http://health.groups.yahoo.com/group/butterflychildren/ Butterfly Children - Raising Awareness of Epidermolysis Bullosa (EB) Wed, 21 Oct 2009 23:47:44 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3818 http://health.groups.yahoo.com/group/butterflychildren/message/3818 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Heather Raine Thursday October 22, 2009 12:00 Sat, 12 Sep 2009 23:48:20 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3817 http://health.groups.yahoo.com/group/butterflychildren/message/3817 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Neal's birthday! Sunday September 13, 2009 All Day (This Sat, 12 Sep 2009 23:47:40 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3816 http://health.groups.yahoo.com/group/butterflychildren/message/3816 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Sunday September 13, 2009 All Day (This Sun, 30 Aug 2009 23:50:42 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3815 http://health.groups.yahoo.com/group/butterflychildren/message/3815 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Monday August 31, 2009 All Day (This Wed, 26 Aug 2009 23:48:25 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3814 http://health.groups.yahoo.com/group/butterflychildren/message/3814 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Kallista Birthday Thursday August 27, 2009 All Day (This Sun, 05 Jul 2009 11:44:35 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3813 http://health.groups.yahoo.com/group/butterflychildren/message/3813 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Sunday July 5, 2009 12:00 pm - 1:00 pm Mon, 25 May 2009 16:39:19 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3812 http://health.groups.yahoo.com/group/butterflychildren/message/3812 For your information... please note the attached article from Italy, about quality of life for EB patients.   Best regards, Gena Brumitt Gruschovnik E.D., Mon, 25 May 2009 00:03:54 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3811 http://health.groups.yahoo.com/group/butterflychildren/message/3811 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Anne~Marie Tuesday May 26, 2009 All Day (This Thu, 21 May 2009 16:56:53 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3810 http://health.groups.yahoo.com/group/butterflychildren/message/3810 For your information... sharing a press release from NORD about their new program to develop effective treatments for rare diseases.   Best regards, Gena Thu, 21 May 2009 14:54:10 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3809 http://health.groups.yahoo.com/group/butterflychildren/message/3809 Dear all -  Please see the following new EB article, featuring our lovely friend, Novelette Munroe.  http://www.thestar.com/living/article/636886   Also Mon, 18 May 2009 23:06:11 GMT otm@... http://health.groups.yahoo.com/group/butterflychildren/message/3808 http://health.groups.yahoo.com/group/butterflychildren/message/3808 Dear all -   I am incredibly saddened to share with you the message I received from Maureen Peshkur last night - their granddaughter, Grace, passed away.  Thu, 07 May 2009 20:33:06 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3807 http://health.groups.yahoo.com/group/butterflychildren/message/3807 Hi, everyone - please have a look at this: http://www.tomorrowthinkofme.roundtablelive.org/  This site will transfer soon to www.tomorrowthinkofme.org, it is Fri, 24 Apr 2009 13:16:37 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3806 http://health.groups.yahoo.com/group/butterflychildren/message/3806 Hi, just forwarding this, in the event someone wants to take advantage of this Crocs sale. Hope the information is viewable on yahoogroups.   Gena From: Crocs Mon, 20 Apr 2009 23:02:18 GMT Gena http://health.groups.yahoo.com/group/butterflychildren/message/3805 http://health.groups.yahoo.com/group/butterflychildren/message/3805 Greetings!   I am happy to share some "official" good news with you.  Please feel free to pass it along to our other EB forums where I am not a member.  Sat, 28 Mar 2009 00:01:23 GMT http://health.groups.yahoo.com/group/butterflychildren/message/3804 http://health.groups.yahoo.com/group/butterflychildren/message/3804 Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Brogan Saturday March 28, 2009 12:00 am - 1:00