http://health.groups.yahoo.com/group/atr-x/ X-Linked Alpha Thalassemia M/R Syndrome Mon, 08 Jun 2009 15:04:22 GMT Sheralyn http://health.groups.yahoo.com/group/atr-x/message/1642 http://health.groups.yahoo.com/group/atr-x/message/1642 Hi Eileen, In your groups list it will say atr-x but they will not be able to find out what that is as they can't view the group without being members. ... Mon, 08 Jun 2009 08:29:14 GMT Eileen Boussina http://health.groups.yahoo.com/group/atr-x/message/1641 http://health.groups.yahoo.com/group/atr-x/message/1641 I just saw that. If I join your ATR-X group, will my own personal facebook page show my friends that I am part of the ATR-X group? To: atr-x@yahoogroups.com Fri, 05 Jun 2009 08:39:16 GMT Sheralyn http://health.groups.yahoo.com/group/atr-x/message/1640 http://health.groups.yahoo.com/group/atr-x/message/1640 , Hi Lisa When you set up your Facebook account you can go into your Account privacy settings and set it up so only people you add can see you on there or only Fri, 05 Jun 2009 08:34:15 GMT Sheralyn http://health.groups.yahoo.com/group/atr-x/message/1639 http://health.groups.yahoo.com/group/atr-x/message/1639 Hi Eileen, I have started an atr-x group on here that you can join and chat to each other in private as it is a closed group no one else is allowed to go on Thu, 04 Jun 2009 09:26:12 GMT Eileen Boussina http://health.groups.yahoo.com/group/atr-x/message/1638 http://health.groups.yahoo.com/group/atr-x/message/1638 Hi Josh, Thanks for the advice. I realize I can control what I do, but what if a friend from the ATR-X group posts on my wall and says something revealing?? Thu, 04 Jun 2009 09:22:55 GMT NOEL STUBBS http://health.groups.yahoo.com/group/atr-x/message/1637 http://health.groups.yahoo.com/group/atr-x/message/1637 Hi Eileen, my name is Josh Stubbs and I'm 16 years old. My brother, Aaron, who lives with me, my mum and my dad, in East Yorkshire, has ATRX and he is now Thu, 04 Jun 2009 09:17:41 GMT aflybabie http://health.groups.yahoo.com/group/atr-x/message/1636 http://health.groups.yahoo.com/group/atr-x/message/1636 I don't have a facebook account and don't know much about it, so may be wrong here, but..... Is it possible to set up another account in your own name, but Thu, 04 Jun 2009 09:06:42 GMT Eileen Boussina http://health.groups.yahoo.com/group/atr-x/message/1635 http://health.groups.yahoo.com/group/atr-x/message/1635 Hi, I have received requests from some of you to add you as my friend on Facebook, and I'd love to. I'm just hesitant because I have many other friends, family Tue, 12 May 2009 22:01:25 GMT Lisa Beck http://health.groups.yahoo.com/group/atr-x/message/1634 http://health.groups.yahoo.com/group/atr-x/message/1634 Melatonin works great on Jasper -- unless the problem that's keeping him awake is greater than the hormonal inducement to sleep. When he's going crazy with Tue, 12 May 2009 21:57:31 GMT Lisa Beck http://health.groups.yahoo.com/group/atr-x/message/1633 http://health.groups.yahoo.com/group/atr-x/message/1633 Maybe Michael is dreaming? I've read that kids start being more aware of their dreams around age 3 or 4 and Christy used to have those night terrors at 4 Tue, 12 May 2009 07:04:46 GMT charliesangeldlg http://health.groups.yahoo.com/group/atr-x/message/1632 http://health.groups.yahoo.com/group/atr-x/message/1632 It seems that what ever end of the spectrum our children are on the hair pulling, eating, playing with, is something they all do, i am surprised I still have Tue, 12 May 2009 06:10:28 GMT Eileen Boussina http://health.groups.yahoo.com/group/atr-x/message/1631 http://health.groups.yahoo.com/group/atr-x/message/1631 I have always bragged to everyone how great of a sleeper Michael has been. He sleeps throught the night for anywhere from 9-10 hours (and takes 2 or 3 Sat, 02 May 2009 22:56:16 GMT Katherine Nelson http://health.groups.yahoo.com/group/atr-x/message/1630 http://health.groups.yahoo.com/group/atr-x/message/1630 Hi Debbie,   I'm going through the same with Emma. Although Emma very rarely slept through the night. She wakes up, kicks, laughs, moves her arms, stares at Fri, 01 May 2009 12:08:40 GMT jasmine jones http://health.groups.yahoo.com/group/atr-x/message/1629 http://health.groups.yahoo.com/group/atr-x/message/1629 Dakota never used to sleep through the night.  I think it's something he mostly grew out of.  But now, at almost 19, sometimes he still wakes up to play, Fri, 01 May 2009 09:34:14 GMT yvonne smith http://health.groups.yahoo.com/group/atr-x/message/1628 http://health.groups.yahoo.com/group/atr-x/message/1628 Hi Debbie,   Jack was on Melatonin a few years ago and it seemed to regulate his sleep patterns. I think when they keep waking they set a time clock off in