http://health.groups.yahoo.com/group/fdvillagenewsletter/ To provide news and updates on the FD Village web site (www.fdvillage.org), a site devoted to support of research and individua Thu, 11 Jul 2002 23:43:14 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/8 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/8 Urgent! Action Alert THE PRESIDENT’S COUNCIL ON BIOETHICS ISSUED REPORT CALL THE WHITE HOUSE AND YOUR SENATORS The President’s Council on Bioethics Tue, 15 Jan 2002 21:02:29 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/7 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/7 Please note the correction in the following article from our current newsletter: FROM THE TRENCHES: TWO THERAPEUTIC CONSIDERATIONS FOR INDIVIDUALS WITH Tue, 15 Jan 2002 15:38:32 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/6 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/6 FAMILIAL DYSAUTONOMIA HOPE NEWSLETTER JANUARY 2002 LETTER FROM THE EDITOR by Mavis Feinberg As we enter a new calendar year, FD Hope sincerely wishes all of Tue, 30 Oct 2001 16:20:24 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/5 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/5 Familial Dysautonomia, Inc. Special Bulletin October, 2001 FAMILIAL DYSAUTONOMIA TESTING REACHES THE NATIONAL LEVEL --Genzyme to offer testing for familial Tue, 18 Sep 2001 19:10:03 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/4 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/4 FAMILIAL DYSAUTONOMIA HOPE Newsletter of September 2001 Dear Friends, A tremendous tragedy befell the world on Tuesday morning. Who of us has not cried for Tue, 26 Jun 2001 19:17:31 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/3 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/3 NEWSLETTER OF FD HOPE      June 2001 Introduction by Editor, Mavis Feinberg: Last month we began this monthly newsletter with a general welcome, an Thu, 11 Jan 2001 03:17:22 GMT speltzer2@... http://health.groups.yahoo.com/group/fdvillagenewsletter/message/2 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/2 Dear Dr. Rubin, Let me add my words of congratulations and thanks for what your department has accomplished. Many of us have heard that the mutation will be Mon, 26 Jun 2000 04:58:35 GMT sonia http://health.groups.yahoo.com/group/fdvillagenewsletter/message/1 http://health.groups.yahoo.com/group/fdvillagenewsletter/message/1 Familial Dysautonomia Village Newsletter: Familial dysautonomia ?FD Village www.fdvillage.org Vol. 1, No. 1 June 25, 2000 Table of contents: 1. What's New at