TTD-support at Yahoo! Groups

Re: Welcome new members.

Brandi P — Sat, 06 Feb 2010 18:36:30 GMT

My husband is active duty in the Army. We are currently stationed at Fort Riley in KS but we will be moving within the next few weeks to a place that has

database

kellymacleod100 — Thu, 04 Feb 2010 16:24:22 GMT

Hello everyone I just wanted to drop a note to ask that if you haven't done so already, that members could go to the database page on the groups website and

Re: FIRST Conference

shellylkv — Wed, 03 Feb 2010 16:35:51 GMT

Hello! All the information about the conference is at www.scalyskin.org. It was primarily about the skin issues, but there are some other informative

Re: A Question

kmacleod@... — Wed, 03 Feb 2010 16:29:34 GMT

Hi Karen I am so sorry to hear about Tara. How long ago was Tara's other MRI done? My oldest child has a brain tumor, but it is not the same as Tara's. Hers

Welcome new members.

kmacleod@... — Wed, 03 Feb 2010 16:27:24 GMT

Hi Brandi You have come to the right place. At this point in time we have quite a few members. There are some families with more than 1 child aflicted with

Re: FIRST Conference

tylrmm@... — Tue, 02 Feb 2010 15:03:19 GMT

hello, we atttended the family conference several years ago in seattle, WA. it was quite informative. we were there for the ichthyosis. there was not much

Re: FIRST Conference

McIntosh — Tue, 02 Feb 2010 05:47:16 GMT

Hi Shelly, I would love to hear more details (when in the summer, etc) about the FIRST conference. Thanks, Tammy McIntosh ________________________________

Re: Karen and Tara

COLLINPRESLEY@... — Mon, 01 Feb 2010 16:52:57 GMT

It breaks my heart to hear this news about Tara. You are in our hearts and prayers. BIG HUGS, Julie ... From: Sam To:

FIRST Conference

shellylkv — Mon, 01 Feb 2010 16:50:01 GMT

Hello all, I have been in contact with the Foundation for Ichthyotic Related Skin Types (FIRST). They are having a national conference in Orlando Florida this

more numbers

Sam — Sun, 31 Jan 2010 08:25:29 GMT

Doctor Mark Pittelkow is also a good doctor for TTD The best way to contact Mayo Clinic about a medical concern is by phone. We're sorry, but we cannot advise

Karen and Tara

Sam — Sun, 31 Jan 2010 08:20:54 GMT

I am so sorry to hear this news , I will try and get the numbers to you straight away , your family is in my thoughts and prayers NIH National Institute of

Intro

Brandi — Sun, 31 Jan 2010 08:11:06 GMT

Hi my name is Brandi. I'm the mom of 3. Kyli is 5, Braelin 2 and CJ is 15 months. We are currently working towards a diagnosis of TTD with CJ. The hair labs

Re: A Question

Karen ODonnell — Sun, 31 Jan 2010 08:07:23 GMT

Hi Everyone, I hate to have gotten this news, but it turns out that Tara's headachs are caused by a brain tumor. The type of tumor is called a

Re: A Question

canders9472@... — Thu, 28 Jan 2010 19:22:27 GMT

Hello everyone yes I agree this is a wounderful place to be able to ask the questions well all have.I can not answer the question about headaches because

Re: A Question

Sean D. Appel — Thu, 28 Jan 2010 19:22:22 GMT

The abnormality in the white matter is part of the TTD. Have they done a follow up to see if the white matter is regressing? If our girls have a any type of