http://health.groups.yahoo.com/group/TTD-support/ trichothiodystrophy family contact Tue, 06 May 2008 20:09:20 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1826 http://health.groups.yahoo.com/group/TTD-support/message/1826 Hello everyone Just wondered how you are all doing ? Life s been pretty busy for us , I have a newletter for the Friends of Sammy-Joe Foundation you can have a Sun, 20 Apr 2008 10:43:25 GMT Sharon Slender http://health.groups.yahoo.com/group/TTD-support/message/1825 http://health.groups.yahoo.com/group/TTD-support/message/1825 Hi Maria, well done ! You are an amazing lady with energy to burn. congratulations Sharon, Neville Aaron & James _____ From: TTD-support@yahoogroups.com Sat, 19 Apr 2008 13:26:50 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1824 http://health.groups.yahoo.com/group/TTD-support/message/1824 On April the 12 th we had the Launch to the Friends of Sammy-Joe Foundation and it was a great success , we raised $7226.00 , we have already helped three Tue, 01 Apr 2008 07:05:11 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1823 http://health.groups.yahoo.com/group/TTD-support/message/1823 I would like to welcome all our new members , please introduce yourself and please do read all the post . we will try and provide some answers to your Mon, 31 Mar 2008 20:16:31 GMT daantjemom2puk http://health.groups.yahoo.com/group/TTD-support/message/1822 http://health.groups.yahoo.com/group/TTD-support/message/1822 Hello Maria, Thank you for your kind words!!! Puk is a very sweet little girl. Puk is seriously mentally disabled. She has a visual and auditive disorder. Mon, 31 Mar 2008 09:29:27 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1821 http://health.groups.yahoo.com/group/TTD-support/message/1821 Your daughters photo is gorgeous , can I add her to the Friends oF Sammy-Joe photo folder in our group she is sooooooooo gorgeous Mon, 31 Mar 2008 09:26:48 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1820 http://health.groups.yahoo.com/group/TTD-support/message/1820 Hi Daan I havent had a chance yet to contact Jackie as I have had alot of interviews for the media , but as soon as I get a chance I will try and call her or Mon, 31 Mar 2008 09:22:08 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1819 http://health.groups.yahoo.com/group/TTD-support/message/1819 Thank you again , that is a great idea I will get intouch with her ASAP thanks again Danielle Maria ... specific Mon, 31 Mar 2008 09:20:46 GMT daantjemom2puk http://health.groups.yahoo.com/group/TTD-support/message/1818 http://health.groups.yahoo.com/group/TTD-support/message/1818 Hi Maria, Jackie Clark, president of the Cockayne Syndrome network, has met the woman who discovered TTD. Her name is Vera Price. I don't know if you ever had Mon, 31 Mar 2008 09:20:30 GMT crystal http://health.groups.yahoo.com/group/TTD-support/message/1817 http://health.groups.yahoo.com/group/TTD-support/message/1817 Hello everyone!!!!Hope everyone is doing ok.I was looking around on the internet and found a site called www.imakid.org they send dolls to kids that have lost Mon, 31 Mar 2008 09:20:04 GMT daantjemom2puk http://health.groups.yahoo.com/group/TTD-support/message/1816 http://health.groups.yahoo.com/group/TTD-support/message/1816 Hello Maria, I also want to let you know that Jackie Clark (director CS group) has met Vera Price. She's the woman who discovered TTD. Jackie may be able to Sat, 29 Mar 2008 21:52:47 GMT daantjemom2puk http://health.groups.yahoo.com/group/TTD-support/message/1815 http://health.groups.yahoo.com/group/TTD-support/message/1815 Hello Maria, As i'm from Holland, it's not easy for me to speak on the phone in English. I'm a better writer then talker in English. hèhè That's why i sent Fri, 28 Mar 2008 22:31:31 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1814 http://health.groups.yahoo.com/group/TTD-support/message/1814 All the aussie kids that would like to get involved with the stories being reported on Sammy-Joe can do so by contacting a reporter called Cheryl Critchley, Fri, 28 Mar 2008 22:22:06 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1813 http://health.groups.yahoo.com/group/TTD-support/message/1813 Hello everyone I have heard from a Reporter from London her name is ISLA and she is interested in doing a story about TTD and would like people in England that Fri, 28 Mar 2008 22:09:20 GMT Maria http://health.groups.yahoo.com/group/TTD-support/message/1812 http://health.groups.yahoo.com/group/TTD-support/message/1812 Hello and Thank you I will definately let the families know and also I will ask if I can pass on their details , they are aware of the network as I have let