http://health.groups.yahoo.com/group/MPEIparentsupportgroup/ Migrating Partial Epilepsy of Infancy Sat, 06 Feb 2010 00:56:27 GMT KAREN http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1689 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1689 ... I would love to help, but I can't think of anything - having a friend whose son died at 11 months from Alpers I understand a bit, and I can't think of any Thu, 04 Feb 2010 08:31:57 GMT Alison Maguire http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1688 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1688 Hi girls, I have got a big favour to ask.... I am helping to put together a parent brochure for lily foundation. We are working on a question and answer Wed, 03 Feb 2010 09:53:58 GMT Alison Maguire http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1687 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1687 Hi lee, if you can't get it over in oz then I am happy 2 get it 4 u and post it over x Sent from my iPhone ... Hi lee, if you can't get it over in oz then I am Wed, 03 Feb 2010 09:43:26 GMT LeeC http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1686 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1686 Hi Alison, i am a nature freak,we eat mostly organic & here are my children being pumped with every drug under the sun,i always for the alternative 1st, Wed, 03 Feb 2010 08:03:53 GMT Alison Maguire http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1685 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1685 Hiya, We had similar short term success with melatonin. We had to increase and increase the dose as time went on so that it worked the same as when we first Tue, 02 Feb 2010 23:20:26 GMT Satnam http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1684 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1684 Jennifer, congratulations on having another baby! I'm sorry, I left that out in my last reply to you - sorry, I didn't mean to! Satnam Tue, 02 Feb 2010 21:33:04 GMT Alison Maguire http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1683 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1683 Hi Jennifer! Firstly congratulations on your pregnancy!! What wonderful news - I hope it all goes smoothly for you. Having a second when your first child is Tue, 02 Feb 2010 19:48:50 GMT Satnam http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1682 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1682 Hi Jennifer. Good luck with the keto diet. We tried it with Kristan at 9 months of age and stuck with it for a year and a half, but she never really reached Tue, 02 Feb 2010 12:18:26 GMT Pickering Family http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1681 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1681 Hello Lee, Melatonin….. haven’t heard that for some time….. we used this on Isaak 3 years ago with some short term success…. To start with it helped, Tue, 02 Feb 2010 09:22:06 GMT Pickering Family http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1680 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1680 Congrats on your new arrival - it is always a hard decision - I understand your anxiousness (having had 2 babies after Isaak) and no one will be able to Tue, 02 Feb 2010 09:12:50 GMT Lee Christian http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1679 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1679 Hi Jennifer, that is beautiful news,congradulations!!! Give the diet a good go as we gave up on Luke too quick & i think initially it really helped Freyja,gosh Tue, 02 Feb 2010 09:08:30 GMT LeeC http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1678 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1678 Hi every one, just a quick note to let you know Luke spent 6 nights in hospital due to lack of sleep & seizures.Luke has lately had trouble going to sleep at a Tue, 02 Feb 2010 05:27:33 GMT Jennifer Mhyre http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1677 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1677 Hi Everyone! I hope that you and your kiddos are doing okay. I wanted to let you know that we are starting Katelyn on the ketogenic diet tomorrow. We are Thu, 21 Jan 2010 14:43:15 GMT Alison Maguire http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1676 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1676 Hi Sarah, Poor Kayne - these kids just never get a break. Part of the fact (I assume) is that the brain controls every bodly function so it goes without saying Thu, 21 Jan 2010 09:10:00 GMT Pickering Family http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1675 http://health.groups.yahoo.com/group/MPEIparentsupportgroup/message/1675 Kayne has just been diagnosed today with Diabetes Insipidus ? His sodium levels have been rising steadly over the last month or so and he is now high ?