http://health.groups.yahoo.com/group/gardnerssyndrome/ FAP / Gardner syndrome Sun, 06 Jul 2008 15:09:55 GMT Cheryl Huffman http://health.groups.yahoo.com/group/gardnerssyndrome/message/19485 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19485 Hi Everyone,  Steven's Hope is a wonderful place for ill children and their family's.  At the end of my email I will give you their address and you can read Sun, 06 Jul 2008 13:00:05 GMT Steve http://health.groups.yahoo.com/group/gardnerssyndrome/message/19484 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19484 Allie --- a "flex-sig" is a flexible sigmoidoscopy ... absolutely necessary on a regular basis ... six months to a year depending on the patient. a flex sig is Sun, 06 Jul 2008 12:37:23 GMT Steve http://health.groups.yahoo.com/group/gardnerssyndrome/message/19483 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19483 Jon et al, I think these issues are important ... these messages are open to the Internet ... and anyone searching for any serious health issues may find Sun, 06 Jul 2008 12:21:50 GMT Steve http://health.groups.yahoo.com/group/gardnerssyndrome/message/19482 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19482 cinlu4 --- what surgery is (s)he talking about? Welcome to the group! Steve Sun, 06 Jul 2008 12:13:18 GMT Steve http://health.groups.yahoo.com/group/gardnerssyndrome/message/19481 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19481 Wendy --- you are right to trust Dr. Lunch and MD Anderson ... if I had Dr. Lynch telling me not to worry, I would not worry ... but you really deserve to know Sun, 06 Jul 2008 03:17:26 GMT shaughn thomas http://health.groups.yahoo.com/group/gardnerssyndrome/message/19480 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19480 Hello, Hopefully you are working for a good company that will work with you during bouts of this illness. Your company should continue to pay your medical Sat, 05 Jul 2008 18:33:29 GMT Allie Wood http://health.groups.yahoo.com/group/gardnerssyndrome/message/19479 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19479 He didn't mention wanting to do ANY scoping of my rectum or what is left of my colon.  He just read the surgery report and figured I didn't need any scoping Sat, 05 Jul 2008 14:08:44 GMT Jennifer Current http://health.groups.yahoo.com/group/gardnerssyndrome/message/19478 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19478 I got a phone call a couple of days ago from Jo's gastrologist. He said that somehow Jo's pictures of her pill procedure have been deleted before he could view Sat, 05 Jul 2008 13:37:23 GMT littlecaesar99 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19477 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19477 I have an ileo and a rectal stump right now...I believe that what you are talking about is a flexible sigmoidoscopy rather than a colonoscopy. It is not as Sat, 05 Jul 2008 13:08:38 GMT Allie Wood http://health.groups.yahoo.com/group/gardnerssyndrome/message/19476 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19476 I will have to bring it up to this new doctor on Monday when I get the EGD done.  I want to at least have that done before I decide to switch doctors Sat, 05 Jul 2008 06:33:36 GMT wr4162001 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19475 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19475 I have a question regarding preparing for the future. I am single, work full-time, and live in a state where I have no family. Since I was only recently Sat, 05 Jul 2008 05:46:16 GMT Jon Olis http://health.groups.yahoo.com/group/gardnerssyndrome/message/19474 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19474 I have the same surgery as you Allie and I without a doubt need to be checked yearly with a sigmoidoscopy. The rectum is technically colon and therefore Sat, 05 Jul 2008 05:45:01 GMT Jon Olis http://health.groups.yahoo.com/group/gardnerssyndrome/message/19473 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19473 This is correct Wendy. Sigmoidoscopy is what you need. And the Colonoscopy could not get to the duodenum. The duodenum is right below the stomach so an EGD Sat, 05 Jul 2008 04:31:13 GMT Darlene Buckel http://health.groups.yahoo.com/group/gardnerssyndrome/message/19472 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19472 Allie, The endoscopy is how they check your duodenum. Because of Him, Darlene The Clay Factory www.clayfactory.com Childrens Handprints & Pet Pawprint Kits Sat, 05 Jul 2008 00:55:25 GMT Allie Wood http://health.groups.yahoo.com/group/gardnerssyndrome/message/19471 http://health.groups.yahoo.com/group/gardnerssyndrome/message/19471 That could very well be true.  He didn't mention wanting to do that either.  I will have to bring it up to him and see if he will at least do that as I have