http://health.groups.yahoo.com/group/Spondyville/ A Community for people with Ankylosing Spondylitis Fri, 20 Nov 2009 22:05:52 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18045 http://health.groups.yahoo.com/group/Spondyville/message/18045 I just posted a Christmas story that I wrote many years ago on the Spondyvill.com website. I had stuck it in a drawer, and only recently rediscovered it. It's Fri, 20 Nov 2009 18:51:51 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18044 http://health.groups.yahoo.com/group/Spondyville/message/18044 Come join your fellow Spondyvilleans this, and every, SATURDAY in the Spondy Cafe chat room at 10 AM and 5 PM Eastern times. (GMT-5 hours) Mon, 16 Nov 2009 00:42:13 GMT Crystal http://health.groups.yahoo.com/group/Spondyville/message/18043 http://health.groups.yahoo.com/group/Spondyville/message/18043 Mandy and Michael: I completely agree. I, too, am not fused and at present and feeling pretty well because of Enbrel, and don't struggle with body image Sun, 15 Nov 2009 08:54:05 GMT chrisbrandwood http://health.groups.yahoo.com/group/Spondyville/message/18042 http://health.groups.yahoo.com/group/Spondyville/message/18042 Yes I agree Michael. Even my family have no real understanding. I don't even complain to my husband any more. We just 'put up'. That's the great thing about Sat, 14 Nov 2009 17:17:26 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18041 http://health.groups.yahoo.com/group/Spondyville/message/18041 Karen, nice post! I think that I have gotten so used to people telling me that, I'm "walking much better", and that sort of thing, that I pretty much just tune Sat, 14 Nov 2009 16:51:25 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18040 http://health.groups.yahoo.com/group/Spondyville/message/18040 Laura, no-one really cringes when they use the word, Spondyville, do they? I thought they were muscle spasms. LOL Spondyville, it's the stiffest happy place Sat, 14 Nov 2009 14:22:52 GMT onefineseamstres@... http://health.groups.yahoo.com/group/Spondyville/message/18039 http://health.groups.yahoo.com/group/Spondyville/message/18039 In a message dated 11/14/2009 7:36:30 A.M. Eastern Standard Time, no_reply@yahoogroups.com writes: If colleagues want to rename you Quasimoto or something let Sat, 14 Nov 2009 12:36:10 GMT spedmus http://health.groups.yahoo.com/group/Spondyville/message/18038 http://health.groups.yahoo.com/group/Spondyville/message/18038 OK- I'm "weighing in" on this one. Like many of you who have already posted, the grim reality does come with a picture or a video znd it's not easy to "see Sat, 14 Nov 2009 07:34:19 GMT chrisbrandwood http://health.groups.yahoo.com/group/Spondyville/message/18037 http://health.groups.yahoo.com/group/Spondyville/message/18037 That is an interesting one! What irks me is when I am less stiff and not walking with a limp at work (doesn't happen often) and people assume I am 'getting Fri, 13 Nov 2009 18:10:18 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18036 http://health.groups.yahoo.com/group/Spondyville/message/18036 As I mentioned in an earlier post, I have been asked by one of the doctors I know at the Hospital for Special Surgery here in Manhattan to find three people Fri, 13 Nov 2009 18:00:57 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18035 http://health.groups.yahoo.com/group/Spondyville/message/18035 Come join your fellow Spondyvilleans this, and every, SATURDAY in the Spondy Cafe chat room at 10 AM and 5 PM Eastern times. (GMT-5 hours) Fri, 13 Nov 2009 14:46:30 GMT mandy duck http://health.groups.yahoo.com/group/Spondyville/message/18034 http://health.groups.yahoo.com/group/Spondyville/message/18034 I do think it would be alot different if I were single, but those of us that aren't I think we keep it in our minds that one day we could be because of our Fri, 13 Nov 2009 14:36:49 GMT mandy duck http://health.groups.yahoo.com/group/Spondyville/message/18033 http://health.groups.yahoo.com/group/Spondyville/message/18033 I am not fused, though in one of the xrays of my back they said my back was curved a little more than normal. I'm 34 and started getting the symptoms in my mid Fri, 13 Nov 2009 05:37:05 GMT Spenser23as http://health.groups.yahoo.com/group/Spondyville/message/18032 http://health.groups.yahoo.com/group/Spondyville/message/18032 Yes, this is a difficult topic for a lot of us. I think we've discussed it using other names, like self-image, etc, but I thank you for bringing it up. It is Fri, 13 Nov 2009 05:10:09 GMT jmrrmn http://health.groups.yahoo.com/group/Spondyville/message/18031 http://health.groups.yahoo.com/group/Spondyville/message/18031 I have been a member of Spondyville for roughly 5 years, and in that time, I cannot ever recall any postings regarding body image, or how we view ourselves as