Chordoma_Support_Group at Yahoo! Groups

Re: Joining Facebook Private Chordoma Group

Sharon Berlan — Mon, 13 May 2013 21:21:35 GMT

https://www.facebook.com/groups/ChordomaSurvivorsPrivate/ Anyone having an issue please let me know Sharon We can cure chordoma! www.chordomafoundation.org

Re: Joining Facebook Private Chordoma Group

Austin Moore — Mon, 13 May 2013 17:59:59 GMT

How do we join Chordoma Suvivors?? Austin ________________________________ From: Sharon Berlan To:

Goodbye....

uswoods5 — Wed, 08 May 2013 20:38:21 GMT

Goodbye to everyone associated with the Chordoma Support Group. Many thanks to all those who helped with the group, those who reached out to others, and those

Re: This group will close permanently to messages on May 8th 2013

najones11@... — Wed, 08 May 2013 02:21:58 GMT

Diane, I hope there is a rainbow at the end of all your sorrows. All the best and sending you hugs. Norma Sent from my iPad U

Re: This group will close permanently to messages on May 8th 2013

Bcisquette — Tue, 07 May 2013 22:54:40 GMT

Oh Diane, I am so sorry for all you have been going thru. Maybe we will connect thru the fb group. There are so many members there, I am not sure who is who. I

Re: This group will close permanently to messages on May 8th 2013

Oregon Green Thumb — Tue, 07 May 2013 22:43:38 GMT

Diane, So sorry for your troubles. Steve ... -- Check out Steve's new book "Butterfly Magic" on Amazon and Smashwords:

Re: This group will close permanently to messages on May 8th 2013

uswoods5 — Tue, 07 May 2013 21:13:05 GMT

Thank you for your kind words for us all and sorry for the problems in your life. I will not be participating in Facebook, except for possible research

Re: This group will close permanently to messages on May 8th 2013

Diane Stacey — Tue, 07 May 2013 21:09:46 GMT

Thanks for the support gained through this group and all the sharing of your experiences. I have been MIA for a while because my mother's health became

Re: Joining Facebook Private Chordoma Group

Sharon Berlan — Mon, 06 May 2013 04:57:18 GMT

The chordoma foundation website is where anyone with interest can be referred. Our group began as public...don't think there were other options initially, but

Re: Joining Facebook Private Chordoma Group

Bcisquette — Mon, 06 May 2013 03:45:27 GMT

Thank you very much, Becca Sent from my Samsung smartphone on AT&T ... Subject: Re: [Chordoma_Support_Group] Joining Facebook Private Chordoma Group From:

Re: Joining Facebook Private Chordoma Group

Pam — Mon, 06 May 2013 02:44:02 GMT

you can still ask to join it is private to just Chordoma patients Adrianne or Sharon with approval your request Pam ... From: Bcisquette To:

Re: Joining Facebook Private Chordoma Group

gr8r1nme@... — Mon, 06 May 2013 02:30:27 GMT

Becca, This page is a public - open to anyone, Chordoma Survivor group: https://www.facebook.com/groups/ChordomaSurvivors/ In a message dated 5/5/2013 9:12:52

Re: Joining Facebook Private Chordoma Group

Bcisquette — Mon, 06 May 2013 02:12:47 GMT

It says, "this is a private group," on facebook. So almost anyone would assume it is a secret group. I assumed the same thing. I do have a question, is there

Re: Joining Facebook Private Chordoma Group

gr8r1nme@... — Mon, 06 May 2013 01:06:53 GMT

My apologies, Sharon! I should have checked the site more thoroughly before assuming it was a truly "private" group. It is not a secret/private group as I

Re: Joining Facebook Private Chordoma Group

Sharon Berlan — Sun, 05 May 2013 21:18:02 GMT

I am the owner of the FB group. Completely unclear on below info as I have sent the link to patients many times. All one has to do is request to become a