http://groups.yahoo.com/group/afha/ This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org) Fri, 17 May 2013 19:27:13 GMT erika misenti http://groups.yahoo.com/group/afha/message/10516 http://groups.yahoo.com/group/afha/message/10516 Hello i took Tyler to his Therypist/med manager he tild me he did research on abilify and taking it with Flunarizene that it can cause movement problems and Fri, 17 May 2013 03:10:58 GMT Jeff Wuchich http://groups.yahoo.com/group/afha/message/10515 http://groups.yahoo.com/group/afha/message/10515 Hi Michelle, As some have already said, please don't blame yourself. I know that is hard not to do. I've done it to myself many times with Matthew's various Thu, 16 May 2013 20:58:48 GMT Dominique PONCELIN http://groups.yahoo.com/group/afha/message/10514 http://groups.yahoo.com/group/afha/message/10514 Dear Karen It looks to me like a full tonic (dystonia) attack rather than a grand mal seizure. From a medical point of view, the only way to distinguish Wed, 15 May 2013 23:48:27 GMT Karen http://groups.yahoo.com/group/afha/message/10513 http://groups.yahoo.com/group/afha/message/10513 Hi all, We are having another bad time again with Trevor. As usual the episodes are changing again. Have any of you seen your child go down into a seemingly Wed, 15 May 2013 23:14:45 GMT Glenda Davies http://groups.yahoo.com/group/afha/message/10512 http://groups.yahoo.com/group/afha/message/10512 I was very saddened when I read your post Michelle. It is true, we never know what the future holds for our kids. My thoughts and prayers are with you and Wed, 15 May 2013 17:32:24 GMT Dominique PONCELIN http://groups.yahoo.com/group/afha/message/10511 http://groups.yahoo.com/group/afha/message/10511 Dear Michelle, Thank you for sharing with us those very sad news. All what you said is something some of us are feeling with our kids when they go through Wed, 15 May 2013 17:05:48 GMT MaryKay Riley http://groups.yahoo.com/group/afha/message/10510 http://groups.yahoo.com/group/afha/message/10510 I know how you feel -- I have had some of these same issues when Nick was in school. The police were also called on him once too due to agressive behavior. Wed, 15 May 2013 16:29:33 GMT SMG http://groups.yahoo.com/group/afha/message/10509 http://groups.yahoo.com/group/afha/message/10509 Oh, Michelle. My heart of breaking for you. Please do not feel guilty and blame yourself. You did everything you could and you are not responsible for this. Wed, 15 May 2013 14:26:43 GMT zuzana u http://groups.yahoo.com/group/afha/message/10508 http://groups.yahoo.com/group/afha/message/10508 Hi Michelle I am so sad and angry ..we had few trips to the ER and had to tell paramedics not to shine the bright light into Michele's eyes...some listened and Wed, 15 May 2013 13:12:18 GMT Lynn Egan http://groups.yahoo.com/group/afha/message/10507 http://groups.yahoo.com/group/afha/message/10507 We will continue to keep you both in our prayers. Lynn Lynn Egan President and Family Support 239 Nevada St. Redwood City, CA 94062 Cell Wed, 15 May 2013 10:30:37 GMT erika misenti http://groups.yahoo.com/group/afha/message/10506 http://groups.yahoo.com/group/afha/message/10506 My prayers go out to sweet nicole...also to you Michelle..for strenghth, its so hard knowing what the right thing to do is...please never blame yourself.  I Wed, 15 May 2013 10:29:24 GMT Kcventi http://groups.yahoo.com/group/afha/message/10505 http://groups.yahoo.com/group/afha/message/10505 Michelle, you must be exhausted. Our prayers are with Nicole that her recovery continues slow but steady. My daughter has lots of emerg interventions and past Wed, 15 May 2013 10:26:52 GMT erika misenti http://groups.yahoo.com/group/afha/message/10504 http://groups.yahoo.com/group/afha/message/10504 My prayers go out to sweet nicole...also to you Michelle..for strenghth, its so hard knowing what the right thing to do is...please never blame yourself.  I Wed, 15 May 2013 05:25:02 GMT Hari SS http://groups.yahoo.com/group/afha/message/10503 http://groups.yahoo.com/group/afha/message/10503 Our sincere prayers for Nicole to get well soon. Best regards, Satish, f/o hari 1.5 years. Sent from my iPod ... [Non-text portions of this message have been Wed, 15 May 2013 04:57:32 GMT michelle http://groups.yahoo.com/group/afha/message/10502 http://groups.yahoo.com/group/afha/message/10502 Hi! I would like to thank u all for the prayers sent our way. We still need them so pls keep them coming. Nicole is still in ICU.. We transferred her from a