http://health.groups.yahoo.com/group/afha/ This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org) Wed, 01 Jul 2009 16:39:56 GMT Kelly Andrasco http://health.groups.yahoo.com/group/afha/message/7226 http://health.groups.yahoo.com/group/afha/message/7226 Has anyone used Trileptal for stablizing moods? I know it is an anti-epileptic drug, too. ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Wed, 01 Jul 2009 15:59:47 GMT Sylvia Ockman http://health.groups.yahoo.com/group/afha/message/7225 http://health.groups.yahoo.com/group/afha/message/7225 Kelly,   Kristen is the same way.  But now with the meds she will give in faster than before.  If I give her an answer that makes since she will now say ok Tue, 30 Jun 2009 16:31:53 GMT Christine Morris http://health.groups.yahoo.com/group/afha/message/7224 http://health.groups.yahoo.com/group/afha/message/7224 Haley 17, and Caroline 15 both have AHC - they were both tested for familial hemiplegic migraine as part of Dr. Svoboda's research and both her negative, if Tue, 30 Jun 2009 16:10:57 GMT cassiechaparro http://health.groups.yahoo.com/group/afha/message/7223 http://health.groups.yahoo.com/group/afha/message/7223 Hi, By developmental delay did you mean cognitive impairment or any type of delay? For example my son was delayed in speech and social skills, and motor Tue, 30 Jun 2009 13:39:06 GMT erika misenti http://health.groups.yahoo.com/group/afha/message/7222 http://health.groups.yahoo.com/group/afha/message/7222 Tyler tells me now that he has head aches and also that his legs arms or what ever r all tingly Tyler is so aware now of all that goes on and this helps us to Tue, 30 Jun 2009 13:38:40 GMT Wendy http://health.groups.yahoo.com/group/afha/message/7221 http://health.groups.yahoo.com/group/afha/message/7221 The biggest difference is the developmental delay. Hemiplegic Migraine doesn't have any delay in development, and AHC does Wendy ... From: Tue, 30 Jun 2009 01:02:25 GMT armies@... http://health.groups.yahoo.com/group/afha/message/7220 http://health.groups.yahoo.com/group/afha/message/7220 Hi Kathy Glut 1 was picked up by sending skin bopsies and blood test off to a Dr De Viro in New York. Zac has always had low levels of glucose in the cerebral Tue, 30 Jun 2009 00:09:17 GMT JIMMYAHC@... http://health.groups.yahoo.com/group/afha/message/7219 http://health.groups.yahoo.com/group/afha/message/7219 My son is named Jimmy and is 17 yrs old with AHC and epilepsy for last 2 yrs. He's 5' 3" and 102 lbs. 1. Keppra - hostile look and vicious within 5 minutes of Mon, 29 Jun 2009 21:21:10 GMT Kelly Andrasco http://health.groups.yahoo.com/group/afha/message/7218 http://health.groups.yahoo.com/group/afha/message/7218 Sylvia, I think she is more impulsive and she is obsessive, as in she won?t let things go or get off of a topic/question, especially if things don?t go her Mon, 29 Jun 2009 18:59:59 GMT KathHurl@... http://health.groups.yahoo.com/group/afha/message/7217 http://health.groups.yahoo.com/group/afha/message/7217 Hi Carolyn -- what does Glut 1 mean?? What tests were done to get to this diagnosis?? How is it being treated? Abbie is turning 20 this week.? Kathy ... From: Mon, 29 Jun 2009 17:49:11 GMT Sylvia Ockman http://health.groups.yahoo.com/group/afha/message/7216 http://health.groups.yahoo.com/group/afha/message/7216 Kelly,   Good luck.  Does your child have issues with being compulsive?  Kristen would pick her finger nails until they would fall off.  My advice would be Mon, 29 Jun 2009 16:19:32 GMT Kelly Andrasco http://health.groups.yahoo.com/group/afha/message/7215 http://health.groups.yahoo.com/group/afha/message/7215 Thank you, Sylvia. We see the psych tomorrow. Kelly ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf Of Sylvia Ockman Sent: Monday, June Mon, 29 Jun 2009 15:09:07 GMT Sylvia Ockman http://health.groups.yahoo.com/group/afha/message/7214 http://health.groups.yahoo.com/group/afha/message/7214 Kelly,   The dr. is the one who suggested that we try something different.  When we would start one we gave  it a couple weeks.  At first things would go Mon, 29 Jun 2009 14:45:29 GMT Kelly Andrasco http://health.groups.yahoo.com/group/afha/message/7213 http://health.groups.yahoo.com/group/afha/message/7213 What is Glut1? Are there any symptoms? Kelly Andrasco ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf Of armies@... Sent: Mon, 29 Jun 2009 04:55:09 GMT armies@... http://health.groups.yahoo.com/group/afha/message/7212 http://health.groups.yahoo.com/group/afha/message/7212 Hi Karen Abbie's wobbly spells described our son right down to a T and for years Zac was diagnosed with Alternating Hemiplegia But last year Zac was also