http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/ ChronicPancreatitisPainSharingNetwork Mon, 01 Feb 2010 16:14:39 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4089 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4089 Deanna,   I am so sorry to hear that you haven't been well.  I am appalled at the situation with your hospital stay... Dr. Doolittle seems a little "nice" to Sun, 31 Jan 2010 02:53:27 GMT Deana http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4088 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4088 I have been back and forth from Standford to home which is 3 hrs. away. I have had so many tests done that I can't even remember the names. The day before Mon, 14 Dec 2009 22:58:40 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4087 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4087 Deb,   I do encourage you to join, if you aren't already a member, the PAI group.  This news is GREAT and hopefully the procedure will soon be available to Mon, 14 Dec 2009 21:58:33 GMT Ellen Cavacini http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4086 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4086 Are you on the Yahoo pancreatitis group? Could you post this information there? I think everyone on that site would like to hear about it. Sounds like it Fri, 11 Dec 2009 09:22:22 GMT debzdebznz http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4085 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4085 I hail from New Zealand and have suffered since 1999 with pain from pancreatitis and bilary SOD problems let me fill you in on some very new surgery that has Mon, 09 Nov 2009 03:55:40 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4084 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4084 Here is the link to Robin's group for TP/ICT patients, caregivers and friends. http://health.groups.yahoo.com/group/IsletCellTransplantforPancreatitis/ Take Mon, 09 Nov 2009 03:47:14 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4083 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4083 Thank You for sharing your experience with the pain pump Bryan... My docs have talked about me getting one, but there aren't many docs around here that will do Wed, 04 Nov 2009 13:31:19 GMT steve allen http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4082 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4082 hi denise....could you plz give me the link to robins group as i would like to keep up on the tp/ict folks.....thnx so much.....steve ... From: Denise Williams Wed, 04 Nov 2009 06:19:02 GMT bryan http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4081 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4081 ... I have had cp and back problems for 7 yrs i have recently had a pain pump put in it has taken about 3 months to get it dialed in and its not quite right Wed, 04 Nov 2009 05:33:35 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4080 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4080 I take "Opana" for my pain, I don't get withdrawals if I don't take it all the time either... its an extended release med, a morphine based drug I think.. all Wed, 04 Nov 2009 05:26:19 GMT Denise Williams http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4079 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4079 Lara, I hope you don't mind but I sent your post to one of the gals that used to be in our group, she has a group for patients having the total pancreatectomy Wed, 28 Oct 2009 18:04:50 GMT bryan http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4078 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4078 ... I hope hat everything goes well,I have not had a total pancreatomy I just wanted to wish you good luck. I had a pain pump put in about 5 months ago and it Wed, 28 Oct 2009 17:03:26 GMT Ellen Cavacini http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4077 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4077 Lara: you should join the pancreactomy group on yahoo groups. In fact I think you already have because I might have seen your name there. I don't think many Tue, 27 Oct 2009 23:27:41 GMT Lara http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4076 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4076 I am having a total pancreatomy next week (nov.4) at Thomas Jefferson hosp. in Philly. I'm already diabetic so they couldn't do the ICT. I would love to hear Mon, 26 Oct 2009 14:58:01 GMT Jill Simmons http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4075 http://health.groups.yahoo.com/group/ChronicPancreatitisPainSharingNetwork/message/4075 Hey, my name is Jill and I have had cp since 2007. I have had the plexus block at the beginning of 08 and it didnt help me at all. I recently had a spinal