http://health.groups.yahoo.com/group/OnlineTMSSupport/ The Mastocytosis Society Fri, 04 Jul 2008 15:59:02 GMT Cary and Dave http://health.groups.yahoo.com/group/OnlineTMSSupport/message/852 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/852 It is good to know that I amd not the only one with questions and going through this. Thanks ... From: OnlineTMSSupport@yahoogroups.com Fri, 04 Jul 2008 06:17:56 GMT Michelle Lamanna http://health.groups.yahoo.com/group/OnlineTMSSupport/message/851 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/851 Forgot.....Gio's MySpace to help raise awareness is located at: http://www.myspace.com/lmbgba Sorry...I have DUH brain! Michelle Fri, 04 Jul 2008 06:07:19 GMT Michelle Lamanna http://health.groups.yahoo.com/group/OnlineTMSSupport/message/850 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/850 Hello! I am sending this out as a group email as I am tired, tired, tired. We have just been home a couple of days after being gone since the 18th or 19th of Thu, 03 Jul 2008 05:14:52 GMT Candace Van Auken http://health.groups.yahoo.com/group/OnlineTMSSupport/message/849 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/849 Dear Jessica, I hope you're not disappointed, but I am not any kind of doctor, nurse, or medical professional. I graduated from High School as Valedictorian Thu, 03 Jul 2008 00:44:26 GMT jessica_waters_art http://health.groups.yahoo.com/group/OnlineTMSSupport/message/848 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/848 Candace, You have a lot of knoweldge of these issues. I'm wondering if you could share what your academic background is, i.e. PhD bioscience, M.D., etc. Wed, 02 Jul 2008 22:06:50 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/847 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/847 I would certainly sign the letter in support serge Srdan Verstovsek, MD, PhD Associate Professor Leukemia Department MD Anderson Cancer Center 1515 Holcombe Wed, 02 Jul 2008 20:10:36 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/846 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/846 Dear Val, It's a bad precedent to treat cutaneous mastocytosis [with no apparent systemic disease] with Gleevec. As well outlined by Cem and Louis, the last Wed, 02 Jul 2008 16:18:49 GMT vmslee@... http://health.groups.yahoo.com/group/OnlineTMSSupport/message/845 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/845 ____________________________________ This child had a mutation in the extracellular domain of c-kit that does not interfere with imatinib (Gleevec) binding Wed, 02 Jul 2008 14:09:41 GMT Christine http://health.groups.yahoo.com/group/OnlineTMSSupport/message/844 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/844 WOW.. Five minutes.. Mine was 2 whole hours of poking and proding. I am not complaining though cuase Dr. Wilson at NIH is great! I am glad you are sending your Wed, 02 Jul 2008 11:29:45 GMT L G http://health.groups.yahoo.com/group/OnlineTMSSupport/message/843 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/843 Hi Katie, I live in the Chicago area as well and I was wondering who your dr at Northwestern is. Leslie Wed, 02 Jul 2008 01:33:50 GMT Maria Stafford http://health.groups.yahoo.com/group/OnlineTMSSupport/message/842 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/842 Hello All,   I got my BM biopsy today. It was a good expierience, hardly any pain. The doc had a hard time getting a piece of bone out but the pain was very Mon, 30 Jun 2008 22:04:04 GMT Christine http://health.groups.yahoo.com/group/OnlineTMSSupport/message/841 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/841 thanks for responding. Mon, 30 Jun 2008 21:49:24 GMT Candace Van Auken http://health.groups.yahoo.com/group/OnlineTMSSupport/message/840 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/840 Dear Christine, Thanks for sharing your experience and what you learned. It may be of help to the next person to visit. --Candace ... Candace Van Auken Chair, Mon, 30 Jun 2008 21:47:46 GMT Candace Van Auken http://health.groups.yahoo.com/group/OnlineTMSSupport/message/839 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/839 Dear Alan, Any disease that can be caused or made worse by inflammation can be a problem for people with mast cell-related disorders. Mast cells are key to the Mon, 30 Jun 2008 21:43:38 GMT Candace Van Auken http://health.groups.yahoo.com/group/OnlineTMSSupport/message/838 http://health.groups.yahoo.com/group/OnlineTMSSupport/message/838 Dear Delisa, Concentration of Immunoglobulin E (IgE) in people's blood serum varies with age, starting out very low and slowly increasing until age 10 to 15.