http://health.groups.yahoo.com/group/glutaric_acidemia/ International Organization of Glutaric Acidemia Sun, 27 Dec 2009 23:00:53 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2118 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2118 http://www.pek-amea.gr/2460Qweert.htm Mon, 21 Dec 2009 22:44:05 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2117 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2117 anyone geting my messages to day join The GA1 Social Network [Non-text portions of this message have been removed] Mon, 21 Dec 2009 15:37:24 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2116 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2116 http://sites.google.com/site/onssalevnv/ezirh8jzpn Mon, 21 Dec 2009 00:06:42 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2115 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2115 http://sites.google.com/site/zbaiszdyad/extyjr1zsv Thu, 17 Dec 2009 03:10:08 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2114 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2114 We will setup your profile for you all you need to do is fill out the form http://ga1space.socialgo.com/welcome::get_a_profile_setup__for_you.html [Non-text Tue, 15 Dec 2009 06:33:14 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2113 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2113 get a profile made for you for free at least for now its free Just go to http://ga1space.socialgo.com/welcome::get_a_profile_setup__for_you.html [Non-text Mon, 16 Nov 2009 15:30:44 GMT chaca.rm http://health.groups.yahoo.com/group/glutaric_acidemia/message/2112 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2112 Hello to all parents of GA1. This is a very brief post with information that I've been inspired to share. My son Simon is GA1 with severe brain injury at 6 Mon, 16 Nov 2009 02:30:34 GMT Trish Hellstern http://health.groups.yahoo.com/group/glutaric_acidemia/message/2111 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2111 I think I might have posted here once. My son has GA 1 but is mildly affected at best. He has a few balance issues but otherwise is totally living a normal Thu, 05 Nov 2009 22:55:40 GMT Dena H http://health.groups.yahoo.com/group/glutaric_acidemia/message/2110 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2110 Here is the study done with mice, http://brain.oxfordjournals.org/cgi/content/abstract/129/4/899. Dr. Zinnati did a presentation at the OAA conference in Thu, 05 Nov 2009 05:38:31 GMT yakoodle http://health.groups.yahoo.com/group/glutaric_acidemia/message/2109 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2109 Hi, I have been talking to my Dr and reading about novel treatments for GA1 and I hear alot about homoarginine. Has anyone heard anything about the possible Thu, 15 Oct 2009 12:04:05 GMT janie6813 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2108 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2108 Hello Sara, My 12 year old, who I adopted aged 18 months has GA1. He was just diagnosed when he came to me so I remember some of what you will be going through Thu, 15 Oct 2009 04:02:00 GMT Sarah Kordis http://health.groups.yahoo.com/group/glutaric_acidemia/message/2107 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2107 Tracy,   Lily tried one out before, and some things worked great and others not so much.  However, with the kiddos it has worked for - it's been excellent!  Thu, 15 Oct 2009 03:59:57 GMT Sarah Kordis http://health.groups.yahoo.com/group/glutaric_acidemia/message/2106 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2106 Corrina,   That's awesome, great work!  Thank you for sharing your journey!  Our family, including another family I know, are applying to the foundation Tue, 13 Oct 2009 16:18:25 GMT Arnold Corrina http://health.groups.yahoo.com/group/glutaric_acidemia/message/2105 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2105 My son is the boy in the news. We live near Salt Lake City, UT.  He was diagnosed at two years old but had his metabolic crisis at three months.  We are try Tue, 13 Oct 2009 01:05:46 GMT Josh Mayfield http://health.groups.yahoo.com/group/glutaric_acidemia/message/2104 http://health.groups.yahoo.com/group/glutaric_acidemia/message/2104 Hi I am trying to pass more awareness about GA1 but it dont seem to be working but i guess if a few new people know about it then I am doing good right who is