http://health.groups.yahoo.com/group/floating_harbor_syndrome/ Floating Harbor Syndrome Tue, 22 Jul 2008 14:52:34 GMT vickyphillips@... http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/397 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/397 Hi all,our daughter mercedes who is 7 had just been diagnosed with FHS we havent been told alot about this,we have been trying for 6 years to find what is Tue, 19 Jun 2007 23:36:41 GMT littleflockfarm http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/396 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/396 Hello-- I'm back--- after TOO long of an absence. It's Deana SWAnson, still in North Carolina, but moved again. About puberty, again this is related to the Fri, 08 Jun 2007 03:07:11 GMT sttn_jnny http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/395 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/395 Hello families. I am writing from the National Birth Defects Center in Waltham MA, the office of Dr. Murray Feingold. As mentioned in the message posted by Mon, 02 May 2005 12:15:14 GMT d. newman http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/393 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/393 Hi, My name is Donna Newman and I have a 17 year old daughter with FHS. I have been blessed to get to know many of the other mothers,and fathers, through the Fri, 17 Dec 2004 00:17:06 GMT kahlidmillah http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/392 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/392 Dear Sir/Madam, As you read this, I don't want you to feel sorry for me, because, I believe everyone will die someday. My name is Millah Khalid a merchant in Fri, 10 Sep 2004 13:06:21 GMT Donna Newman http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/391 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/391 Hi there, I too am a mom of a Floating Harbor Syndrom child. My daughter is 16 years old. I would be delighted to share any info I have and/or experiences I Tue, 07 Sep 2004 12:49:04 GMT mbernier72 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/390 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/390 I have a 4 year old child with floating harbor syndrome. And was hoping to share information with other parents or just get involved into a chat group. Thank Mon, 27 Oct 2003 20:57:08 GMT Enright, James (N-ENSCO Inc) http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/389 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/389 All the research ( which isn't very much) indicates that there is no effect on the life span of Floating Harbor children. As you are probably finding out, it Fri, 24 Oct 2003 14:19:51 GMT southernbelljt http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/388 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/388 Hi .MY daughter is 20 years old and she was just diganost with FHS afew years ago dose anyone have any idea how long this childern live Ive not heard yet if Sat, 14 Jun 2003 13:18:46 GMT Joan http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/387 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/387 Hi All I just wondered if everyone was aware that there is another very lively FHS group on yahoo? floating_harbor@yahoogroups.com I believe this list was our Wed, 11 Jun 2003 18:20:54 GMT babyblondi_2000 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/386 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/386 hi i am looking for any information. My daughter was diagnoss with floating harbor syndrome last August when she was 4 months old but we don't really know what Mon, 24 Mar 2003 13:30:16 GMT Don Schreiber http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/385 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/385 off topic- but a bit humorous and interesting _______________________________________________________________ Saddam, Yasser and Osama need our LOVE, not war. Sat, 22 Mar 2003 17:32:34 GMT http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/384 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/384 floating_harbor_syndrome@yahoogroups.com ... Take control of your computer and online experience with this complete toolkit for Windows. In this one Wed, 12 Mar 2003 19:00:09 GMT Amy Clugston http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/383 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/383 It is to bad that this group is being targeted by these people. I am on another rare disorder list that is getting e-mails from the same people. Both groups Wed, 12 Mar 2003 12:51:28 GMT Joachim Martillo http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/382 http://health.groups.yahoo.com/group/floating_harbor_syndrome/message/382 [assawra] Armes de destructions massives d Israel http://groups.yahoo.com/group/palestinesissues/messagesearch?query=naz i Indeed, PALESTINE was, still and