http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/ Camurati Engelmann Disease (CED) Sat, 08 Aug 2009 21:04:58 GMT Blaise Roche http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/4 http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/4 Hello Shauna, My name is Blaise, I'm 47 years old and also have Camurati Engelmann's disease. I onset with it at age 19. It has completely changed my life. I Sat, 08 Aug 2009 19:05:21 GMT «¤»°§håµñå°«¤» http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/3 http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/3 Hello, my name is Shauna and i live in New Mexico..I am 29 years old and i was diagnosed with this disease at the age of 4..I have felt like i have been living Tue, 05 May 2009 20:47:32 GMT Ingrid Mabel http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/2 http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/2 Hi I will want to know, who are being treated with prednisone, and as has been its evolution with this treatment thanks Wed, 15 Apr 2009 18:57:49 GMT Ingrid Mabel http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/1 http://health.groups.yahoo.com/group/Camurati_Engelmann_Support_Group/message/1 Hi My name is ingrid i have CED, I live in santiago chile and my English is very little.:) I looking for more people with the syndrome, the communication will