http://health.groups.yahoo.com/group/cysticfibrosissupport/ Cystic Fibrosis Support - A Cystic Fibrosis support group Fri, 22 Jan 2010 07:55:31 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1701 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1701 Hi I'm a CF adult and a genetic counselor. I am giving a lecture to a group of graduate students on "Disability and Prenatal Diagnosis." This will focus on the Tue, 29 Dec 2009 00:04:20 GMT fightcf http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1700 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1700 Just a quick note CF HOTLINE will be open during thanksgiving . The number is 612-282-1211 its open 24 hrs a day 7 days a week talk with you all soon David Tue, 29 Dec 2009 00:04:04 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1699 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1699 Dear Friends, I would like to ask you to consider signing a petition for the Japanese government to ease its restrictions on importing life sustaining cystic Wed, 04 Nov 2009 01:18:58 GMT flutterby_akr http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1698 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1698 Hi All I still really need people to complete my survey, so if you could help I'd really appreciate it. Thanks Alyssa "Creatively Coping with Cystic Fibrosis" Wed, 04 Nov 2009 01:18:08 GMT fightcf http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1697 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1697 Good morning everyone .. How are you all doing? Hey I have a big favor to ask I need to get more people to sign the petition for Davids law today so that Mon, 27 Jul 2009 12:41:15 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1696 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1696 Please check out this video. http://www.vimeo.com/5649691 A CF surf camp is put on by the Mauli Ola Foundation, sponsored by Ambry Genetics. They recognize the Wed, 22 Jul 2009 00:13:13 GMT flutterby_akr http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1695 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1695 My brother and I have CF. Due to this, I am researching how people cope with CF as part of a Psychology Honours degree, and would like to request people Wed, 22 Jul 2009 00:13:13 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1694 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1694 I would like to inquire about DME (durable medical equipment)coverage for specialty nebulizers such as eFlow. Is the eFlow covered automatically when the Tue, 30 Jun 2009 05:58:58 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1693 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1693 CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT The Great Outdoors: A Breath of Fresh Air! Need support in dealing with the challenges of CF? Looking for some Tue, 30 Jun 2009 05:58:55 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1692 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1692 Dear CF Families and Friends, I am sending this to you in case you or someone you know may be interested. The Department of Disability and Human Development at Fri, 05 Jun 2009 12:40:02 GMT Sue Pettit http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1691 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1691 Hey Everyone!!! As most of you know, Valerie has played on the junior varsity & later the varsity fast and slow pitch softball teams since 7th grade, she Thu, 04 Jun 2009 02:48:53 GMT Reva Lane http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1690 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1690 My daughter, too, has had problems with some of her teachers.  And I'm a teacher myself!  I finally had to get my daughter an Individualized Health Plan.  Wed, 03 Jun 2009 18:39:01 GMT missgoobergirl http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1689 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1689 ... Hi I have some horror stories. It it is so unfair but remember those days well. Sometimes I have to honestly say it was the teachers who were the wrost Tue, 02 Jun 2009 00:09:28 GMT megmucus http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1688 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1688 " 65_RedRoses is a Canadian documentary that takes an unflinching look into the life of Eva Markvoort as she battles a fatal genetic disease called Cystic Tue, 02 Jun 2009 00:09:08 GMT revalane http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1687 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1687 My 16 year old daughter has cheered on her school's varsity cheer team for 2 years. She absolutely loves cheerleading and is her motivation to get up for