dysferlin at Yahoo! Groups

Re: Miyoshi Myopathy

xron922 — Sun, 11 May 2008 21:32:00 GMT

Hey John! Welcome to the group here! I noticed symptoms when I was 21 and was diagnosed with Miyoshi Myopathy at 23. If you ever get a chance to make it out to

Miyoshi Myopathy

John B — Sun, 11 May 2008 16:19:54 GMT

Hello, My name is John. I'm 25 with Miyoshi Myopathy. I have noticed symptoms since I was 17. I have contacted MDA to see if they have any support groups

Re: Digest Number 163

Ryan,Marian — Thu, 08 May 2008 18:48:46 GMT

Hi Josh, I'm O-negative. I have heard about the blood-type dietary ideas. To me, they're not all that credible--they have been around at least 10 years.

Re: Blood Pressure, Cholesterol and Blood Type?

John B — Mon, 05 May 2008 15:44:12 GMT

I'm 24 years old with normal blood pressure and cholesterol levels. I don't know my blood type. joshtc3 wrote: Hello Everyone,

Re: [SPAM][dysferlin] Re: Blood Pressure, Cholesterol and Blood Type

Suzanne Croft — Mon, 05 May 2008 11:20:24 GMT

I am O+ but definately have no sign of high blood pressure. Regards. Suzanne ... From: xron922 To: dysferlin@yahoogroups.com Sent: Monday, May 05, 2008 6:25 AM

Re: Blood Pressure, Cholesterol and Blood Type?

xron922 — Mon, 05 May 2008 05:25:25 GMT

Hey Josh, I have high blood pressure and my blood type is O positive too. Ron

Blood Pressure, Cholesterol and Blood Type?

joshtc3 — Sun, 04 May 2008 20:28:26 GMT

Hello Everyone, I have high blood pressure and high cholesterol and am aware of at least two other Miyoshi patients who do as well. It occurred to me that

Re: Is it better to know or not know if you have Myoshi Myopathy?

baw1064 — Sat, 29 Mar 2008 23:56:40 GMT

Hi Donna, Welcome to the group. I've changed your permissions so you will be able to post without being moderated from now on. There could be a problem with

Re: My gene mutational analysis results!

baw1064 — Sat, 29 Mar 2008 23:35:45 GMT

Hi Larry, I'll try to give an explanation. Basically, everybody has two copies of the dysferlin gene (this is true of every gene that isnt on the X or Y

Is it better to know or not know if you have Myoshi Myopathy?

DeejLouise — Sat, 29 Mar 2008 22:56:10 GMT

I joined this group a few weeks ago to learn more about Myoshi Myopathy because I went to get a second opinion on a diagnosis of a tethered spinal cord and was

Re: My Story

xron922 — Wed, 26 Mar 2008 16:10:40 GMT

Hey Josh! I think that there is alot of variablility to how much exertion one is able to do with this disease. Like I said in a recent previous post, no one

Re: Recommended Reading

xron922 — Wed, 26 Mar 2008 15:59:46 GMT

Hey Samantha! I have nothing against trying alternative medicine and I have done so myself, but to think that the medical profession as a whole is covering up

Re: My Story

xron922 — Wed, 26 Mar 2008 15:50:19 GMT

hey samantha! I but a ten ml/cc bottle and inject 1 ml/cc each week. I think it's 1000 mcg per dose. ron

Re: My Story

joshtc3 — Tue, 25 Mar 2008 22:26:52 GMT

Hi Samantha, I would go relatively easy on the physical therapy and physical exertion generally. In my experience it is very helpful to do what you can each

Pools?

samanthasmith7 — Mon, 24 Mar 2008 22:01:35 GMT

Hey!! I just started doing exercises in a pool for physical therapy but our time that we can spend in the pool is very limited so I have been looking into