http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/ Landau-Kleffner Syndrome Sun, 22 Nov 2009 02:30:29 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1639 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1639 Erin, Our first Neuro was like that- couldn't even spit out the initials- I would bring it up and he would shut it down. Finally did convince him and he was Sun, 22 Nov 2009 01:59:03 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1638 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1638 Erin, That sound very reminescent of my Thomas in his early days of LKS.Echolalia was his first symptom even before the receptive and expressive speech Sun, 22 Nov 2009 01:21:31 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1637 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1637 Amy, Thomas started with odd behaviors first- close to 4 years of age i.e. self talk, social withdrawal, loss of eye contact,new fear of heights, speech was Sun, 22 Nov 2009 00:46:04 GMT jsbpow http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1636 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1636 I forgot to say, and I find this important , his neuro still hasnt said he has LKS. She wont say yes or no. So frustraiting! Sun, 22 Nov 2009 00:43:45 GMT jsbpow http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1635 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1635 Amy, the neuro has told us only two weeks ago. I know that the first thing that was off was about 10 months ago, he said he would be in school and would start Sat, 21 Nov 2009 23:10:53 GMT Amy Anderson http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1634 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1634 hi, my son was diagnosed with LKS about 6 months ago, somedays it takes along time to get a response from him when you talk to him but his speech is fine. the Sat, 21 Nov 2009 22:36:41 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1633 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1633 Erin, Can be in both- temporal and parietal lobes are actually the most common foci but does not have to be one or the other. Can be in both and still meet Sat, 21 Nov 2009 22:29:13 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1632 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1632 Pam, Did Bennett recently go on and off Lamictal? Is he on any type of AED? Thomas had never been through any type of "severe regression" from age of onset at Sat, 21 Nov 2009 22:14:36 GMT jsbpow http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1631 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1631 I have read that the seizures should be in th temporal lobe but Trent's are in the temperal and parietal lobes. Does anyone have any insight into this? Thank Sat, 21 Nov 2009 22:11:57 GMT jsbpow http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1630 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1630 Thankyou Sharon, I will start teaching them on monday. Once again thank you very much! Sat, 21 Nov 2009 21:54:24 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1629 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1629 Erin, Same type of sign language is used with LKS kids, I believe. Research reports that signing will not stop them from using language and once kids that are Sat, 21 Nov 2009 21:43:39 GMT jsbpow http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1628 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1628 Sam $ Sharon, Thank you. Trent can read very well but his comprehension is really low. With his writing, he has very poor fine motor skills. My other son who Sat, 21 Nov 2009 21:23:40 GMT Sam http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1627 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1627 Hi Megan, Why not email Dulac and briefly tell him Gregor's history? Explain that he won't tolerate an EEG, but you are still keen to see him. When was his Sat, 21 Nov 2009 21:21:21 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1626 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1626 Erin, Reportedly the "normal age" is onset at about age 3-7. But children have been diagnosed younger and older from 18 months to 12 years old. Langauage loss Sat, 21 Nov 2009 20:49:41 GMT Sam http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1625 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1625 Hi Erin, LKS usually occurs between 4 and 9. 9 does seem to be quite late, but this is a good thing. Your son would have a better chance of regaining any lost