http://health.groups.yahoo.com/group/dmdpioneers/ DMD Pioneers Mailing List Wed, 10 Feb 2010 16:06:56 GMT Arthur Congdon http://health.groups.yahoo.com/group/dmdpioneers/message/23918 http://health.groups.yahoo.com/group/dmdpioneers/message/23918 Hi! Here are a few other ideas: Reusing suction catheters: I use the kind in the long sleeves, but I rinse them after every use. Fill a quart container with Tue, 09 Feb 2010 18:42:58 GMT Michael Keen http://health.groups.yahoo.com/group/dmdpioneers/message/23917 http://health.groups.yahoo.com/group/dmdpioneers/message/23917 Matt, I feel for you in this situation brother and I believe your father is abusive and neglectful. So, here what you have to do someway, somehow get away Tue, 09 Feb 2010 16:24:22 GMT Gapko, Andrea M. http://health.groups.yahoo.com/group/dmdpioneers/message/23916 http://health.groups.yahoo.com/group/dmdpioneers/message/23916 Nick, I think you have things backwards here. You can't move out and then try to arrange daily care. You need to have a place and attendant care set up Tue, 09 Feb 2010 14:30:47 GMT Nick Dupree http://health.groups.yahoo.com/group/dmdpioneers/message/23915 http://health.groups.yahoo.com/group/dmdpioneers/message/23915 I would leave the house and move into your own place, then set up daily attendant care ASAP. I managed to make it happen, moved 1214 miles to be with my Tue, 09 Feb 2010 14:06:15 GMT Adele http://health.groups.yahoo.com/group/dmdpioneers/message/23914 http://health.groups.yahoo.com/group/dmdpioneers/message/23914 Matt, I would say that it isn't quit abuse but more like neglect, both and just as bad. If your parents will not allow help to come into the house for you Tue, 09 Feb 2010 13:40:40 GMT Matthew Martin http://health.groups.yahoo.com/group/dmdpioneers/message/23913 http://health.groups.yahoo.com/group/dmdpioneers/message/23913 My situation is disheartening, for those who know or don't know how my parents are. I am trying to determine what is considered abuse to those with Sun, 31 Jan 2010 14:43:32 GMT Jessica Resnick-Ault http://health.groups.yahoo.com/group/dmdpioneers/message/23912 http://health.groups.yahoo.com/group/dmdpioneers/message/23912 Kyle: to search ILCs by county: http://www.rehab.cahwnet.gov/ils/ilclist.htm state plan for independent living: http://www.calsilc.org/ -- Sat, 30 Jan 2010 19:07:01 GMT Capt. Ichibum http://health.groups.yahoo.com/group/dmdpioneers/message/23911 http://health.groups.yahoo.com/group/dmdpioneers/message/23911 Kyle, what part of California do you live in? There should be an Independent Living Center near you that can help you get started. Also, are you familiar with Sat, 30 Jan 2010 02:00:10 GMT Kyle http://health.groups.yahoo.com/group/dmdpioneers/message/23910 http://health.groups.yahoo.com/group/dmdpioneers/message/23910 Hey Everyone, this is Kyle age 23 and I'm living with MD in California. Lately I've been looking into living independently and I, like all who have tried Fri, 29 Jan 2010 23:13:56 GMT Mark Boatman http://health.groups.yahoo.com/group/dmdpioneers/message/23909 http://health.groups.yahoo.com/group/dmdpioneers/message/23909 Matt, I'm on Coreg and have only had dizziness...Mark Mark J. Boatman Student - University of Montana blog @ nodakwheeler.blogspot.com follow me on twitter @ Fri, 29 Jan 2010 17:47:23 GMT Matthew Martin http://health.groups.yahoo.com/group/dmdpioneers/message/23908 http://health.groups.yahoo.com/group/dmdpioneers/message/23908 my doctor prescribed a beta blocker for me. for those who take one what is the name of the drug you take and what side effects, if any, have u had? Thanks, Thu, 28 Jan 2010 04:13:45 GMT Kyle Curtin http://health.groups.yahoo.com/group/dmdpioneers/message/23907 http://health.groups.yahoo.com/group/dmdpioneers/message/23907 Hey Kim, this sounds like an interesting proposition. I believe that openly talking about our sexuality is a valuable part of the human experience. I actually Tue, 26 Jan 2010 23:11:57 GMT Ksmile96@... http://health.groups.yahoo.com/group/dmdpioneers/message/23906 http://health.groups.yahoo.com/group/dmdpioneers/message/23906 Received this from my other group. I think there are many in this group who have a story to tell. Kimi ____________________________________ From: Sat, 23 Jan 2010 23:22:51 GMT Rebecca http://health.groups.yahoo.com/group/dmdpioneers/message/23905 http://health.groups.yahoo.com/group/dmdpioneers/message/23905 For the dirty tubing, we rinse with hot water and let it soak overnight in vinegar water. Then rinse again and let air dry. Becky Sat, 23 Jan 2010 01:07:46 GMT Ksmile96@... http://health.groups.yahoo.com/group/dmdpioneers/message/23904 http://health.groups.yahoo.com/group/dmdpioneers/message/23904 Oh, and when using the Cough Assist Eric would use cut up paper towels to get the junk out. Just pushed them into the tube and twisted them. I do not have