http://groups.yahoo.com/group/avenues2/ Avenues2 Thu, 01 May 2008 22:14:12 GMT Lala http://groups.yahoo.com/group/avenues2/message/2742 http://groups.yahoo.com/group/avenues2/message/2742 With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis Sat, 26 Apr 2008 03:59:24 GMT Jaime http://groups.yahoo.com/group/avenues2/message/2741 http://groups.yahoo.com/group/avenues2/message/2741 Dylan is 9-years now and had his hip surgery (bilateral hip extension osteotomies) done by Dr. Jay at DuPont in Delaware. We moved to NJ from Illinois to be Sat, 26 Apr 2008 03:52:25 GMT beki@... http://groups.yahoo.com/group/avenues2/message/2740 http://groups.yahoo.com/group/avenues2/message/2740 We see Dr Song for my son's surgeries. My son has dual VEPTR implants along his spine. I know there are a few folks here who have had their children's hips Sat, 26 Apr 2008 03:38:46 GMT simcoet http://groups.yahoo.com/group/avenues2/message/2739 http://groups.yahoo.com/group/avenues2/message/2739 Hello everyone, I hope you all are doing well and that spring has come to your neck of the woods, wherever that may be. I'm writing in search of some Sat, 26 Apr 2008 02:24:23 GMT tjohns7147 http://groups.yahoo.com/group/avenues2/message/2738 http://groups.yahoo.com/group/avenues2/message/2738 I haven't been on in quite sometime and have missed this group alot. My son TJ has AMC in his legs and arms. He is now 8 years old and I wonder where that time Wed, 09 Apr 2008 20:43:35 GMT Gail Brookhart http://groups.yahoo.com/group/avenues2/message/2737 http://groups.yahoo.com/group/avenues2/message/2737 We probably talked to the same hand surgeon that Lori did since our kids both go to the same Shriners hospital. Background, Alec has almost zero grip and Wed, 09 Apr 2008 01:59:46 GMT Lori Hays http://groups.yahoo.com/group/avenues2/message/2736 http://groups.yahoo.com/group/avenues2/message/2736 It IS hard to tell what is the very best for our children sometimes! Perhaps you could get a second opinion and see if that helps your decision. I don¹t know Wed, 09 Apr 2008 00:12:16 GMT Pam Smith http://groups.yahoo.com/group/avenues2/message/2735 http://groups.yahoo.com/group/avenues2/message/2735 Our son is 3 and he has good grip with both hands, but the doctor is hopeful that he will gain even more function. Our biggest fear is loosing some of the Wed, 09 Apr 2008 00:02:29 GMT Lori Hays http://groups.yahoo.com/group/avenues2/message/2734 http://groups.yahoo.com/group/avenues2/message/2734 Hi Pam, Our 8 year old son has had surgery on one wrist, and surgery on the other wrist is scheduled for May. We have been very pleased with the outcome of the Tue, 08 Apr 2008 23:11:40 GMT pamipoo128 http://groups.yahoo.com/group/avenues2/message/2733 http://groups.yahoo.com/group/avenues2/message/2733 We took our three year old son to see a hand specialist this week and he has suggested doing surgery on both of his wrists that are contracted. He can not Thu, 20 Mar 2008 13:30:15 GMT TERRY2745@... http://groups.yahoo.com/group/avenues2/message/2732 http://groups.yahoo.com/group/avenues2/message/2732 just wanted to remind everyone that AMCSI Convention 08 is near!! this years convention, our 3rd annual, will be located in Ohio in July. for more info go to Sun, 24 Feb 2008 17:44:29 GMT Sue DeWeert http://groups.yahoo.com/group/avenues2/message/2731 http://groups.yahoo.com/group/avenues2/message/2731 Wow - this would be great if she didn't have to physically push those knobs. They aren't the easiest things in the world. Thanks for the suggestion - I'll Sat, 23 Feb 2008 23:38:20 GMT Diane Voigt http://groups.yahoo.com/group/avenues2/message/2730 http://groups.yahoo.com/group/avenues2/message/2730 Sue, There are some automatic shampoo dispensers out there somewhere, I've seen them in catalogues. I just don't remember where. If I run across a catalogue Sat, 23 Feb 2008 19:23:02 GMT HGPinTexas@... http://groups.yahoo.com/group/avenues2/message/2729 http://groups.yahoo.com/group/avenues2/message/2729 I am not sure if this will help, but my daughter's main struggle was getting shampoo out of the bottle, so we got a dispenser from target. Has 3 slots -- Sat, 23 Feb 2008 19:20:02 GMT suedeweert http://groups.yahoo.com/group/avenues2/message/2728 http://groups.yahoo.com/group/avenues2/message/2728 Hi there - Any ideas for a 12 year-old girl in the hairwashing area? We need some suggestions for independence in this area. She has AMC in upper extremities