Sotosyndrome at Yahoo! Groups

Photo of Sotos infant on Google

dana.cox39 — Sat, 19 Jul 2008 04:56:04 GMT

Hello everyone, I was just wondering if anybody knows who the photo of the nine month old infant is, if you google Sotos Syndrome Photo It is the middle

Re: blame idea is awesome!!!

donnarlee@... — Fri, 18 Jul 2008 23:22:11 GMT

sure thing. Genetics: he certainly has Sotos, I am just curious about the deletion or mutaion and the new things they are finding out about that all the time.

Re: blame idea is awesome!!!

hubby4kids — Fri, 18 Jul 2008 20:22:44 GMT

Hey, that's progress. Good for you, Zak! I surely can't look at the vials as the blood is going in. Yuk! Please let us know how the surgery goes and the

Re: Miracle League Night - Kellie

alexis rivera — Fri, 18 Jul 2008 19:31:25 GMT

That is so great that you got to speak to them directly. ... From: marlie gernhardt To: Sotosyndrome@yahoogroups.com Sent: Friday, July 18,

Re: Miracle League Night - Kellie

marlie gernhardt — Fri, 18 Jul 2008 17:06:28 GMT

Kellie, I'm soooo glad to hear all these great communications back and forth with the Marines. You just might have made some "new friends". Marlie Kellie

Re: Poem to teachers-Rivka

marlie gernhardt — Fri, 18 Jul 2008 17:03:06 GMT

Hi Rivka, It's funny you say that. On occassion I have written a poem here and there over the years. When caring for my husband's grandmother 8 yrs. ago, she

Re: Miracle League Night - Kellie

Kellie — Fri, 18 Jul 2008 16:52:51 GMT

I think he is as well. Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com]On Behalf Of Jenny Heater Sent: Thursday,

Re: Behavioral Changes....- Janice

alexis rivera — Fri, 18 Jul 2008 13:19:14 GMT

Our Genetics Dr is Dr. Lawrence Shapiro. His office is in Westchester and Rockland County. Not far from the city maybe 45 minutes or so. We really love him. He

Re: Sleep Study

explorepsi — Fri, 18 Jul 2008 12:10:39 GMT

HI it usually took about 2-4 wks to the results. Usually the sleep study doctor reviews everythng line by line and then does a comprehensive report for the

Re: Miracle League Night - Kellie

Jenny Heater — Fri, 18 Jul 2008 03:28:18 GMT

What a class act! ... From: "Kellie" To: Sotosyndrome@yahoogroups.com Sent: 7/17/08 10:48 PM Subject: RE: [Sotosyndrome] Miracle League

Re: Miracle League Night - Kellie

Kellie — Fri, 18 Jul 2008 02:48:59 GMT

Now, he's offered to send Daniel a few things. How cool is that. I am definitely going to take Ed's suggestion and contact the base commander. Kellie Rottie

Re: Miracle League Night - Kellie

Kellie — Fri, 18 Jul 2008 02:47:54 GMT

Ed, I'll do that. Thanks. Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com]On Behalf Of ramled3@...

Re: Miracle League Night

Kellie — Fri, 18 Jul 2008 02:46:51 GMT

Alexis, To be honest I doubt if he would have cared how he hurt you or Aidenn. He was a jerk. You, are a class act though and you took action. You really

Re: Sleep Study

April Hooper — Fri, 18 Jul 2008 01:47:32 GMT

Hi Alexis, Devon has had three sleep studies done. I have heard back about a week later on them all. I dont remember asking the techs, but the doc said two

Re: blame idea is awesome!!!

donnarlee@... — Fri, 18 Jul 2008 01:46:18 GMT

I just hope I can remember to use it (ideas to "pass the blame") when I need to. I COULD have used it today at the hospital but forgot to try. BUT, Here's a