http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/ LPHS Sat, 21 Nov 2009 01:24:50 GMT harleyeden http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/55 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/55 I get abdominal pain as well as flank pain. And when my kidneys are acting up, I get gas too! It's so hard to figure out what causes our different pains when Sat, 14 Nov 2009 06:08:37 GMT Skyesinger http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/54 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/54 I don't know of any support groups, but I just wanted to say you are the first person I've met who has even known what an autotransplantation is. I was Sat, 14 Nov 2009 06:03:50 GMT Skyesinger http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/53 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/53 How are you all doing? I have posted on this group site in the past,but it has been awhile...I'm afraid I'm not too stable at this time. I have been diagnosed Fri, 25 Sep 2009 11:27:11 GMT Andrea Goonan http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/52 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/52 My pain is mostly in my abdomen, sometimes radiating around my back. Stabby/burny pain. I manage it with MS-contin (long acting morphine) and Dilaudid for Fri, 25 Sep 2009 03:55:32 GMT Amy Rapp http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/51 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/51 I've only ever met one other person with LPHS. She and I were waiting to see Dr. Hebert. She was the first patient of his to be put on a morphine pump. She Thu, 24 Sep 2009 13:37:41 GMT Melanie Deigert http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/50 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/50 I do get from side pain...on my right radiating down into my groin area.  But not just adominal pain alone.  But, everyone is different in their pain.  I Thu, 24 Sep 2009 11:47:31 GMT Andrea Goonan http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/49 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/49 Does anyone have ABDOMINAL pain instead of "flank" (back) pain? That is the only thing right now making me somewhat doubt this diagnosis. Otherwise it fits me Thu, 24 Sep 2009 11:11:55 GMT mushroommell http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/48 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/48 Thu, 24 Sep 2009 10:56:51 GMT a_wolfrom http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/47 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/47 I havent seen any one post here at all. I've never even posted :) That said, I was diagnosed a few months ago and am constantly in pain. I try not to take the Thu, 24 Sep 2009 05:41:21 GMT Amy http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/46 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/46 I was diagnosed last year at Mayo, had my right kidney autotransplanted, that was the best, no pain there. But my left kidney is so scarred down from stone Thu, 02 Apr 2009 14:18:53 GMT folwddefbf http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/45 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/45 I recommend you take a look at this... Check it here: http://egreats.zoomshare.com/files/chicks.htm Sun, 08 Mar 2009 04:17:14 GMT harleyeden http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/44 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/44 Hello. My name is Stepheny. I'm 35 and I got diagnosed with LPHS about 2 years ago. Like most people I encountered lots of ER doctors and even a urologist Tue, 03 Mar 2009 03:51:25 GMT Erica Floyd http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/43 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/43 I am not sure if I am sending these posts right or not, so please bear with me. I'm so relieved to see others out there still posting to this group...this is Sun, 01 Mar 2009 22:29:17 GMT Melanie Deigert http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/42 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/42 Hello again,   You are my daughters age.  I am very sorry that you are suffering greatly.  I do understand completetly how you feel.  The pain is so hard Sun, 01 Mar 2009 21:35:21 GMT fiona mciver http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/41 http://health.groups.yahoo.com/group/LoinPainHematuriaSyndrome/message/41 Hi Erica, I am 22 and live in Scotland in the UK and I also have LPHS. Unfortunately over here it is a very unknown illness so I was diagnosed and then