dmdpioneers at Yahoo! Groups

Re: Heart involvement debut

hhjgreene@... — Fri, 20 Nov 2009 05:32:05 GMT

Mattias, Hi, it is Holly, Eric's mom, is is 25 now...I have to keep reminding myself how old he is? The doctors are treating Eric's left fentruical..I

dr. Riordan's article is now at PubMed & Cellular Immunology

Estevão Augusto — Wed, 18 Nov 2009 20:29:27 GMT

http://www.ncbi.nlm.nih.gov/pubmed/19917503?dopt=Abstract Mesenchymal stem cells as anti-inflammatories: Implications for treatment of Duchenne muscular

Re: Heart involvement debut

Gapko, Andrea M. — Wed, 18 Nov 2009 18:35:01 GMT

My son has had heart involvement since at least age 18, probably 4-5 years longer than that. He had an ICD (Implantable Cardio Defibrillator, which includes

Re: Heart involvement debut

Estevão Augusto — Wed, 18 Nov 2009 15:56:08 GMT

i've got the pacemaker last year. i'm 31. 2009/11/17 Lee ... -- Estevão Augusto http://filmescopio.blogspot.com/

Re: Heart involvement debut

Lee — Wed, 18 Nov 2009 01:42:35 GMT

I wasn't diagnosed with CHF until age 37 (2005) when I suddenly developed 2nd degree heart block and had to get a pacemaker less than 2 weeks later.

Re: Heart involvement debut

Tyler Smith — Wed, 18 Nov 2009 01:24:52 GMT

I guess I'm in the minority here. I've had congestive heart failure (dilated cardiomyopathy) since 2002 when I was 17 and have been on pretty intensive

Re: Heart involvement debut

jhinek@... — Tue, 17 Nov 2009 23:33:14 GMT

I'm currently 33 years old, and take medication for hypertension, but that's about it so far. Good luck hope everything works out. Jonathan On Tue, Nov 17,

Re: Scopolamine Transdermal Patch

Estevão Augusto — Tue, 17 Nov 2009 23:28:17 GMT

i used it in the form of gel. The results were so so. 2009/11/17 Stephen King ... -- Estevão Augusto http://filmescopio.blogspot.com/

Re: Scopolamine Transdermal Patch

Stephen King — Tue, 17 Nov 2009 23:21:14 GMT

It's for motion sickness; but the main side effect is dry mouth. So I am assuming that is the reason he suggested it Steve K From: Chris W Sent: Tuesday,

Scopolamine Transdermal Patch

Chris W — Tue, 17 Nov 2009 23:15:52 GMT

Hi everyone, For about the past 3-4 months I have had several occasions where I was unable to speak. The solution has been to bend my trach tube up toward my

Re: Heart involvement debut

Adele — Tue, 17 Nov 2009 23:01:38 GMT

Gee, at the age of 36, they should have at least offered you some of the heart meds. Jason is 24 and has no cardiac problems and he's been on losortan since

Re: Heart involvement debut

Mattias Agnesund — Tue, 17 Nov 2009 22:38:34 GMT

No meds so far, but will start now. I was not told of other changes, but did not ask either. 2009/11/17 Adele ... [Non-text portions of

Re: Heart involvement debut

Adele — Tue, 17 Nov 2009 22:19:21 GMT

Are u on any of the heart meds? Asides from the EF dropping, were they any other changes? Adele _____ From: dmdpioneers@yahoogroups.com

Heart involvement debut

Mattias Agnesund — Tue, 17 Nov 2009 21:26:19 GMT

I have never had any heart problems related to dmd, and I kind of thought I was not going to have any. Had my heart checked Monday, and it turns out the

Re: Digest Number 2865

Jessica Resnick-Ault — Tue, 17 Nov 2009 12:13:20 GMT

Tyler- We always self-select aides for Pete. I would see what programs are available for your state-- New Jersey, where we live, does have a program that