http://health.groups.yahoo.com/group/dermatomyositissupport/ Dermatomyositis Support - Anyone who has/ knows anyone with Dermatomyositis Wed, 11 Nov 2009 05:52:16 GMT Sharon Ensko http://health.groups.yahoo.com/group/dermatomyositissupport/message/7573 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7573 Hi Eliza- know about how much this invasive and how much tissue they take- as you said a nice chunk. Painful and a scar that is not minimal. Saw a friend go Wed, 11 Nov 2009 05:37:50 GMT Eliza Crockett http://health.groups.yahoo.com/group/dermatomyositissupport/message/7572 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7572 My experience was that it didn't help with the diagnosis at all. It was inconclusive. For me it seemed like a big waste of money, a painful recovery, and a Wed, 11 Nov 2009 04:56:15 GMT Charlotte http://health.groups.yahoo.com/group/dermatomyositissupport/message/7571 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7571 A muscle biopsy may be deemed necessary as they were not certain in my daughter's case that they had the correct diagnosis at least not until the biopsy Wed, 11 Nov 2009 04:28:55 GMT ajnano http://health.groups.yahoo.com/group/dermatomyositissupport/message/7570 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7570 I have DM. I'm already into my 4th week of Prednisone 60mg. My first Rhematologist did not push for a muscle Bx right away because my muscle strenth and Wed, 11 Nov 2009 04:23:27 GMT ajnano http://health.groups.yahoo.com/group/dermatomyositissupport/message/7569 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7569 I was recently DX'd with DM. Can anyone explain the constant production of throat mucus and oral saliva? I constantly have to spit it up. Is it because my Sun, 08 Nov 2009 21:24:41 GMT Bob & Carol Zarn http://health.groups.yahoo.com/group/dermatomyositissupport/message/7568 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7568 Diana, I had all of those symptoms in the beginning but the Antibiotic Therapy/Protocol relieved me of them all. I have been in remission/control of the DM as Sun, 08 Nov 2009 18:31:59 GMT rlantne http://health.groups.yahoo.com/group/dermatomyositissupport/message/7567 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7567 Diana, The fatigue, upper body weakness and trouble swallowing are certainly all part of a DM flare. As you are probably noticing in a lot of the posts, the Sun, 08 Nov 2009 17:24:07 GMT Lisa A http://health.groups.yahoo.com/group/dermatomyositissupport/message/7566 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7566 Hi Diana, I also have the same symptoms, my cpk rates are still on the higher side, they are going down slowly, I do still have upper weakness, (shoulder Sun, 08 Nov 2009 03:58:44 GMT Patricia Sharp http://health.groups.yahoo.com/group/dermatomyositissupport/message/7565 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7565 Hi Renee Iseem to have the same nodules that you are speeking of.  I did have them in my upper inner  arms but thoese are gone.  After that I would get Sun, 08 Nov 2009 03:16:47 GMT rlantne http://health.groups.yahoo.com/group/dermatomyositissupport/message/7564 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7564 Not that it matters, but I realized I wrote that I would get the nodules over the deltoid and meant the upper pecs (in case anyone was paying attention!). Sat, 07 Nov 2009 17:32:23 GMT Tom http://health.groups.yahoo.com/group/dermatomyositissupport/message/7563 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7563 yea that sounds like me. I got DM at age 7, im 51 now. yea long time. I still get weak at times and I still have trouble swollowing at times. Do you grow Sat, 07 Nov 2009 17:06:38 GMT d_girl46 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7562 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7562 Has anyone ever felt very tired, have upper body weakness, food getting stuck, a scratchy throat and hot inner lips of the mouth? My sed rate was 40 and went Sat, 07 Nov 2009 12:20:06 GMT Claire Kane http://health.groups.yahoo.com/group/dermatomyositissupport/message/7561 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7561 Hi Laurie, Yes, I too have normal sed rates, etc. despite a continual array of surprising (for someone with a diagnosis of dm sine myositis) symptoms. Keep us Fri, 06 Nov 2009 15:45:36 GMT rlantne http://health.groups.yahoo.com/group/dermatomyositissupport/message/7560 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7560 Thanks Claire and Laurie. My major concern is that I get so many of them and all at once. The freakiest part was when I had many in the deltoid region since Thu, 05 Nov 2009 11:57:14 GMT Laurie http://health.groups.yahoo.com/group/dermatomyositissupport/message/7559 http://health.groups.yahoo.com/group/dermatomyositissupport/message/7559 I have one on my arm, Renee.  I forget who had mentioned this before, maybe a year ago.  She found out it's like a fatty "tumor" and was going to have one