cysticfibrosisdiscussion at Yahoo!7 Groups

hiya guys

aussiebilllabong — Tue, 01 Nov 2005 07:39:59 GMT

Hi guys, Long time no emails. lol. I was wondering if any of you's have gone camping with CF. And also how yous handled any cf complications? Thanks kat

Re: marfans

aussiebillabong — Fri, 26 Aug 2005 23:29:51 GMT

Dont be so sure. Marfans is heredity like marfans...BUT not in all cases. I am classed as being medical unique 2 diseases affecting one lung. But in my case

Re: Daughter

aussiebillabong — Fri, 26 Aug 2005 23:26:36 GMT

Hiya Clare Tiring aspect isnt the word for it, some days shes bouncing off the walls. lol. She has an attention span of 10 mins. 15 if i am lucky. Though she

Re: my sleep clinic appointment

aussiebillabong — Fri, 26 Aug 2005 22:56:12 GMT

The roof of your mouth is surposed to be higher than anyones else inner mouth(High arched plate). Funny how americans how big mouths/gums/teeth, as there main

Re: marfans

Kylie Taylor — Thu, 25 Aug 2005 13:23:58 GMT

im 22. of course my family doesnt have it lol. i think we just have funny features that were passed down, thats all. so the doc wont need to get an ego. not

Daughter

Clare Stace — Thu, 25 Aug 2005 11:51:09 GMT

Hi Kat, Your daughter must be a blessing and a ... tireing aspect of your life. I am so sorry that she is sick with several conditions. I have encountered

marfans

Clare Stace — Thu, 25 Aug 2005 11:38:31 GMT

Kylie - Great little anicdote lol How old are you ? now if you do have Marfans and nobody has picked it up yet (and it sounds like you whole family must have

Re: my sleep clinic appointment

Kylie Taylor — Thu, 25 Aug 2005 05:25:29 GMT

"most of the tall people i have met all have marfans" eeep! he actually checked my mouth and said something about a high arched palate? i really dont know what

Re: my sleep clinic appointment

aussiebillabong — Thu, 25 Aug 2005 04:45:34 GMT

I didnt know you were having problems sleeping. Dont be surprised if the Dr gets you to see a numberous amount of Doctor's who specialises in Marfans, and also

Re: my sleep clinic appointment

Clare Stace — Wed, 24 Aug 2005 09:56:41 GMT

hope it goes well... answers found that sort of thing Clare kitakins83 wrote: saw the sleep clinic today. i have a study done on

my sleep clinic appointment

kitakins83 — Wed, 24 Aug 2005 07:53:03 GMT

saw the sleep clinic today. i have a study done on sunday [how quick was that?]. this will interest you kat. the doctor kept asking me about marfans syndrome!

Re: How to tell strangers

aussiebillabong — Thu, 11 Aug 2005 07:08:35 GMT

I also find that at times, that CF is a conversation killer, then they apologise constantly. LOL @ feed me grapes. I like that one! That comment wouldve gotten

Re: How to tell strangers

Clare Stace — Tue, 09 Aug 2005 10:54:26 GMT

I love the "CAGE THAT BEAST" I can just imagine you doing that! lol I actually think the lady was quite creative with her comment - rude, but creative. Great

Re: How to tell strangers

Kylie Taylor — Tue, 09 Aug 2005 09:13:41 GMT

if people want to know, or they make a wrong assumption about me i just come right out and say i have cf. usually its a conversation killer but it doesnt

How to tell strangers

Clare Stace — Tue, 09 Aug 2005 07:13:43 GMT

Hi there, probably each person has their own technique of telling strangers why the cough. I like people to continue to feel comfy with me so before I have