http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/ Support Group Fri, 06 Nov 2009 13:41:24 GMT Lyssa Holmes http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8757 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8757 When Audrey was younger, up until 3years old or so, we had lots of problems with feeding. She used a feeding tube until she was 6 months old but then starting Thu, 05 Nov 2009 16:11:57 GMT Maria Jose Rodrigo http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8756 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8756 Hi Beth I am glad to hear that Beth is doing better. I was really concerned about possible complications, such as illnesses and infections, but I guess we were Wed, 04 Nov 2009 18:07:52 GMT Maria Jose Rodrigo http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8755 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8755 Hi Maggie started walking at 3 and ½, so to answer your question, she is standing. Maggie also has a considerable column rotation, but the doctors said not to Wed, 04 Nov 2009 17:40:46 GMT jobewonone http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8754 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8754 My daughter, Beth, who is 11 had her scoliosis surgery on September 1st of this year. Her curve was 103 top and I'm drawing a blank and can't remember the Wed, 04 Nov 2009 16:13:11 GMT kkcdcboy http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8753 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8753 Do you also have problems with eating?? That's another big issue we have. Have you tried using a dynovox or some other system, if so how is it working? We Tue, 03 Nov 2009 19:13:02 GMT Jennifer Marvin http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8752 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8752 Those are great!! I really love no. 5 and 7--what a cutie he is!! And the ones outdoors--the colors are so beautiful, so saturated, it makes me feel like I Tue, 03 Nov 2009 17:24:35 GMT Meredith Serpas http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8751 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8751 Hi Maria,   I was wondering if your daughter was standing at all?  My daughter Olivia, who is 5.5 has curve in the upper only and has had it since she was Tue, 03 Nov 2009 16:48:19 GMT Maria Jose Rodrigo http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8750 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8750 Hi My daughter Maggie, who is turning 15 next Sunday had her scoliosis surgery performed on her on September 8th of this year. By the time she was 12 a doctor Tue, 03 Nov 2009 06:00:34 GMT Laura Castillo http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8749 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8749 Hi Robin, The pictures of Michael are awesome. Aaron did a fantastic job. Laura Castillo Executive Director 5p- Society PO Box 268 Lakewood, CA 90714 Toll Tue, 03 Nov 2009 04:59:30 GMT Robin Johnson http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8748 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8748 Tammy, Thank you, I have pared my list down from 66 to 29…Yes I also liked 17. My very favorite are on the last page 57, 58 they are Michael all over. I put Tue, 03 Nov 2009 04:12:13 GMT Stephen & Kate Jensen http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8747 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8747 A developmental pediatrician works with kids with developmental issues. I don't think there are many of this type of doctor (just 2 I know of at Gillette). Tue, 03 Nov 2009 03:15:06 GMT Tammy Boring http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8746 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8746 robin, great pictures!  i like the casually dressed ones best - the wooded setting was very pretty and michael looked more comfortable.  number 17 is a Tue, 03 Nov 2009 03:07:33 GMT Robin Johnson http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8745 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8745 Here is a link to Michael’s senior pictures. I think Aaron did a wonderful job. He took his time and was patient with Michael’s moving around. I hope you Tue, 03 Nov 2009 03:01:36 GMT grannyannette62 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8744 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8744 HI We live on the west side of 35W - by Buck Hill. We are really trying to stay in my daughters insurance network. If we can't find someone in the network, Tue, 03 Nov 2009 02:06:22 GMT Stephen & Kate Jensen http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8743 http://groups.yahoo.com/group/Cri-Du-Chat_Syndrome/message/8743 Gillette Children's Specialty Hospital is in St. Paul, but they have a number of clinics where you can be seen around the metro area and Duluth (Minnetonka,