http://health.groups.yahoo.com/group/MAGIC-CAH/ MAGIC-CAH Sat, 05 Jul 2008 02:55:40 GMT cbiedrzycki@... http://health.groups.yahoo.com/group/MAGIC-CAH/message/135 http://health.groups.yahoo.com/group/MAGIC-CAH/message/135 Ask your Doctor for a prescription for Sterile Saline and use a syringe to extract the correct amount and add it to formula or foods. This is what I used when Sat, 05 Jul 2008 01:46:49 GMT Christine Campion http://health.groups.yahoo.com/group/MAGIC-CAH/message/134 http://health.groups.yahoo.com/group/MAGIC-CAH/message/134 Hi! I am a mom of 2 salt wasting cah girls. We ended up using liquid sodium chloride (usually found and administered in the er). It was easier to put into Fri, 04 Jul 2008 21:15:21 GMT Mariana C http://health.groups.yahoo.com/group/MAGIC-CAH/message/133 http://health.groups.yahoo.com/group/MAGIC-CAH/message/133 We have a daughter who is 13months she is a saltwaster, we never tried the tablets the doctor gave us the sodium in liquid form.  We haven't had any problems Fri, 04 Jul 2008 18:30:42 GMT bartnkelly http://health.groups.yahoo.com/group/MAGIC-CAH/message/132 http://health.groups.yahoo.com/group/MAGIC-CAH/message/132 Hi - I'm a mom of 3 kids (2 non-affected)with the third diagnosed with Salt Wasting CAH when he was 11 days old. He is now 7 months old and on three time daily Thu, 03 Jul 2008 21:19:44 GMT Mariana C http://health.groups.yahoo.com/group/MAGIC-CAH/message/131 http://health.groups.yahoo.com/group/MAGIC-CAH/message/131 this article is from Cares foundation maybe this could be related: I hope it helps.? Limited growth potential resulting from advancing skeletal maturation is Sun, 29 Jun 2008 22:32:46 GMT DENNIS BARTON http://health.groups.yahoo.com/group/MAGIC-CAH/message/130 http://health.groups.yahoo.com/group/MAGIC-CAH/message/130 Dear Mom, It does not sound like your son has CAH or Congenital Adrenal Hyperplasia. With CAH, he would have an advanced bone age. For instance, if he had CAH Sat, 28 Jun 2008 22:35:41 GMT Leslie Flattery http://health.groups.yahoo.com/group/MAGIC-CAH/message/129 http://health.groups.yahoo.com/group/MAGIC-CAH/message/129 Hi! I live in Houston and I have 2 children with CAH. Unfortunately short stature is one of the side effects. I agree that he needs to see another pediatric Sat, 28 Jun 2008 20:47:55 GMT cbiedrzycki@... http://health.groups.yahoo.com/group/MAGIC-CAH/message/128 http://health.groups.yahoo.com/group/MAGIC-CAH/message/128 I have a daughter with CAH - diagnosed at birth. The blood tests are pretty specific. Have you thought of getting a second opinion? Have you talked with the Sat, 28 Jun 2008 14:42:42 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/127 http://health.groups.yahoo.com/group/MAGIC-CAH/message/127 HELLO, MY SON WAS DIAGNOSED AT BIRTH WITH CONGENITAL ADRENAL HYPOPLASIA. THIS IS A LIFETIME DISEASE WITH A LACK OF SEVERAL HORMONES. WE WHERE TOLD MY SON WOULD Sat, 12 Apr 2008 00:29:47 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/126 http://health.groups.yahoo.com/group/MAGIC-CAH/message/126 From Jamie at MAGIC- no news on Washington yet. Hope to have an update (please God) sometime next week! However, I need for everyone who wants to have a Sat, 05 Apr 2008 22:51:34 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/125 http://health.groups.yahoo.com/group/MAGIC-CAH/message/125 DC Update: This week we (MAGIC and the Lawson Wilkins Pediatric Endocrine Society) finalized language which we are pleased will protect children and adults who Wed, 05 Mar 2008 06:13:13 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/124 http://health.groups.yahoo.com/group/MAGIC-CAH/message/124 Hey everybody, Don't panic!! PLEASE tell everyone you know to make 2 calls to Schumer and Grassley again today!!! I am sorry I do not have more Tue, 04 Mar 2008 02:20:38 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/123 http://health.groups.yahoo.com/group/MAGIC-CAH/message/123 Go to www.magicfoundation.org and look to the upper right for the "official" announcement. I want to thank everyone who made calls, faxed, emailed etc. It was Mon, 03 Mar 2008 01:56:01 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/122 http://health.groups.yahoo.com/group/MAGIC-CAH/message/122 Hello Everyone! Jamie with MAGIC here. Things are moving faster than light now that people are finding out we know about the events. An update was blasted to Sun, 02 Mar 2008 03:39:59 GMT ghdmom2 http://health.groups.yahoo.com/group/MAGIC-CAH/message/121 http://health.groups.yahoo.com/group/MAGIC-CAH/message/121 Has anybody seen what is going on???!!! Check it out and help!!! We have to stand together to make a difference for all the kids...please go here and send