http://health.groups.yahoo.com/group/MD-List/ Support and discussion of Muscular Dystrophy Mon, 08 Feb 2010 22:49:00 GMT BracinKnee@... http://health.groups.yahoo.com/group/MD-List/message/22716 http://health.groups.yahoo.com/group/MD-List/message/22716 I am home,..I am home...I am home! This e-mail, however, is going to focus on everyone who got me here. I'll update on myself soon, but today it's about Sun, 07 Feb 2010 20:42:58 GMT knuckles 145 http://health.groups.yahoo.com/group/MD-List/message/22715 http://health.groups.yahoo.com/group/MD-List/message/22715 it depends on the type of muscular dystrophy, but with beckers and duchennes it is carried on the X chromosome, so usually the women are the carries and the Sun, 07 Feb 2010 12:29:34 GMT Terri Trensey http://health.groups.yahoo.com/group/MD-List/message/22714 http://health.groups.yahoo.com/group/MD-List/message/22714 Gosh I sure know that feeling. Always being told in a week, tomorrow, maybe Tuesday if things are better……… the morning of release they are still Sun, 07 Feb 2010 07:42:45 GMT Terri Trensey http://health.groups.yahoo.com/group/MD-List/message/22713 http://health.groups.yahoo.com/group/MD-List/message/22713 Actually it was my sisters daughter who said they couldn’t get enough blood, that was to test for DMD. But I can see why there would be confusion J My Sun, 07 Feb 2010 07:02:30 GMT Faye Sears http://health.groups.yahoo.com/group/MD-List/message/22712 http://health.groups.yahoo.com/group/MD-List/message/22712 When my grandson was a baby his Uncle died at age 19 years from his heart transplant not working any more. They did tests after he was born and found out he Sun, 07 Feb 2010 06:03:21 GMT BracinKnee@... http://health.groups.yahoo.com/group/MD-List/message/22711 http://health.groups.yahoo.com/group/MD-List/message/22711 So after yesterday's drama with the GI attending, Dr. M,(I don't wishto go into detail but suffice to say I will never be treated by heragain) it was Sun, 07 Feb 2010 01:29:13 GMT Faye Sears http://health.groups.yahoo.com/group/MD-List/message/22710 http://health.groups.yahoo.com/group/MD-List/message/22710 My friend had a son who was not thriving. In the hospital a social worker Mom was talking to asked if she drank. Mom said a beer once in awhile. So they Sat, 06 Feb 2010 23:31:48 GMT Faye Sears http://health.groups.yahoo.com/group/MD-List/message/22709 http://health.groups.yahoo.com/group/MD-List/message/22709 It would be good for you to write your book Terri. Faye ... From: Terri Trensey To: MD-List@yahoogroups.com Sent: Saturday, February 06, 2010 9:29 AM Subject: Sat, 06 Feb 2010 18:28:01 GMT Adele http://health.groups.yahoo.com/group/MD-List/message/22708 http://health.groups.yahoo.com/group/MD-List/message/22708 I really do believe that if MDA refuses to test any female relative on the mother’s side of the Family, they are neglectful in their duties. In this day and Sat, 06 Feb 2010 17:29:45 GMT Terri Trensey http://health.groups.yahoo.com/group/MD-List/message/22707 http://health.groups.yahoo.com/group/MD-List/message/22707 I think he had SMA type 1 so if she is still married to the same person (and I haven’t heard that she isn’t) then they would both have that copy. She just Sat, 06 Feb 2010 16:21:05 GMT Terri Trensey http://health.groups.yahoo.com/group/MD-List/message/22706 http://health.groups.yahoo.com/group/MD-List/message/22706 My mom wouldn’t get tested because she said I told her she was too old and because her dad told her we haven’t had this in our family. I told her it would Sat, 06 Feb 2010 15:36:39 GMT Adele http://health.groups.yahoo.com/group/MD-List/message/22705 http://health.groups.yahoo.com/group/MD-List/message/22705 Terri. Gee, I can’t believe that it’s been almost 3 years since we lost Alex. What little bit I know about SMA is that unlike DMD, it effects both boys Sat, 06 Feb 2010 01:52:03 GMT Faye Sears http://health.groups.yahoo.com/group/MD-List/message/22704 http://health.groups.yahoo.com/group/MD-List/message/22704 I am completely at a loss of words for what you and your family have gone through. It just blows me away what these kids have suffered and for your grief. Fri, 05 Feb 2010 23:49:15 GMT Terri Trensey http://health.groups.yahoo.com/group/MD-List/message/22703 http://health.groups.yahoo.com/group/MD-List/message/22703 I don’t know if you remember but my son Alex died 2007 from Renal failure (heart failure?). My nephew, (my brothers his stepson) Louis died about 4 ½ Thu, 04 Feb 2010 18:23:26 GMT Faye Sears http://health.groups.yahoo.com/group/MD-List/message/22702 http://health.groups.yahoo.com/group/MD-List/message/22702 Prayers for Nathan and your family Terri. Faye ... From: Terri Trensey To: dmdsupport@yahoogroups.com ; singlemomsofspecialkids@yahoogroups.com ;