http://health.groups.yahoo.com/group/MarshallSyndrome/ Marshall Syndrome Tue, 21 Jul 2009 01:50:47 GMT aranda.michel http://health.groups.yahoo.com/group/MarshallSyndrome/message/104 http://health.groups.yahoo.com/group/MarshallSyndrome/message/104 Welcome Crystal!! It is nice to see we got some action here. My son Lalo is now 21 months just like Debs son and I still have lots of questions about symptoms Mon, 20 Jul 2009 17:16:01 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/103 http://health.groups.yahoo.com/group/MarshallSyndrome/message/103 Welcome Crystal:   My son James is now 21 months with PRS and Marshalls.  His cleft palate was repaired last February, at which time they inserted ear Mon, 20 Jul 2009 01:39:38 GMT calientecrystal http://health.groups.yahoo.com/group/MarshallSyndrome/message/102 http://health.groups.yahoo.com/group/MarshallSyndrome/message/102 Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,I see that no one Thu, 26 Mar 2009 14:11:52 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/101 http://health.groups.yahoo.com/group/MarshallSyndrome/message/101 Michel:   I heard back from my resource at Weisman Center in Madison.  I have included her email to me, which includes her email address and telephone Thu, 26 Mar 2009 04:29:24 GMT aranda.michel http://health.groups.yahoo.com/group/MarshallSyndrome/message/100 http://health.groups.yahoo.com/group/MarshallSyndrome/message/100 For the first 8 monthes of Lalo's life he had many ear infections. At 9 months we had the tubes put in and since then he has not had any.Like I said before we Wed, 25 Mar 2009 16:28:12 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/99 http://health.groups.yahoo.com/group/MarshallSyndrome/message/99 Oh, I forgot to add that in our state, Wisconsin, there is a bill pending before the state senate to require insurance companies to cover hearing aids for Wed, 25 Mar 2009 14:39:42 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/98 http://health.groups.yahoo.com/group/MarshallSyndrome/message/98 Good morning all!      My little james (almost 18 months now) had surgery last month to repair the palate and insert ear tubes.  Thankfully, all went Wed, 25 Mar 2009 14:35:32 GMT Vickie L. Specht http://health.groups.yahoo.com/group/MarshallSyndrome/message/97 http://health.groups.yahoo.com/group/MarshallSyndrome/message/97 Hi Michel (and the rest of the group)- Our son Nathan has worn hearing aids since he was two months old (mild-severe in one ear - profound loss in the other). Wed, 25 Mar 2009 04:47:41 GMT Christy Hill http://health.groups.yahoo.com/group/MarshallSyndrome/message/96 http://health.groups.yahoo.com/group/MarshallSyndrome/message/96 Hey!!! Some action on the list! I started wearing hearing aids when I was in second grade but that was 1972 and hearing aid technology has changed DRASTICALLY Tue, 24 Mar 2009 22:59:47 GMT aranda.michel http://health.groups.yahoo.com/group/MarshallSyndrome/message/95 http://health.groups.yahoo.com/group/MarshallSyndrome/message/95 Just a hello from our family to all of you members. Seems everyone has been busy busy and have not been able to post any messsages or visit the site recently. Tue, 30 Dec 2008 16:33:53 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/94 http://health.groups.yahoo.com/group/MarshallSyndrome/message/94 Hi Mandy: I don't have e-mail at home so I just got your message yesterday and tried to call, but got voicemail.  If you would like to give me a call, my Tue, 23 Dec 2008 16:37:35 GMT Mandy Gianotti http://health.groups.yahoo.com/group/MarshallSyndrome/message/93 http://health.groups.yahoo.com/group/MarshallSyndrome/message/93 Hi Deborah, I am having a hard time on the computer today (the baby keeps shutting it off on me).  Can you call me?  I know its long distance, but if you Mon, 22 Dec 2008 20:21:34 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/92 http://health.groups.yahoo.com/group/MarshallSyndrome/message/92 Hi Mandy:   I would be more than happy to participate.  What ages would they like picture of.  (I am an avid scrapbooker and have literally dozens of Sun, 21 Dec 2008 00:09:50 GMT mndygianotti http://health.groups.yahoo.com/group/MarshallSyndrome/message/91 http://health.groups.yahoo.com/group/MarshallSyndrome/message/91 Hi everyone, When Little Dean had his latest surgery to redo his palate the genetics team was able to get our insurance company to pay for the genetic testing Wed, 03 Dec 2008 17:15:52 GMT Deborah Hatfield http://health.groups.yahoo.com/group/MarshallSyndrome/message/90 http://health.groups.yahoo.com/group/MarshallSyndrome/message/90 Thanks for the good wishes.  I will give an update after our consult on December 12th.  Have a great day, everyone!   Deb ... From: Christy Hill