri, 19 Nov 1999 19:58:08 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/40 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/40 Since there are a number of tests that can be taken for 3Beta HSD, I was hoping you'd like to share with the group the kind of test you took. Dexamethasone Fri, 19 Nov 1999 19:23:12 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/39 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/39 I'm now in contact with the NIH doctor who knows the most about our particular form of adrenal hyperplasia. In order to get him to do a study, I'd like to Tue, 16 Nov 1999 19:46:53 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/38 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/38 ... Thanks for your reply, Kebs. Do you know which tests they ran to diagnose your 3Beta HSD? Have they put you on medications? What symptoms are you hoping Mon, 15 Nov 1999 16:47:50 GMT kebs12 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/37 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/37 I did not have gene testing. The diagnosis was through blood tests. I have been referred to a geneticist, but the appointment has not been scheduled yet. The Mon, 15 Nov 1999 01:14:38 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/36 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/36 Hello everyone, I'd like to know if any of you have had gene testing along with blood tests for your 3Beta HSD dianosis or if your doctor diagnosed it strictly Tue, 26 Oct 1999 13:02:07 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/35 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/35 I'm not sure whether I posted this to the newsgroup yet, but after being tested, my DHEA levels were much lower. I suspect it's from being on a very low carbo Sat, 16 Oct 1999 08:25:35 GMT saxfiend http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/34 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/34 ... You could have both PCOS and the adrenal problem. Have you doctors checked for both? Since the doctors have your test results, they should be the ones to Sat, 16 Oct 1999 04:08:58 GMT Ortiz http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/33 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/33 I am receiving it.I am starting with a new dr.They do the cervical mucous charting and progesterone.They will send me to a new Endo.who will redo all my Fri, 15 Oct 1999 14:19:43 GMT Promecia@xxx.xxx http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/32 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/32 Hi Deb! Here's my "hello":) I've been experiencing some problems with my e-mail. I'm not sure if it's my computer or an AOL problem. Having an awful time Fri, 15 Oct 1999 14:18:16 GMT Michelle Cearley http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/31 http://health.groups.yahoo.com/group/CAHwith3BetaHSD/message/31 hello. ... From: CAHwith3BetaHSD@onelist.com [mailto:CAHwith3BetaHSD@onelist.com] Sent: Friday, October 15, 1999 5:15 AM To: CAHwith3BetaHSD@onelist.com