http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/ Landau-Kleffner Syndrome Tue, 10 Nov 2009 03:01:35 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1566 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1566 Becky, We are going for 24 hour EEG tomorrow. His last 24 hour EEG was in Feb. This was planned to be in conjuction with med change to Lamictal and wean from Mon, 09 Nov 2009 16:37:30 GMT beuly1 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1565 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1565 Hi again, I was wondering how often you all are repeating EEG's and if they are only over-nighters now. It's been a year for us. Thanks Becky ps, I know how Mon, 09 Nov 2009 02:20:05 GMT mrth_ryn http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1564 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1564 Cathy - We saw Dr. Kanner at RUSH but that was almost 5 yrs ago and he was more of surgery consult. Check their website and see if they have anyone new there. Sat, 07 Nov 2009 04:02:09 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1563 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1563 Becky, My last email in that string was prompted by receiving an EOB from the insurance company from the latest 2nd opinion Neuro. The visit was denied because Fri, 06 Nov 2009 22:35:38 GMT beuly1 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1562 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1562 I'm not new to this group, but have never posted. I have a 5 year old, Thatcher, with LKS and the nightmare that it is. This last string of posts sums up my Fri, 06 Nov 2009 21:35:40 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1561 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1561 Steph and Sue, My sentiments exactly! That has been my saving grace with dealing with these neurologists and other varied specialists in the last few years. I Fri, 06 Nov 2009 20:23:06 GMT Sharon http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1560 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1560 Kathy, You are fortunate your Neuropsych prescribes. Most often recommend med recommendations to Neuro, Dev Peds or Peds but do not prescribe...is he a MD as Fri, 06 Nov 2009 19:33:14 GMT cemmom@... http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1559 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1559 Hi all - Sorry to jump in but is there a particular neuro at Rush who is recommended? Also, generally speaking, are neuros nowadays recognizing LKS variant? Fri, 06 Nov 2009 15:29:29 GMT dvsdean http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1558 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1558 Hi, Our neuropsych prescribe the depakote. We tried sign language. My son has dyspraxia which doesn't help the situation. He can repeat what you say if its Fri, 06 Nov 2009 15:26:13 GMT Mia http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1557 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1557 It is amazing how much is left undone when it comes to our children, the people we are MOST likely to fight fight for. Reviewing all the research I've been Fri, 06 Nov 2009 15:24:42 GMT szmidford http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1556 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1556 I would try Rush in Chicago first. Chicago is not far from Indianapolis. If your insurance doesn't cover out of state doctors you may have to pay out of Fri, 06 Nov 2009 15:20:30 GMT dvsdean http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1555 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1555 Hi , Yes I saw that post on another group and I can not remember where. Do you remember what discussion group that was on? I would like to talk to her. Fri, 06 Nov 2009 12:26:54 GMT (no author) http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1554 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1554 I agree. It's amazing the majority of them are not even looking at how they can help. Our neurologist told me he was trained in adult as well as pediatric Fri, 06 Nov 2009 12:08:10 GMT Bill/Sue Mahan http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1553 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1553 Mia, In our case we jumped into IVIG without the appropriate approvals, and so forth, that most "sane" people get before launching into that treatment. In Fri, 06 Nov 2009 11:57:09 GMT Bill/Sue Mahan http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1552 http://health.groups.yahoo.com/group/LandauKleffnerSyndrome/message/1552 Kathy, Just an idea, but a mom from another discussion group said David Franz, MD, a Neurologist at Cincinnati Children's Hospital is great to work with. She