http://health.groups.yahoo.com/group/apeced/ APECED SYNDROME Sun, 17 Jan 2010 22:20:56 GMT Liz and James Yarker http://health.groups.yahoo.com/group/apeced/message/602 http://health.groups.yahoo.com/group/apeced/message/602 Hi Ashley, Welcome to the group. I'm Liz and my husband James (25) has APECED. We are in Australia so not very helpful with good docs in the states! J There Sun, 17 Jan 2010 14:02:15 GMT Jaci OBrian http://health.groups.yahoo.com/group/apeced/message/601 http://health.groups.yahoo.com/group/apeced/message/601 Hi Ashley- Glad you found our group, a lot of families on here will be supportive in helping. I am sorry to hear about your daughter and her diagnosis, it just Sun, 17 Jan 2010 02:31:29 GMT dash.harris http://health.groups.yahoo.com/group/apeced/message/600 http://health.groups.yahoo.com/group/apeced/message/600 Wow...I don't even know where to begin, but yesterday we received the news that our 10 year old daughter, Delaney had tested positive for APECED (with two Mon, 04 Jan 2010 09:05:44 GMT matchasufriends http://health.groups.yahoo.com/group/apeced/message/599 http://health.groups.yahoo.com/group/apeced/message/599 I created a profile with my pictures, videos, blog and events and I'd like to add you as a friend to show this to you. Sun, 03 Jan 2010 16:50:21 GMT Maria http://health.groups.yahoo.com/group/apeced/message/598 http://health.groups.yahoo.com/group/apeced/message/598 The University if California at San Francisco is entering the human study phase of their research on AIRE and autoimmune. They are looking for participants Sun, 03 Jan 2010 16:45:55 GMT Maria http://health.groups.yahoo.com/group/apeced/message/597 http://health.groups.yahoo.com/group/apeced/message/597 Thanks Jennifer! Happy New Year! Hope you enjoyed your vacation and the holidays and that 2010 is finding Julia healthy and happy. I hadn't thought to include Mon, 28 Dec 2009 04:31:15 GMT Maria http://health.groups.yahoo.com/group/apeced/message/596 http://health.groups.yahoo.com/group/apeced/message/596 Hi Vanessa, I just joined the group and saw your questions. Have they checked all of your hormones? Just from somr of the symptoms you coupd have Premature Mon, 28 Dec 2009 03:33:36 GMT Orange, Jennifer http://health.groups.yahoo.com/group/apeced/message/595 http://health.groups.yahoo.com/group/apeced/message/595 Hi Maria and welcome to the group, I can only imagine how hard it has been for you to go undiagnosed for so long. I am away on vacation, but would be happy to Mon, 28 Dec 2009 00:36:49 GMT Maria http://health.groups.yahoo.com/group/apeced/message/594 http://health.groups.yahoo.com/group/apeced/message/594 Hi, My name is Maria and at age 38 I've finally been geiven a diagnosis for th ehealth problems that have plagued me all of m life. I still have to confirm the Mon, 07 Dec 2009 15:08:09 GMT juliap99 http://health.groups.yahoo.com/group/apeced/message/593 http://health.groups.yahoo.com/group/apeced/message/593 Susan and others, Thanks for your comments! It seems it's likely the first time mom injury :) My doc is guessing tendonitis maybe from repreatedly picking up Mon, 07 Dec 2009 09:49:40 GMT matchasufriends http://health.groups.yahoo.com/group/apeced/message/592 http://health.groups.yahoo.com/group/apeced/message/592 You have received an important Message! Check your message here: http://mydandie.zoomshare.com/files/invite.htm Mon, 07 Dec 2009 04:43:27 GMT SE Rubio http://health.groups.yahoo.com/group/apeced/message/591 http://health.groups.yahoo.com/group/apeced/message/591 Hi Julia, Congratulations on your upcoming first Christmas with your son!  About your pain, I am so confident that what you are experiencing is "first time Fri, 04 Dec 2009 21:22:03 GMT vrobson1 http://health.groups.yahoo.com/group/apeced/message/590 http://health.groups.yahoo.com/group/apeced/message/590 Hi Julia, Ryan has joint pains now & then but it doesn't seem to bother him much. I have wrist & thumb pain and believe mine is due to tennis and using the Fri, 04 Dec 2009 15:47:20 GMT Orange, Jennifer http://health.groups.yahoo.com/group/apeced/message/589 http://health.groups.yahoo.com/group/apeced/message/589 Hi Julia, I hope that it resolves quicky. It sounds to me like you have a typical mom injury! I had the same problem after Julia was born and I do not have Fri, 04 Dec 2009 15:43:15 GMT juliap99 http://health.groups.yahoo.com/group/apeced/message/588 http://health.groups.yahoo.com/group/apeced/message/588 So I got xrays today and the doc (primary care doc) is thinking tendonitis or a ligament issue. He ruled out carpal tunnel because I don't have any tingling