dermatomyositissupport at Yahoo! Groups

Re: Informal Poll

Jenny — Sat, 04 Jul 2009 19:09:21 GMT

And I forgot to add that I am in remission & have been medication free for 4 months now!!! Jenny Sent from my iPhone On Jul 4, 2009, at 1:52 PM, Loretta

Re: Informal Poll

Jenny — Sat, 04 Jul 2009 19:08:28 GMT

I had IVIG in 2007, it helped for a few months, more with the rash than the muscle weakness. I then went to The Myositis Center in Baltimore & Dr. Suggested

Re: Informal Poll

Loretta Patterson — Sat, 04 Jul 2009 18:52:32 GMT

I had never been sick before DM. I've had a number of IVIG infusions and they seemed to help early on with the disease but now I feel worse afterwards and

Re: Hello

Bettye — Sat, 04 Jul 2009 16:18:25 GMT

Thank you for monitoring this. We seem to have alot more of these kind of postings lately. I appreciate your staying on top of things. Those of with DM

Re: Hello

Jessie Merryman — Sat, 04 Jul 2009 14:14:09 GMT

That sounds like how mine started out. I had the patches all over my skin for about a year (doctors kept telling me it was eczema), then the bumps started

Re: Informal Poll

Jessie Merryman — Sat, 04 Jul 2009 14:11:56 GMT

That reminds me, around the same time as my "feels-like-pneumonia-but-isn't," I had what looked and felt like strep throat, but it wasn't... ~Jessie ... From:

Re: Informal Poll

Jessie Merryman — Sat, 04 Jul 2009 14:09:04 GMT

That's interesting, because I had pneumonia about 4 or 5 years before I was diagnosed. And right before my worst flare that led to my diagnosis, I got sick and

Re: Informal Poll

Tracy R. Kane — Fri, 03 Jul 2009 22:23:06 GMT

All, I don't think I had ever had any pneumonia or anything weird before my JDM hit. In fat the only childhood disease I had had was mumps. cheers, Tracy

Re: Paula IVIG

Carla Rutz — Fri, 03 Jul 2009 19:41:57 GMT

Try this web site - it's industry sponsored but it's great information. They also provide great support. www.igliving.com Carla carlarutz@... ... From:

Re: Paula IVIG

spunkiemom@... — Fri, 03 Jul 2009 19:35:44 GMT

Paula, Thanks for the IVIG info. How long does it take for your transfusions?Janet ... From: Paula To:

Re: Informal Poll

Eva Holloway — Fri, 03 Jul 2009 15:54:42 GMT

I had pneumonia several times as a child and adult, I also had strep throat many times plus bronchits. Eva ... From: lore257 Subject:

Re: Hello

spunkiemom@... — Fri, 03 Jul 2009 15:45:13 GMT

Hi LaRae, There are different rashes. I have had them on my face and could literally watch them go up my face. I have ones on my eye lids which I call "clown

Hello

larae527 — Fri, 03 Jul 2009 14:56:14 GMT

My 9 yo daughter was newly diagnosed with the skin only dermatomyositis, she has had the skin symptoms for 5 yrs with no muscle symptoms and blood work came

Informal pneumonia Poll and IVIG

Paula — Fri, 03 Jul 2009 14:45:15 GMT

I just wanted to clarify something. Mycoplasma causes walking pneumonia, not regular pneumonia. They are totally different illnesses. In my case, several of

Re: Informal Poll

Donna — Fri, 03 Jul 2009 12:21:31 GMT

I had never been sick - maybe one cold a year (at most) - never been on any medication. This just hit out of the blue. Donna From: