http://ca.groups.yahoo.com/group/CanadaMS/ MS in Canada Thu, 24 Dec 2009 00:11:51 GMT Netty Walker http://ca.groups.yahoo.com/group/CanadaMS/message/3583 http://ca.groups.yahoo.com/group/CanadaMS/message/3583 Kim... ADP will pay for a chair before 5 yrs... my daughter has gotten a new chair 3 times in 5 yrs.... change of condition and growth.... they do have play in Wed, 23 Dec 2009 21:36:38 GMT kim http://ca.groups.yahoo.com/group/CanadaMS/message/3582 http://ca.groups.yahoo.com/group/CanadaMS/message/3582 i was lucky it was only the cord that goes from the hand set to the back of the chair was shorting out, the repairman fixed it. i don't have a manual chair Wed, 23 Dec 2009 19:54:00 GMT Netty Walker http://ca.groups.yahoo.com/group/CanadaMS/message/3581 http://ca.groups.yahoo.com/group/CanadaMS/message/3581 Hi Kim I know how upsetting having w/c problems can be... my daughter Akasha 20yrs has a chair... and we can not live without it.... Do you have a back up Wed, 23 Dec 2009 17:16:10 GMT kim http://ca.groups.yahoo.com/group/CanadaMS/message/3580 http://ca.groups.yahoo.com/group/CanadaMS/message/3580 Wanted to go out, we were going to go out for b'fast then I had some shopping to do, but when I went to start my w/c it wouldn't go. So I had to call the Tue, 08 Dec 2009 22:56:36 GMT Sophie Addison http://ca.groups.yahoo.com/group/CanadaMS/message/3579 http://ca.groups.yahoo.com/group/CanadaMS/message/3579 I received an answer as well... However, I knew of the study's specifications when I applied and I agreed with them. I take part in as many studies as I can, Tue, 08 Dec 2009 22:34:18 GMT Sheilah http://ca.groups.yahoo.com/group/CanadaMS/message/3578 http://ca.groups.yahoo.com/group/CanadaMS/message/3578 Sophie,  All, I just had a reply from the Buffalo study. It came with the form to fill out and send back. Very disappointing in my opinion. It says that you Tue, 08 Dec 2009 15:13:01 GMT Sophie Addison http://ca.groups.yahoo.com/group/CanadaMS/message/3577 http://ca.groups.yahoo.com/group/CanadaMS/message/3577 Wow, thanks Sheilah! You've definitely done your homeworks! I'll search the web for other ongoing studies, perhaps get in touch with Dr. Drake or Dr. Haake. My Tue, 08 Dec 2009 05:21:44 GMT Sheilah http://ca.groups.yahoo.com/group/CanadaMS/message/3576 http://ca.groups.yahoo.com/group/CanadaMS/message/3576 Hi Sophie, I applied to every single study. I've only had one reply. That was from Detroit. They say they will be going through approvals for ethics etc. Tue, 08 Dec 2009 04:27:52 GMT Sophie Addison http://ca.groups.yahoo.com/group/CanadaMS/message/3575 http://ca.groups.yahoo.com/group/CanadaMS/message/3575 I've just applied for the Buffalo CCSVI study. I will let you know if my application gets me anywhere :) In the meantime, do any of you know about ongoing Tue, 08 Dec 2009 02:03:02 GMT Sheilah http://ca.groups.yahoo.com/group/CanadaMS/message/3574 http://ca.groups.yahoo.com/group/CanadaMS/message/3574 Hi, I forgot to tell you that there is a scam artist operating at that group, but just disregard them. There's money involved. They call themselves medical Tue, 08 Dec 2009 01:54:53 GMT Sheilah http://ca.groups.yahoo.com/group/CanadaMS/message/3573 http://ca.groups.yahoo.com/group/CanadaMS/message/3573 Hi,  So who wants to have the Liberation procedure? I do, I do. I've been emailing, talking, writing, reading about it daily since I saw the W5 documentary. Tue, 08 Dec 2009 01:04:39 GMT Wendy Kuchta http://ca.groups.yahoo.com/group/CanadaMS/message/3572 http://ca.groups.yahoo.com/group/CanadaMS/message/3572 Hi Amanda, I would certainly get it check out. I had a stroke once, actually twice and I was unable to swallow at all. My adopted brother thought he had MS Mon, 07 Dec 2009 00:40:01 GMT Sophie Addison http://ca.groups.yahoo.com/group/CanadaMS/message/3571 http://ca.groups.yahoo.com/group/CanadaMS/message/3571 Hi Amanda, Like Netty, I've had swallowing problems during two separate relapses. In my case, it seems to come with speech problems. If I'm not mistaken, Sun, 06 Dec 2009 23:31:32 GMT Netty Walker http://ca.groups.yahoo.com/group/CanadaMS/message/3570 http://ca.groups.yahoo.com/group/CanadaMS/message/3570 I've had swollowing problems for about a year now.... mostly its food just sits and I can't seem to remember how to swollow the second step... My daughter has Sun, 06 Dec 2009 23:01:15 GMT Sheilah http://ca.groups.yahoo.com/group/CanadaMS/message/3569 http://ca.groups.yahoo.com/group/CanadaMS/message/3569 ________________________________    Hi Amanda, It could be MS or something else, but  of course you should see someone about it. This can happen with MS.