http://health.groups.yahoo.com/group/gardnerssyndrome/ FAP / Gardner syndrome Thu, 07 Jan 2010 04:58:45 GMT willnjenni http://health.groups.yahoo.com/group/gardnerssyndrome/message/22003 http://health.groups.yahoo.com/group/gardnerssyndrome/message/22003 Hey everyone. I know my husband posted a message earlier today but I'm not sure he asked the right question so everyone would understand. Since my hubby got Wed, 06 Jan 2010 23:00:58 GMT Danielle Murdoch http://health.groups.yahoo.com/group/gardnerssyndrome/message/22002 http://health.groups.yahoo.com/group/gardnerssyndrome/message/22002 Oncologist ... [Non-text portions of this message have been removed] Wed, 06 Jan 2010 22:47:56 GMT willnjenni http://health.groups.yahoo.com/group/gardnerssyndrome/message/22001 http://health.groups.yahoo.com/group/gardnerssyndrome/message/22001 hey guys i was wondering what kind of dr i would need to talk to about my demoid tumors.i have them growing again and have no dr taking care of them so i need Thu, 31 Dec 2009 04:03:46 GMT Danielle Murdoch http://health.groups.yahoo.com/group/gardnerssyndrome/message/22000 http://health.groups.yahoo.com/group/gardnerssyndrome/message/22000 Christy, Dr. Bauer uses Mount Sinai in NYC. Many of us have used him and rest of group for over 20 years. 25 East 69th St 212 517-8600 Wont be disappointed, Wed, 30 Dec 2009 17:23:40 GMT sanddude1998 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21999 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21999 Ditto Wed, 30 Dec 2009 17:23:27 GMT sanddude1998 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21998 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21998 Stacy --- first of all --- this group welcomes anyone who can share information, learn or both --- regardless of diagnosis! You are not only welcome here, but Wed, 30 Dec 2009 17:08:54 GMT sanddude1998 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21997 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21997 hi christyl --- sorry i didn't respond any sooner - been taking some time off ... anyhoos ... a belated Happy Holidays and Happy New Year! I am sorry to tell Mon, 28 Dec 2009 19:55:11 GMT sbrownri http://health.groups.yahoo.com/group/gardnerssyndrome/message/21996 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21996 Hi Jeannie, Thank you for the information. I am actually located in Rhode Island, about 1-1/4 hours from Boston, so that is good to know that Dana Farber is Mon, 28 Dec 2009 17:16:51 GMT jmwpayne http://health.groups.yahoo.com/group/gardnerssyndrome/message/21995 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21995 Welcome to the group. I'm going to reiterate what you have already heard from others. Go to a center experienced with Lynch's Syndrome, FAP, etc. There are Thu, 24 Dec 2009 03:30:36 GMT Steph http://health.groups.yahoo.com/group/gardnerssyndrome/message/21993 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21993 I started to be scoped at the age of 16. As Always ~ Steph ~ [Non-text portions of this message have been removed] Thu, 24 Dec 2009 02:07:16 GMT Amanda Adriani http://health.groups.yahoo.com/group/gardnerssyndrome/message/21992 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21992 My husband has FAP (Gardners variant) and so does his entire family. His youngest sister was scoped at 11 and yearly thereafter until she was 17. At 17 she Thu, 24 Dec 2009 01:28:44 GMT Jon Olis http://health.groups.yahoo.com/group/gardnerssyndrome/message/21991 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21991 I think desmoids occur in 10% of people with FAP. They can be dangerous if they encroach on different organs. Jon ... From: gardnerssyndrome@yahoogroups.com Wed, 23 Dec 2009 18:44:59 GMT olis1@... http://health.groups.yahoo.com/group/gardnerssyndrome/message/21990 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21990 Michelle, When you say tumors I assume you mean desmoids. I've heard a little hear and there and young adult females possibly being more susceptible to Wed, 23 Dec 2009 18:35:16 GMT Danielle Murdoch http://health.groups.yahoo.com/group/gardnerssyndrome/message/21989 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21989 Michelle Sometimes due to the trauma of surgery, although she wasn't opened up, desmoid tumors grow in the muscle. They are benign and common in those with Wed, 23 Dec 2009 13:36:24 GMT Michelle Manley http://health.groups.yahoo.com/group/gardnerssyndrome/message/21988 http://health.groups.yahoo.com/group/gardnerssyndrome/message/21988 Hi Danielle My daughter had 120+ polyps and she was experiencing many episodes of severe pain and would have to sit in bathroom for long periods of time.  We