http://health.groups.yahoo.com/group/fshsociety/ FSHSocietyYahooGroup Sat, 21 Nov 2009 22:25:15 GMT Dean http://health.groups.yahoo.com/group/fshsociety/message/21836 http://health.groups.yahoo.com/group/fshsociety/message/21836 As you are finding out with FSHD, each case can have varying results and progression seems to hit at different times in ones life. Therefore, I can't direct Fri, 20 Nov 2009 21:30:48 GMT Rebekah Jones http://health.groups.yahoo.com/group/fshsociety/message/21835 http://health.groups.yahoo.com/group/fshsociety/message/21835 I always feel like a person has to be true to who they are. Personality, drive, goals, etc. I think he will figure out when he has overdone it and find a Fri, 20 Nov 2009 18:04:22 GMT Pipes http://health.groups.yahoo.com/group/fshsociety/message/21834 http://health.groups.yahoo.com/group/fshsociety/message/21834 Even if your son takes it easier, his life plan can still include stoking his passion, as a coach, announcer, sportswriter, and on and on. No need ever to Fri, 20 Nov 2009 16:09:22 GMT Susan Friede http://health.groups.yahoo.com/group/fshsociety/message/21833 http://health.groups.yahoo.com/group/fshsociety/message/21833 Thanks for your reply about help for the facial drooping. I have been checking around about yoga exercise for the face also I spoke to a dermatoligists office Fri, 20 Nov 2009 14:54:53 GMT Ray Jordan http://health.groups.yahoo.com/group/fshsociety/message/21832 http://health.groups.yahoo.com/group/fshsociety/message/21832 Hey Rich, That's a great article. It has the two most important ingredients - entertainment and education. I'm so glad the event went well and I wish you Fri, 20 Nov 2009 14:54:20 GMT Ray Jordan http://health.groups.yahoo.com/group/fshsociety/message/21831 http://health.groups.yahoo.com/group/fshsociety/message/21831 Hi Michael, I'm glad you found Ryan's web page - he is a fine example of what a person with the right mind-set can achieve. For someone like your son whose Fri, 20 Nov 2009 04:35:46 GMT maryellen mckee http://health.groups.yahoo.com/group/fshsociety/message/21830 http://health.groups.yahoo.com/group/fshsociety/message/21830 Hi Michael, My husband and I have a son with FSH (as well as daughter) and when my son was in his late teens he had a scapular fixation surgery. The surgeon at Thu, 19 Nov 2009 21:26:46 GMT born2limp http://health.groups.yahoo.com/group/fshsociety/message/21829 http://health.groups.yahoo.com/group/fshsociety/message/21829 I wrote a first-person account of organizaing last month's successful Walk'N'Roll fundraiser on Cape Cod. It ran today in the Cape Cod Times. As promised,I'm Thu, 19 Nov 2009 18:42:26 GMT michael.malmstrom http://health.groups.yahoo.com/group/fshsociety/message/21828 http://health.groups.yahoo.com/group/fshsociety/message/21828 My son(17) was diagnosed with FSH for 9 months ago and we had a long period of discussions, searching the web, and asking experts, to try and find a life Wed, 18 Nov 2009 18:53:09 GMT halfonts http://health.groups.yahoo.com/group/fshsociety/message/21827 http://health.groups.yahoo.com/group/fshsociety/message/21827 While I was married most of a decade with of-and-on social relations; I'm by choice a confirmed bachelor. None of that had anything to do with FSH or any other Wed, 18 Nov 2009 16:39:36 GMT jorge ricardo f http://health.groups.yahoo.com/group/fshsociety/message/21826 http://health.groups.yahoo.com/group/fshsociety/message/21826 I think that FSHD may be a thing that don´t help you to find a couple, but I have FSHD and I´ve been married for 9 years, my father with FHSD was married for Wed, 18 Nov 2009 13:50:56 GMT Margaret http://health.groups.yahoo.com/group/fshsociety/message/21825 http://health.groups.yahoo.com/group/fshsociety/message/21825 Thank you for your reply, maybe it is due to fshd!!! ... From: barrelizabeth3@... To: fshsociety@yahoogroups.com Sent: Monday, November 16, 2009 9:16 PM Tue, 17 Nov 2009 20:33:03 GMT willow_mei http://health.groups.yahoo.com/group/fshsociety/message/21824 http://health.groups.yahoo.com/group/fshsociety/message/21824 Hi Susan - For me, facial and neck/throat yoga exercises are very helpful for muscle tone and improved circulation to the areas. I started yoga exercise Tue, 17 Nov 2009 20:31:04 GMT halfonts http://health.groups.yahoo.com/group/fshsociety/message/21823 http://health.groups.yahoo.com/group/fshsociety/message/21823 Susan, I hear you. My eyes have drrped and sagged for years. For a long time I wore my oversize dark "aviator" glasses, because I liked their eye protection. Tue, 17 Nov 2009 20:30:59 GMT mymajc http://health.groups.yahoo.com/group/fshsociety/message/21822 http://health.groups.yahoo.com/group/fshsociety/message/21822 Gosh, wasn't there a heated thread a while agao about having kids and passing on FSH.  It could be I am old fashion but to deliberate having kids to me means