Mito at Yahoo! Groups

Re: Folate/mito doctors? Was Leucovorin

Rick3224 — Mon, 20 May 2013 14:22:08 GMT

I get nose bleeds every time I try Carotene, even worse if its vit E ( can only take 100mg a day). And I don't have any hematologic problems. Rick Sent from my

Re: Folate/mito doctors? Was Leucovorin

Roger Kulp — Mon, 20 May 2013 14:13:50 GMT

I have asked them.I have learned this is so rare,that Dr.Ramaekers at Centre Hospitalier Universitaire de Liège in Belgium is the only real choice I have.He

Re: Folate/mito doctors? Was Leucovorin

Robert Pische — Mon, 20 May 2013 14:06:56 GMT

Try mayo clinic Not sure how to post on board ,but my sons had mito since 8 now 19 hed usually pretty normal 1 episode a year ,he takes l

Current protocols for Mitochondrial Myopathy?

Randall — Mon, 20 May 2013 14:06:13 GMT

Hi, I haven't been here in a few years and wondering if there are any current, updated suggested protocols (e.g. CoQ10, vitaman E, etc.) for those with

Looking for current protocol for Mito treatment

Randall — Mon, 20 May 2013 14:06:13 GMT

Haven't been here in a few years but symptoms have worsened and looking for the most current protocol or protocols for supplements, diet, etc. I have one from

Re: Folate/mito doctors? Was Leucovorin

David Staup — Tue, 07 May 2013 19:22:21 GMT

Roger what I'm saying is low doses of benadryl inhibit (reduce) the amount of cell death to more normal levels... this will allow you to function more while

Re: Folate/mito doctors? Was Leucovorin

Roger Kulp — Tue, 07 May 2013 14:15:38 GMT

I have an actual diagnosis of cerebral folate deficiency syndrome from SUNY Downstate.It is this diagnosis has led me to look for a mitochondrial one,after

Re: Folate/mito doctors? Was Leucovorin

David Staup — Tue, 07 May 2013 13:38:53 GMT

Roger I have read your posts and suspect the following info might help you in your search for understanding and help. I have identified what I believe to be

Re: Folate/mito doctors? Was Leucovorin

Roger Kulp — Tue, 07 May 2013 12:51:21 GMT

The lab was damaged by Hurricane Sandy. Are there mito specialists who know about cerebral folate deficiency and autism,besides Dr.Frye at Arkansas

Re: Leucovorin

Roger Kulp — Tue, 07 May 2013 00:03:30 GMT

I take it for cerebral folate deficiency,the cause of my autism.In autism,it often goes along with mitochondrial disease,which I am waiting for a workup for.

Re: Leucovorin

Cheryl Fields — Tue, 07 May 2013 00:03:03 GMT

Cerebral folate deficiency and for some pts on chemo. Dr. Quadros at SUNY was doing the testing for the cerebral folate receptor antibodies, but I think this

Re: Leucovorin

gotamaralynne@... — Sat, 04 May 2013 03:08:10 GMT

It's used for the MTHFR genetic defect. My dr. Tested me for it after I asked for it. It is part of your detox system. And other systems that I can't describe.

Re: Leucovorin

m poole — Sat, 04 May 2013 03:04:37 GMT

why is this used? ________________________________ From: "gotamaralynne@..." To: "Mito@yahoogroups.com"

Re: Pain meds & mgt on type IV COX dx?

Nimmo Family — Sat, 04 May 2013 03:02:55 GMT

Anyone try homeopathic meds with success? Seems that would be a good alternative.

Re: Pain meds & mgt on type IV COX dx?

m poole — Sat, 04 May 2013 03:00:33 GMT

I would also like input on any pain meds that work. ________________________________ From: Roger Kulp To: "Mito@yahoogroups.com"