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Re: Information

Vicki Robson — Wed, 04 Nov 2009 22:56:04 GMT

Hi Linda, This is very interesting. Thanks again for sharing it with us. Take care, Vicki ... From: lsquittman Subject: [apeced]

Re: Octreotide

Liz and James Yarker — Wed, 04 Nov 2009 22:04:58 GMT

Hi Julia, Could you possibly list the ingredients of the probiotics that help you so I can try and track down something similar here in Australia! James has

Re: Information

lsquittman — Wed, 04 Nov 2009 21:12:47 GMT

Hi Vicki, Jennifer, Julia, Andrea, etc., etc., and all, I was researching this pulse IV Methylprednisone and found it is being used for a variety of autoimmune

Re: Information

Vicki Robson — Wed, 04 Nov 2009 18:40:55 GMT

Hi Linda, Thanks for the information. I hope the doctors will listen to Tara and give her what she needs. Take care, Vicki ... From: lsquittman

Re: Octreotide

Vicki Robson — Wed, 04 Nov 2009 18:27:38 GMT

HI Linda, I am so sorry to hear about Tara. I am not familiar with Octreotide so I can't help. I hope the doctors will find something to help her very soon.

Re: Information

lsquittman — Wed, 04 Nov 2009 16:30:02 GMT

Hi Everyone, Please read this if malabsorption is an issue. I spoke to this doctor in Israel and he is on to something but Tara's doctors are too stubborn to

Re: Octreotide

juliap99 — Wed, 04 Nov 2009 15:19:10 GMT

Hi Linda, I also have the opposite problem (someitmes sever constipation) - so I'm of no help with what I do. BUT I do know with our son we adopted from

Re: Octreotide

Liz and James Yarker — Wed, 04 Nov 2009 03:07:28 GMT

Hi Linda, Sorry I can't help... James has the opposite problem! Hope they sort out something to help and that Tara feels better soon. Liz From:

Re: Octreotide

happycampers123 — Wed, 04 Nov 2009 02:13:08 GMT

My son Layne had diarrhea with malabsorbtion and they found out he was fat soluble vitamin deficient which they see in cf patients because of the pancreas

Re: Octreotide

Orange, Jennifer — Wed, 04 Nov 2009 01:17:33 GMT

I'm so sorry to hear about Tara. She will be in my thoughts. Andrea, can I ask why they thought your son has CF? Did he have lung issues? I ask because my

Re: Octreotide

happycampers123 — Wed, 04 Nov 2009 01:04:44 GMT

Hi my son has been diagnosed with aps 1 just a yearago. He was misdiagnosed with cystic fibrosis for 7years. His primary symptoms all them years was chronic

Octreotide

lsquittman — Wed, 04 Nov 2009 00:32:39 GMT

Hi Everyone, Have any of you heard of or tried Octrotide to control watery diarrhea? Tara is on three shots a day with an escalating dose but so far it is