http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/ Epithelioid Sarcoma Wed, 04 Nov 2009 02:12:58 GMT Kana Yang http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/99 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/99 Hi, Tim. I appreciate all the support! I can't thank you enough for suggesting Dr. Gottschalk. It took a while to get in to see him and it was a long wait Sun, 01 Nov 2009 19:36:13 GMT KathyZ http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/98 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/98 It is so good to hear that you're all doing well!! It's great to get answers. I think the waiting is one of the worst things....I have a friend who has Sun, 01 Nov 2009 16:49:21 GMT Tom Lamb http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/97 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/97 Tim and Kana, I am so very glad to hear both of you doing so well. As you know I was diagnosed in August of 2006 and after 4 surgeries, chemo, and radiation I Sun, 01 Nov 2009 01:28:13 GMT Timothy Neuman http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/96 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/96 Dear Kana,   I'm so happy to hear the great news for you, Dr. Gottschalk is a great Doctor and very up front with his patients. I just had surgery at UCSF and Sat, 31 Oct 2009 21:31:56 GMT Kana Yang http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/95 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/95 Hello, everyone. It has been awhile since I was logged in on this site. I am both happy and sad to see that we have had a couple of new members. Welcome to our Mon, 12 Oct 2009 02:18:37 GMT debizbd http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/94 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/94 Hello, My 20 yr old daughter was diagnosed with Epitheliod Sarcoma in May 2009. When she had the tumor removed from her left hand, we were told the tumor was Sun, 11 Oct 2009 12:19:59 GMT Jessica http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/93 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/93 Thanks Mario for your reply. He will find out Friday which steps we will take from here. I am sorry about your wife. I will post on Friday what steps they are Sun, 11 Oct 2009 12:17:19 GMT Jessica http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/92 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/92 thank you Tom for your information and I will be passing you and this group along to my brother. Congrats on being cancer free, I cant wait to hear my brother Sun, 11 Oct 2009 12:13:19 GMT Jessica http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/91 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/91 Thank you again.I can not believe she was that young. I am very open to any information, stories or details. I just want to be open minded and prepared for Sun, 11 Oct 2009 03:19:00 GMT SD http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/90 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/90 Hello Jessica   This is Mario. My partner has been diagnosed with an unclassified epiteliod/spindle cell sarcoma. Its been four years and its been rough. Sun, 11 Oct 2009 01:38:04 GMT Tom Lamb http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/89 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/89 Hello Jessica. My name is Tom Lamb and I was diagnosed in the fall of 2006. I had E.S. in my upper left thigh and after 4 surgeries and radiation and chemo I Sun, 11 Oct 2009 00:50:58 GMT kathy.zuber http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/88 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/88 Jessica, how old are you? Stephanie was 23 when she died. Her last year was horrible. It was like watching her be tortured, and there was nothing I could Sun, 11 Oct 2009 00:30:41 GMT Jessica http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/87 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/87 Kathy, I did not realize until after replying that your daughter had passed. I am truly sorry to read that. how old was she if you dont mind my asking? I read Sun, 11 Oct 2009 00:13:18 GMT Jessica http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/86 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/86 Thank you for your reply and all of the information you have given me. I will defenitly look at the website, actually already have it pulled up. I will also Sat, 10 Oct 2009 23:38:17 GMT kathy.zuber http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/85 http://health.groups.yahoo.com/group/Epithelioid_Sarcoma/message/85 Hello, I'm Kathy. I'm glad you're here, but I'm sorry to hear about your brother. Education and support are your best hope. ES is a very aggressive cancer