http://health.groups.yahoo.com/group/adultslivingwithvcfs/ Adults living with VCFS Sun, 31 May 2009 02:52:44 GMT Christopher Anderson http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/64 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/64 Hi Roger This is Christopher Anderson from the Hypoparathyroid Asociation how are things. My Kidneys failed on me and I was in the hospital for three weeks Sat, 30 May 2009 23:27:30 GMT Eric L. Pickett http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/63 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/63 Hi Roger, My name is Sherry and I also have the DiGeorge syndrome. Found out after my son was born he also has it. He has the severe heart condition TOF. I Sat, 30 May 2009 22:00:57 GMT rogerevans60 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/62 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/62 Hi; I am new to this group. I have DiGeorge Syndrome/VCFS and 22q. My main issues are the Immune System, Hypoparathyroidism WITH Severe Recurrent Tetany Wed, 28 May 2008 18:45:33 GMT fionawool http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/61 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/61 Just read your message - I do hope that you have had the following checked: - ionised calcium - parathyroid - magnesium - vitamin D. What you are suggesting Sun, 25 May 2008 17:43:18 GMT EPickett http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/60 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/60 Lisa, Hi this is Sherry Pickett. Hope you are doing well I have some news for you regarding adult with the Digeorge. I know that you have experienced some Mon, 21 Jan 2008 00:39:12 GMT EPickett http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/59 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/59 Sat, 29 Dec 2007 17:08:02 GMT digeorgemomofthree http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/58 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/58 Been so busy these day's with the kids Dr apts and mine haven't had much time for the internet. Does it get that way for everyone else too. Trying to boggle Tue, 25 Dec 2007 17:34:21 GMT EPickett http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/57 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/57 Fionawool, Hi Happy Holidays to u. I do have a question for u. Does it seem like it gets any better for the adults whoe have the 22qdeletion. I have recently Sun, 23 Dec 2007 17:49:55 GMT fionawool http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/56 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/56 This is just to wish everyone a Happy Christmas or Seasons Greetings or whatever. I am continuing with my law degree until May. Health has been somewhat up and Mon, 12 Nov 2007 19:34:38 GMT digeorgemomofthree http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/55 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/55 Has every one gotten there's? Mon, 05 Nov 2007 13:58:47 GMT digeorgemomofthree http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/54 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/54 CVID is abnormal T and B cell's with IGG and IGA levels's (basicly your white count's) being very low to where people are sick all the time with recurrent Mon, 05 Nov 2007 13:58:45 GMT digeorgemomofthree http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/53 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/53 is on Wed from 8-9 pm central time. Link is:www.doctortony.net you may have to register if you aren't already a member and click on live chat then main lobby. Sun, 04 Nov 2007 20:16:06 GMT EPickett http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/52 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/52 Lisa, Hey! what exactly is Common variable immunodeficiency? I know my endocronolgist is keeping close checks on my CBC levels in all. I had not heard of that. Sun, 04 Nov 2007 18:57:29 GMT Lisa Wellnitz http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/51 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/51 http://www.chw.org/display/PPF/DocID/22227/Nav/1/router.asp __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has Sun, 04 Nov 2007 18:08:13 GMT digeorgemomofthree http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/50 http://health.groups.yahoo.com/group/adultslivingwithvcfs/message/50 some may think it is associated with arthritis but may also be a sign of CVID(common variable immunodeficiency). Which my two daughter's have been diagnosed