http://health.groups.yahoo.com/group/cysticfibrosissupport/ Cystic Fibrosis Support - A Cystic Fibrosis support group Wed, 04 Nov 2009 01:18:58 GMT flutterby_akr http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1698 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1698 Hi All I still really need people to complete my survey, so if you could help I'd really appreciate it. Thanks Alyssa "Creatively Coping with Cystic Fibrosis" Wed, 04 Nov 2009 01:18:08 GMT fightcf http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1697 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1697 Good morning everyone .. How are you all doing? Hey I have a big favor to ask I need to get more people to sign the petition for Davids law today so that Mon, 27 Jul 2009 12:41:15 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1696 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1696 Please check out this video. http://www.vimeo.com/5649691 A CF surf camp is put on by the Mauli Ola Foundation, sponsored by Ambry Genetics. They recognize the Wed, 22 Jul 2009 00:13:13 GMT flutterby_akr http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1695 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1695 My brother and I have CF. Due to this, I am researching how people cope with CF as part of a Psychology Honours degree, and would like to request people Wed, 22 Jul 2009 00:13:13 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1694 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1694 I would like to inquire about DME (durable medical equipment)coverage for specialty nebulizers such as eFlow. Is the eFlow covered automatically when the Tue, 30 Jun 2009 05:58:58 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1693 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1693 CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT The Great Outdoors: A Breath of Fresh Air! Need support in dealing with the challenges of CF? Looking for some Tue, 30 Jun 2009 05:58:55 GMT anana1872 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1692 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1692 Dear CF Families and Friends, I am sending this to you in case you or someone you know may be interested. The Department of Disability and Human Development at Fri, 05 Jun 2009 12:40:02 GMT Sue Pettit http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1691 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1691 Hey Everyone!!! As most of you know, Valerie has played on the junior varsity & later the varsity fast and slow pitch softball teams since 7th grade, she Thu, 04 Jun 2009 02:48:53 GMT Reva Lane http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1690 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1690 My daughter, too, has had problems with some of her teachers.  And I'm a teacher myself!  I finally had to get my daughter an Individualized Health Plan.  Wed, 03 Jun 2009 18:39:01 GMT missgoobergirl http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1689 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1689 ... Hi I have some horror stories. It it is so unfair but remember those days well. Sometimes I have to honestly say it was the teachers who were the wrost Tue, 02 Jun 2009 00:09:28 GMT megmucus http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1688 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1688 " 65_RedRoses is a Canadian documentary that takes an unflinching look into the life of Eva Markvoort as she battles a fatal genetic disease called Cystic Tue, 02 Jun 2009 00:09:08 GMT revalane http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1687 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1687 My 16 year old daughter has cheered on her school's varsity cheer team for 2 years. She absolutely loves cheerleading and is her motivation to get up for Tue, 02 Jun 2009 00:08:31 GMT drmccolley http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1686 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1686 Are you interested in finding out more about best practices for CF care in children? My name is Dr. Susanna McColley, and I'm Head of Pulmonary Medicine and Tue, 31 Mar 2009 13:11:09 GMT missgoobergirl http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1685 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1685 Hey Everyone..PLEASE READ ! ! ! Growing up I never knew there CF Camps. I wish I did. Everyone talks about how much fun it was. My husband and I, he also has Mon, 30 Mar 2009 13:18:28 GMT Belinda Shale http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1684 http://health.groups.yahoo.com/group/cysticfibrosissupport/message/1684 Dear All Please find the results of our CF Research Blog http://www.thepatientsvoice.org/Cystic_Fibrosis/ Feel very free to add any comments you may think will