http://health.groups.yahoo.com/group/TTD-support/ trichothiodystrophy family contact Sat, 07 Nov 2009 23:20:51 GMT Megan Knight http://health.groups.yahoo.com/group/TTD-support/message/2454 http://health.groups.yahoo.com/group/TTD-support/message/2454 Thanks Christine Yes, Arabella sees Jim every 3 months.  He is amazing!  How is Talitha going?  Arabella is in grade 4 next year (middle school) at Woody Sat, 07 Nov 2009 23:19:31 GMT kmacleod@... http://health.groups.yahoo.com/group/TTD-support/message/2453 http://health.groups.yahoo.com/group/TTD-support/message/2453 Hi Megan Ask all the questions you like, it is not a problem. With Jake, when he had the surgery, the anesthesiologist gave us the option to give jake an Sun, 01 Nov 2009 05:04:04 GMT Christine http://health.groups.yahoo.com/group/TTD-support/message/2452 http://health.groups.yahoo.com/group/TTD-support/message/2452 All the best to you guys, Megan. We will be thinking of Arabella on 17th and fingers will be crossed for fast recovery. Are you still seeing Dr McGill? Thu, 29 Oct 2009 23:49:34 GMT Megan Knight http://health.groups.yahoo.com/group/TTD-support/message/2451 http://health.groups.yahoo.com/group/TTD-support/message/2451 Thank you Kelly Our thoughts are with Jake and yourselves. It sounds similar to what the surgeons said will happen with Arabella. re: casts etc.  They have Tue, 27 Oct 2009 02:11:43 GMT maria l http://health.groups.yahoo.com/group/TTD-support/message/2450 http://health.groups.yahoo.com/group/TTD-support/message/2450 Hi Kelly Sorry to hear that Jake is in some pain , your family is in my thoughts and prayers , please keep us intouch with his progress . hugs Maria Tue, 27 Oct 2009 02:09:03 GMT kmacleod@... http://health.groups.yahoo.com/group/TTD-support/message/2449 http://health.groups.yahoo.com/group/TTD-support/message/2449 Hi Megan Your timing is perfect. Jake just got home from the hospital Yesterday (sun). Last Tues (the 20th) Jake underwent a right proximal femur varus Thu, 22 Oct 2009 06:33:34 GMT maria l http://health.groups.yahoo.com/group/TTD-support/message/2448 http://health.groups.yahoo.com/group/TTD-support/message/2448 Hi Megan If there is anything we can do please let me know , if there is any thing that Arabella needs such as bandages , equipment etc, please let us know Tue, 20 Oct 2009 02:42:13 GMT Megan Knight http://health.groups.yahoo.com/group/TTD-support/message/2447 http://health.groups.yahoo.com/group/TTD-support/message/2447 Hi All -  hope you are all well!   My 8 year old daughter Arabella (who has TTD) is having 'bilateral varisingde-rotation osteotomy of proximal femur' in Thu, 01 Oct 2009 10:31:40 GMT lucyp2005 http://health.groups.yahoo.com/group/TTD-support/message/2446 http://health.groups.yahoo.com/group/TTD-support/message/2446 Hi everyone - just another question that you wonderful people might be able to help me with.. What do you use on your kids skin for sun damage etc Thu, 24 Sep 2009 07:36:30 GMT maria l http://health.groups.yahoo.com/group/TTD-support/message/2445 http://health.groups.yahoo.com/group/TTD-support/message/2445 Thats great Sean , I do that for my families in Australia , I would try and do it for overseas families but I am unsure of all the different times and Iam Thu, 24 Sep 2009 07:33:19 GMT Sean D. Appel http://health.groups.yahoo.com/group/TTD-support/message/2444 http://health.groups.yahoo.com/group/TTD-support/message/2444 Jackie is fantastic. She is a dear sweet person. She called me at 9:30 pm, not even 10 minutes after I emailed the Share and Care network after we learned the Fri, 18 Sep 2009 10:23:46 GMT MARIA LIISTRO http://health.groups.yahoo.com/group/TTD-support/message/2443 http://health.groups.yahoo.com/group/TTD-support/message/2443 I am glad I have been of some inspiration to you all , can I let you all know there could be someone that could help with information , her name is Jackie and Tue, 15 Sep 2009 09:26:10 GMT Jason Presley http://health.groups.yahoo.com/group/TTD-support/message/2442 http://health.groups.yahoo.com/group/TTD-support/message/2442 I would love to be involved with this. I am afraid that I am too far away from everyone else. I live in the Los Angeles area and there do not seem to be any Tue, 15 Sep 2009 09:25:57 GMT shellylkv http://health.groups.yahoo.com/group/TTD-support/message/2441 http://health.groups.yahoo.com/group/TTD-support/message/2441 Thanks for the encouragement. I know it will be worth it, it's just taken a little push to get the ball rolling. :) I believe it's time to make that jump now. Mon, 14 Sep 2009 19:47:31 GMT samjoechris http://health.groups.yahoo.com/group/TTD-support/message/2440 http://health.groups.yahoo.com/group/TTD-support/message/2440 Hi Shelly Yes that is how The Friends of Sammy Joe Foundation runs , we are a charitable non for profit trust fund and we are National within Australia , we