http://health.groups.yahoo.com/group/duanes/ Duane's Retraction Syndrome Sat, 07 Nov 2009 20:17:19 GMT Dia http://health.groups.yahoo.com/group/duanes/message/13027 http://health.groups.yahoo.com/group/duanes/message/13027 http://www.claudia-chelan.eu/en/ Claudia is 24 years old and a final-year medical student at the University of Medicine and Pharmacy of Craiova, Romania. She Fri, 06 Nov 2009 12:43:16 GMT jane783275 http://health.groups.yahoo.com/group/duanes/message/13026 http://health.groups.yahoo.com/group/duanes/message/13026 hi brian, we too are in the uk, my son alex has duanes and it sounds just the same as your son. we have no experience of moorfields as we live in the north. Thu, 05 Nov 2009 20:29:04 GMT SummerD http://health.groups.yahoo.com/group/duanes/message/13025 http://health.groups.yahoo.com/group/duanes/message/13025 Thank You for all the information Thu, 05 Nov 2009 20:26:00 GMT jbabek@... http://health.groups.yahoo.com/group/duanes/message/13024 http://health.groups.yahoo.com/group/duanes/message/13024 Actually, she should even be able to play pro sports if she is blessed with the talent. I'm 35 year old with duanes and the only limitation that I've noticed Thu, 05 Nov 2009 19:57:09 GMT SummerD http://health.groups.yahoo.com/group/duanes/message/13023 http://health.groups.yahoo.com/group/duanes/message/13023 I am a 33 single mother and I have a 2yr old daughter. We just found out she has Duanes Retraction Syndrome. Her dr has set us up to see a specialist. He has Tue, 03 Nov 2009 18:05:59 GMT k_tpierson http://health.groups.yahoo.com/group/duanes/message/13022 http://health.groups.yahoo.com/group/duanes/message/13022 Yes, that's my experience too Jennifer, you just said it more adeptly than I did. Tue, 03 Nov 2009 18:00:23 GMT k_tpierson http://health.groups.yahoo.com/group/duanes/message/13021 http://health.groups.yahoo.com/group/duanes/message/13021 Thanks Jennifer, I think I'm glad I waited until now to do anything about this based on other people's experiences with multiple/botched surgeries. This Tue, 03 Nov 2009 16:49:19 GMT Jennifer Babek http://health.groups.yahoo.com/group/duanes/message/13020 http://health.groups.yahoo.com/group/duanes/message/13020 An after thought to my recent post. Make double sure that the surgeon is experienced with Duanes and not just "lazy eye". I had a botched recession during my Tue, 03 Nov 2009 16:46:37 GMT Jennifer Babek http://health.groups.yahoo.com/group/duanes/message/13019 http://health.groups.yahoo.com/group/duanes/message/13019 It sounds like we have the exact same complications regarding Duanes (type, limited vision in my left eye). Luckily, I've never had a problem reading; but I've Tue, 03 Nov 2009 16:43:27 GMT Jennifer Babek http://health.groups.yahoo.com/group/duanes/message/13018 http://health.groups.yahoo.com/group/duanes/message/13018 I'm also an adult with Duanes. I would recommend sticking with your pediatric ophthalmologist if they are willing. They will know the most about Duanes. I've Tue, 03 Nov 2009 16:43:15 GMT k_tpierson http://health.groups.yahoo.com/group/duanes/message/13017 http://health.groups.yahoo.com/group/duanes/message/13017 Hey there. . .I'm new here . . .29 year old female with left side DS. . .i'm actually the rare "type 2". . .I have about a 30 degree head turn and very limited Tue, 03 Nov 2009 16:34:30 GMT k_tpierson http://health.groups.yahoo.com/group/duanes/message/13016 http://health.groups.yahoo.com/group/duanes/message/13016 My recent personal experience (and others can disagree) is that a pediatric ophthalmologist (not optometrist) is the best specialist to see for duane's in Mon, 02 Nov 2009 02:51:01 GMT calanthaa http://health.groups.yahoo.com/group/duanes/message/13015 http://health.groups.yahoo.com/group/duanes/message/13015 Hi Shannon, and welcome to the group. I'm an adult with DS, and I'm always glad to see other DS adults on here. I'm afraid I can't give you any help with your Sun, 01 Nov 2009 08:46:16 GMT brian_collinsuk http://health.groups.yahoo.com/group/duanes/message/13014 http://health.groups.yahoo.com/group/duanes/message/13014 We are only 25 miles from Moorfields anyway and our local hospital has messed us around - they sent us 5 appointments and cancelled the lot ! I also thought Sat, 31 Oct 2009 15:20:53 GMT jmumsmith http://health.groups.yahoo.com/group/duanes/message/13013 http://health.groups.yahoo.com/group/duanes/message/13013 Thank you all for the clarification on what a head turn is. I was totally wrong in what I thought it was. Now I know more what to watch for as my son grows and