Peroxisomal_Disorders at Yahoo! Groups

Re: Diego's Mariachi Benefit Video

Betty MacLean — Sun, 08 Nov 2009 22:40:03 GMT

Great job It was nice to see pictures again of the children and put a face with a name 'God Bless you and all your family Betty MacLean

Re: Diego's Mariachi Benefit Video

Suzanne Collins — Sun, 08 Nov 2009 22:29:00 GMT

Thanks, Carolina. It was a gorgeous presentation of our children. Thank you for all you are doing to bring awareness. Suzanne ... From: Carolina Alfaro

Re: Diego's Mariachi Benefit Video

Rudi Gracie — Sun, 08 Nov 2009 21:59:31 GMT

beautiful i needed that before we get our results tomorrow. i love it xx ________________________________ From: Patty DelSorbo To:

Re: Diego's Mariachi Benefit Video

Elizabeth Ross — Sun, 08 Nov 2009 17:51:19 GMT

I just watch the video and I have tears running down my checks, it was beautiful it touched my heart.Graduation on the benefit concert. Elizabeth Steve Frank

Re: Diego's Mariachi Benefit Video

Steve Frank — Sun, 08 Nov 2009 17:36:33 GMT

Carolina, You did an absoslutely wonderful job on that video. I cried the entire time. It was very touching. Wendy Frank ... From: Patty DelSorbo

Re: Diego's Mariachi Benefit Video

Patty DelSorbo — Sun, 08 Nov 2009 15:57:21 GMT

... Beautiful! What a wonderful tribute to our children. Patty DelSorbo

Re: Diego's Mariachi Benefit Video

shawnee bear — Sun, 08 Nov 2009 15:49:05 GMT

carolina that was beautiful! love the frisch's ________________________________ From: Carolina Alfaro To: PBD Group

Re: Diego's Mariachi Benefit Video

caroline phillipson — Sun, 08 Nov 2009 14:53:51 GMT

Beautiful presentation and i loved the music you put with it. Well done, great job. Caroline x ________________________________ From: Carolina Alfaro

Diego's Mariachi Benefit Video

Carolina Alfaro — Sun, 08 Nov 2009 07:45:15 GMT

I posted the powerpoint on youtube for all of you to see. It's under Diego's Mariachi benefit. As mentioned before, I was not able to include all the children,

Re: I hope this works!

shawnee bear — Sat, 07 Nov 2009 22:52:04 GMT

Karen Nickolaus originally started with his seizures a week before his first birthday. he was having the staring out ones. then they turend to the ones that

Re: Today and Peter's Birthday

denisem321 — Sat, 07 Nov 2009 17:09:42 GMT

Happy Birthday Peter! Thanks for sharing Anne. Brought tears to my eyes too! I'm printing this out and taking it to Danny's IEP meeting in January. I

Re: Diego's Mariachi Benefit

denisem321 — Sat, 07 Nov 2009 17:05:03 GMT

Congratulations! Job well done!

Re: x-ald hope --- maybe it could spill over to other leukodystrophi

John Harris — Sat, 07 Nov 2009 07:24:00 GMT

More on this at http://www.physorg.com/news176655735.html

Re: I hope this works!

Shannon Butalla — Sat, 07 Nov 2009 04:26:08 GMT

Don’t worry about “bothering” Dr. Raymond, Karen. I actually phoned him in his car when Sam was diagnosed with leukemia. He was in a rain storm in rush

Re: x-ald hope --- maybe it could spill over to other leukodystrophi

Shannon Butalla — Sat, 07 Nov 2009 04:18:31 GMT

Yes, I’m aware that X-ALD is a very different problem… but amazed at the implications it could have for future medical breakthroughs. Thanks for sharing