carotiddissection at Yahoo! Groups

Re: Mystery Diagnosis

framnjamn@... — Wed, 16 Dec 2009 01:00:24 GMT

Interesting...so I guess we are just that 1 in 200,000! Thanks. ... From: Kate Lautzenhiser To: carotiddissection@yahoogroups.com Sent:

Re: Mystery Diagnosis

Kate Lautzenhiser — Tue, 15 Dec 2009 21:11:24 GMT

Fran- FMd has a very distinct appearance on arteriogram or MRA instead of arteries looking like straws they look like old fashioned pop bead necklaces. I

Re: Mystery Diagnosis

framnjamn@... — Tue, 15 Dec 2009 20:41:52 GMT

Interesting. Thanks. My neurologist mentioned FMD early in my hospital stay but then disregarded it in my case the next time I questioned him on it. I just

Re: Mystery Diagnosis

Kate Lautzenhiser — Tue, 15 Dec 2009 18:22:49 GMT

Kristen Usually the only people who do have more than 1 stroke secondary to arterial disections have fibromuscular dysplasia or some other connective tissue

Re: Mystery Diagnosis

Kristen Pusch — Tue, 15 Dec 2009 17:08:14 GMT

I don't know - it was on Discovery Health. The underlying disease that the woman had was called FMD - here is the website:

Re: Mystery Diagnosis

framnjamn@... — Tue, 15 Dec 2009 06:18:59 GMT

No I didn't see the show. Are there any weblinks to it or podcasts? ... From: Kristen Pusch To: carotiddissection@yahoogroups.com Sent:

Mystery Diagnosis

Kristen Pusch — Tue, 15 Dec 2009 04:34:43 GMT

Did you see the show - we're famous! Talked about carotid dissections - this woman blew 1 on the right and one on the left... Kristen

Welcome new UK member

pixalu — Mon, 30 Nov 2009 19:26:06 GMT

I'm Karen, dissection and stroke at 36 shortly after working out. Please share your story/concerns.

Re: Intractable Headaches

Kate Lautzenhiser — Tue, 24 Nov 2009 13:08:08 GMT

You are correct I had a stroke moment when I typed that smoking and caffeine tend to cause vaso constriction not dilation Kate LMadison WI

Re: Intractable Headaches

framnjamn@... — Tue, 24 Nov 2009 00:12:19 GMT

I agree, Dr Khot is the BEST! I think the other great thing about him is that he always spent as much time as we needed him to in answering our questions. At

Re: Intractable Headaches

framnjamn@... — Tue, 24 Nov 2009 00:07:27 GMT

Kate, I am of the understanding that Blood vessel dilation is widening and that vasoconstriction is narrowing. I thought that caffeine dilated peripheral blood

Re: Intractable Headaches

Karen/Pix — Tue, 24 Nov 2009 00:02:49 GMT

I <3 Dr. Koht. He's the best. I have some friends that play soccer with him. He is highly spoken of in the "regular" world as well. I try not to gush about

Re: Intractable Headaches

framnjamn@... — Mon, 23 Nov 2009 23:53:49 GMT

Hi J, I had a very long dissection in 2 places, 99% occluded and my artery was quite torturous. I was extremely blessed not to have had a stroke! However, I

book

Kristen Pusch — Mon, 23 Nov 2009 22:43:54 GMT

I'm going to get that book One Handed in a Two Handed World that you suggested on another website...it would be a good suggestion here! It's by Tommye-Karen

Re: Low Blood Pressure

Kate Lautzenhiser — Mon, 23 Nov 2009 20:17:56 GMT

G- I can't really advise you on caffeine because the whole issue of blood chemistry(electrolytes) plays a role in how much if any is safe. Coumadin has a