http://health.groups.yahoo.com/group/duanes/ Duane's Retraction Syndrome Sat, 21 Nov 2009 04:09:45 GMT Glenn http://health.groups.yahoo.com/group/duanes/message/13080 http://health.groups.yahoo.com/group/duanes/message/13080 Hey, Anne and Amelie - I am in the Houston area as well. My son Erik has type 1 DS in the left eye, and he didn't walk until 14 months. He's just under 2 Fri, 20 Nov 2009 16:12:38 GMT Christoph J. Gartmann http://health.groups.yahoo.com/group/duanes/message/13079 http://health.groups.yahoo.com/group/duanes/message/13079 ... Uh, this doesn't sound competent at all! ... I encourage you to see a paediatric ophthalmologist that is familiar with Duanes. Regards, Christoph Gartmann Fri, 20 Nov 2009 13:51:50 GMT Liane Herbst http://health.groups.yahoo.com/group/duanes/message/13078 http://health.groups.yahoo.com/group/duanes/message/13078 You can actually get a rough idea of head turn on your own. Ask her to close one eye and do some task like watching TV, etc. She should be straight ahead, Fri, 20 Nov 2009 13:22:23 GMT ptmom08@... http://health.groups.yahoo.com/group/duanes/message/13077 http://health.groups.yahoo.com/group/duanes/message/13077 My 2 year old with DS type 1 left eye, VRT at 10 months walked at 14 months and did not have an aversion to grass. My 12 year old without DS hated the grass as Fri, 20 Nov 2009 04:19:42 GMT Liane Herbst http://health.groups.yahoo.com/group/duanes/message/13076 http://health.groups.yahoo.com/group/duanes/message/13076 My son, who is now 8, walked at almost 17 months -- AND HATED GRASS! But, I don't think there's a connection. He also didn't like finger painting, etc. But Fri, 20 Nov 2009 03:57:08 GMT ameliemeyer http://health.groups.yahoo.com/group/duanes/message/13075 http://health.groups.yahoo.com/group/duanes/message/13075 Hello Anne, I usually only lurk around here but I just wanted to wave out to you because I am also in Houston and also seeing Dr Musgrove. Incidentally I am Thu, 19 Nov 2009 05:52:45 GMT Tim http://health.groups.yahoo.com/group/duanes/message/13074 http://health.groups.yahoo.com/group/duanes/message/13074 Hi Anne, I'm very new here...but concerning the grass...I'm very confident in saying it's not DS-related. My non-DS 3-yr old daughter and non-DS 3-yr old Thu, 19 Nov 2009 02:21:21 GMT Rebecca Dagenais http://health.groups.yahoo.com/group/duanes/message/13073 http://health.groups.yahoo.com/group/duanes/message/13073 Thanks, Clara.  That' s great advice on the therapy.  She will see a physical therapist in a couple of weeks, but I don't think she knows anything about Wed, 18 Nov 2009 21:09:53 GMT Candice Forbes http://health.groups.yahoo.com/group/duanes/message/13072 http://health.groups.yahoo.com/group/duanes/message/13072 I can only speak for my son and say we never had any of these issues. However, there is a know possibility of hearing loss. I wonder if that might be your Wed, 18 Nov 2009 20:58:01 GMT wileyae http://health.groups.yahoo.com/group/duanes/message/13071 http://health.groups.yahoo.com/group/duanes/message/13071 Hello~ I have posted a few times, but here I am again with some more questions! I am the Mom of a 15 month old son with Type 1 DS in his left eye. We live in Wed, 18 Nov 2009 20:51:59 GMT claradesaintalbin@... http://health.groups.yahoo.com/group/duanes/message/13070 http://health.groups.yahoo.com/group/duanes/message/13070 Hello Becky, my daughter was delayed in walking two. Actually we found out with the neurologist that followed her that he head turn made her less stable than Wed, 18 Nov 2009 19:07:05 GMT SariScribe@... http://health.groups.yahoo.com/group/duanes/message/13069 http://health.groups.yahoo.com/group/duanes/message/13069 Hi, Tom & Ann and all of the other new members.   I've been "lurking" to some extent lately, but want to add my welcome and a couple of minor points.   By Wed, 18 Nov 2009 14:56:58 GMT jmumsmith http://health.groups.yahoo.com/group/duanes/message/13068 http://health.groups.yahoo.com/group/duanes/message/13068 Welcome! My son, Granger, is 8 months old today and was diagnosed about 6 weeks ago with DS Type 1. I too am learning all I can about it. Your girls are Wed, 18 Nov 2009 14:54:45 GMT Rebecca Dagenais http://health.groups.yahoo.com/group/duanes/message/13067 http://health.groups.yahoo.com/group/duanes/message/13067 My daughter, Corinne, is now 10 months old and the nurse from the Early Intervention Program that comes to the house (she had a very traumatic birth and is Wed, 18 Nov 2009 05:24:30 GMT thoefer http://health.groups.yahoo.com/group/duanes/message/13066 http://health.groups.yahoo.com/group/duanes/message/13066 Thank you Jennifer and congratulations on your advancements. I actually remember reading Dr. Rosenbaum's name in the wikipedia entry for Duane's Syndrom