http://health.groups.yahoo.com/group/EvansSyndrome/ The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som Mon, 22 Jun 2009 01:15:51 GMT cindy sherwood http://health.groups.yahoo.com/group/EvansSyndrome/message/5370 http://health.groups.yahoo.com/group/EvansSyndrome/message/5370 Gabby was at a platelet count of 1k right before we started the rituximab. They wanted me to give her steriods again and I declined. I am so happy. The Tue, 16 Jun 2009 12:16:03 GMT bettanmic@... http://health.groups.yahoo.com/group/EvansSyndrome/message/5369 http://health.groups.yahoo.com/group/EvansSyndrome/message/5369 I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he Tue, 16 Jun 2009 03:44:40 GMT Famfar@... http://health.groups.yahoo.com/group/EvansSyndrome/message/5368 http://health.groups.yahoo.com/group/EvansSyndrome/message/5368 I wish you all were here,,,noone can understand what this disease is. It is lonely and scary. I am scared for the future. Debbie ... From: cindy sherwood Tue, 16 Jun 2009 03:09:30 GMT cindy sherwood http://health.groups.yahoo.com/group/EvansSyndrome/message/5367 http://health.groups.yahoo.com/group/EvansSyndrome/message/5367 All,   I will always be holding my breath anf thanking you all with the breath of my body for all of your help. You have no idea how thankful I am for this Tue, 16 Jun 2009 03:01:32 GMT Famfar@... http://health.groups.yahoo.com/group/EvansSyndrome/message/5366 http://health.groups.yahoo.com/group/EvansSyndrome/message/5366 My daughter hannah went through all of the same...way to  much to mention. At a platelet count of 4000 we decided on rituximab. After 3 difficult treatments, Tue, 16 Jun 2009 03:00:10 GMT Erin Healey http://health.groups.yahoo.com/group/EvansSyndrome/message/5365 http://health.groups.yahoo.com/group/EvansSyndrome/message/5365 Glad to hear Gabby is doing well...   PLT of 285 is great...   Patrick is 16, tough for a teenager to have to deal with these things...   My son appears to Tue, 16 Jun 2009 02:15:09 GMT cindy sherwood http://health.groups.yahoo.com/group/EvansSyndrome/message/5364 http://health.groups.yahoo.com/group/EvansSyndrome/message/5364 Hi Everyone,   I saw this great positive message and I wanted to give all of you an update on my 14 year old Gabby.   We went through the Rituximab in Mon, 15 Jun 2009 14:21:45 GMT Erin Marcoux Healey http://health.groups.yahoo.com/group/EvansSyndrome/message/5363 http://health.groups.yahoo.com/group/EvansSyndrome/message/5363 To all: We are now 7 month after surgery and Patrick continues to do well... As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000. Coombs test is negative since Tue, 09 Jun 2009 02:32:11 GMT jmdjbw http://health.groups.yahoo.com/group/EvansSyndrome/message/5362 http://health.groups.yahoo.com/group/EvansSyndrome/message/5362 Hi, all, My son, who has Evans Syndrome, will be going off to college this fall in the Cleveland area. I presume the medical center of choice is the Cleveland Mon, 08 Jun 2009 00:40:55 GMT Laura (Crosby) Phillips http://health.groups.yahoo.com/group/EvansSyndrome/message/5361 http://health.groups.yahoo.com/group/EvansSyndrome/message/5361 I apologize for this coming to the evans group. MyLife used to be reunion.com and it automatically sent invitations to my entire address book, without me Sun, 07 Jun 2009 22:23:47 GMT Constance McNamara http://health.groups.yahoo.com/group/EvansSyndrome/message/5360 http://health.groups.yahoo.com/group/EvansSyndrome/message/5360 I have received a couple of invitations like this. Can anyone tell me what the advantage is to using this site? We already have a social media networking Sun, 07 Jun 2009 19:41:04 GMT Laura Phillips http://health.groups.yahoo.com/group/EvansSyndrome/message/5359 http://health.groups.yahoo.com/group/EvansSyndrome/message/5359 Laura Phillips added you as a friend on MyLife(TM). Please confirm you know Laura so we can connect you. Do You Know Laura? YES - Connect with Laura, and see Mon, 20 Apr 2009 17:15:10 GMT Debra Adamo http://health.groups.yahoo.com/group/EvansSyndrome/message/5358 http://health.groups.yahoo.com/group/EvansSyndrome/message/5358 Wonderful news Erin!  You can literally feel your relief and happiness!  Thanks for sharing with us.  It's wonderful to think of Patrick enjoying life!    Mon, 20 Apr 2009 13:22:43 GMT jakk5858 http://health.groups.yahoo.com/group/EvansSyndrome/message/5357 http://health.groups.yahoo.com/group/EvansSyndrome/message/5357 ... So very Happy for Patrick and your whole family! Julie Aaron's mom Mon, 20 Apr 2009 13:14:38 GMT Erin Marcoux Healey http://health.groups.yahoo.com/group/EvansSyndrome/message/5356 http://health.groups.yahoo.com/group/EvansSyndrome/message/5356 To All: Patrick continues to do well...latest counts this past Friday are HGB 13.9, WBC 7.2 and platelets 390,000. Drs have lowered Imuran to every 3rd day.