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newafpkilly — Wed, 30 Dec 2009 01:29:07 GMT

Message Alert - You Have 1 Important Unread Message! http://damarisjx.zoomshare.com/files/sexygirl.htm

Re: Neutropenia

Denise Blake — Mon, 16 Nov 2009 14:01:01 GMT

... From: kimnhill Subject: [CMV and CP Parent Link] Neutropenia To: cmvandcpparentlink@yahoogroups.com Date: Sunday, November 15,

Neutropenia

kimnhill — Sun, 15 Nov 2009 22:22:03 GMT

Kaitlyn recently developed neutropenia due to valganciclovir. She is receiving neupogen injections 3x per week and is on a reduced dosage of the anti-viral.

Re: CMV brain damage

long.laurie — Thu, 29 Oct 2009 12:54:19 GMT

another aspect to consider is the fact that CMV also is a concern for AIDS/HIV patients, I think? I recall reading about that before. So maybe there is already

Re: CMV brain damage

thatsuzygirl — Thu, 29 Oct 2009 00:53:44 GMT

I was wondering last night if anyone has petitioned the Bill and Melinda Gates Foundation for CMV research money. They are very committed to finding vaccines.

Re: CMV brain damage

Kristina White — Tue, 27 Oct 2009 19:23:07 GMT

I read a report a while back that they do have a vaccine in the works for CMV. I think it went through some clinical tests already. I just did a google

Re: CMV brain damage

Timothy Van Meter — Tue, 27 Oct 2009 17:35:27 GMT

I think it would!! It's sad, but MONEY TALKS!! Michelle Van Meter ... From: christina hembree Subject: Re: [CMV and CP Parent

Re: CMV brain damage

christina hembree — Tue, 27 Oct 2009 16:48:12 GMT

Ok, so why don't we talk money. That's the only language they seem to understand. When petitioning the insurance company to continue to pay for therapy

Re: CMV brain damage

Timothy Van Meter — Mon, 26 Oct 2009 18:59:19 GMT

You can count me in - I'm just not sure the route that we need to take to get the chance to speak before Congress; I think that's where funding comes

Re: CMV brain damage

Celeste — Mon, 26 Oct 2009 11:17:27 GMT

Julie, If lobbying Congress is what it takes to prompt the CDC to find a vaccine for CMV then I say we should do it! I don't post on here very often but I feel

Re: CMV brain damage

Julie Cauich — Mon, 26 Oct 2009 04:19:48 GMT

Regarding CMV vaccine, from what I have heard, it is all politics, which determines where the money gets allocated. The CDC is pretty much responsible for

Re: drug therapy question

kimnhill — Mon, 26 Oct 2009 02:33:50 GMT

Rachel, You always seem to find very informative articles. Where do you find them? Thanks for sharing all the information you come across! Kim

Re: drug therapy question

basenjimommy — Mon, 26 Oct 2009 01:50:09 GMT

Debra, Here's a link to the abstract of the article I was referring to. http://www.ncbi.nlm.nih.gov/pubmed/18588736. Not exacty as beneficial as I remembered.

Re: CMV brain damage

christina hembree — Sun, 25 Oct 2009 20:51:27 GMT

In regards to Rachael's brain damage, she was born with the classic cmv brain damage, ie.calcifications and underdeveloped brain matter. I asked if cmv

Re: new member /gancyclovir

abby ricardi — Sun, 25 Oct 2009 15:45:00 GMT

Karen, I have now corrisponded with about 200 parents of kids born with congenital CMV, and I can tell you that there is definately a number (especially those