http://health.groups.yahoo.com/group/OnlineTMSSupport/ The Mastocytosis Society Mon, 06 Jul 2009 15:56:44 GMT faith_berry_tree http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2937 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2937 Do you eat snacks between meals then without taking it? Food that digests quickly like fruit? If I need to stay with 4 meals, do I need to take it with all 4 Mon, 06 Jul 2009 14:27:55 GMT faith_berry_tree http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2936 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2936 You're right, it is a big trip. But she is one of the few doctors that can dx you with MCAD or tell you more assuredly that you don't have it or Masto. Seems Mon, 06 Jul 2009 14:27:36 GMT faith_berry_tree http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2935 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2935 Jen, Kelly on the Low Oxalate Diet group told me she gets the neuropathy symptoms from eating oxalates (burning, numbness, pain) and the low oxalate diet has Mon, 06 Jul 2009 14:27:17 GMT faith_berry_tree http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2934 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2934 You would have to ask what tests to have done when you made the appointment. Faith Mon, 06 Jul 2009 02:17:53 GMT Suzanne Suppes http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2933 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2933 Yeah--I have had a diagnosis of POTS (postural orthostatic tachycardia syndrome) using a tilt-table test at the cardiologists. My symptoms are similar with Mon, 06 Jul 2009 00:48:11 GMT singingdancer95128 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2932 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2932 Thanks Faith, The problem is, I had the 24 hour urine and the tryptase and they were both negative. I don't want to go all the way to Boston for nothing. Mon, 06 Jul 2009 00:10:01 GMT Bridget McGraw http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2931 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2931 Dr. Castells had me do a 24 hour urine histamine, a blood tryptase and dependent on those results a bone marrow biopsy. before i saw her, i had already had a Sun, 05 Jul 2009 23:42:57 GMT singingdancer95128 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2930 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2930 Hi Faith, What tests would those be? I was negative for all IgE tests, I have IgG levels that are high. Thanks, June Sun, 05 Jul 2009 23:01:25 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2929 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2929 I can help you with that! Please call each physician, and confirm both that they would like to receive the DVD on Mast Cell Activation Symptomatology, made Sun, 05 Jul 2009 22:52:01 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2928 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2928 The critical issue is that it should be taken on an empty stomach. Val Valerie M. Slee, Chair Board of Directors Chair, Research Committee Liaison, Medical Sun, 05 Jul 2009 22:51:46 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2927 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2927 Hi June, You can email me tonight and I will give you the contact info to share with your physician, so that he can email Dr. Miner or Dr. Greenberger. After Sun, 05 Jul 2009 22:43:53 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2926 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2926 June, It sounds like you were already unstable, so you decided to take your meds. You thought you were better, so you UNWISELY took a very long bike ride, Sun, 05 Jul 2009 22:30:36 GMT Bridget McGraw http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2925 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2925 Which part is more important? Pre-meal or empty stomach? I always assumed it was the latter Sun, 05 Jul 2009 22:27:13 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2924 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2924 Gastrocrom is supposed to be taken 30 minutes before meals, on an empty stomach, and mixed with water. The fourth dose is given at bedtime, also on an empty Sun, 05 Jul 2009 22:12:13 GMT Jen http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2923 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/2923 I just started it myself but the hemo doc told me to take it 30 mins before breakfast and 30 mins before bed. But since I can only eat once a day, I just take