hereditarymultipleextosis at Yahoo! Groups

Northeast, South and Midwest MHE Gatherings Coming Up!!!

mheandme — Fri, 03 Jul 2009 15:37:08 GMT

Gatherings are annual events sponsored by the MHE Coalition to give individuals and families the opportunity to meet others living with MHE and share

New to Website

Nadine A. Yacobozzi — Tue, 09 Jun 2009 01:05:00 GMT

Hi, I am new to this site. I would like to find out about other people who have MHE. I was not diagnosed until I was into my twenties. I somehow fell through

Re: hi everyone

Michele Smith — Tue, 05 May 2009 01:03:50 GMT

... From: scoom66 Subject: [Hereditary Multiple Extosis] hi everyone To: hereditarymultipleextosis@yahoogroups.com Date: Saturday, April

hme

Michele Smith — Sun, 26 Apr 2009 03:25:06 GMT

hi every i have hme to. if you have any questions you want to ask please e mail renzella2009@... [Non-text portions of this message have been removed]

MHE Gatherings

mheandme — Fri, 24 Apr 2009 22:55:30 GMT

These annual gatherings are sponsored by The MHE Coalition to give individuals and families the opportunity to meet others living with MHE and share

Re: hi everyone

Kevin — Tue, 21 Apr 2009 04:32:52 GMT

Welcome to the internet"s". Im 21 with MHE and was diagnoced when I was 3. For the most part I am lucky; I almost all bones but my spine/skull have extra

ignore my last post.

scoom66 — Sat, 18 Apr 2009 13:20:59 GMT

i'm new to computers but i understand what i did now. so ignore my last please & just read my earlier message. thanks!

new member multiple hereditary exostosis.

Steven Coombes — Sat, 18 Apr 2009 13:12:49 GMT

i'd like to join the group & be able to offer help & advice & also ask some questions of my own. i am 38, from Sussex & been dealing with this condition my

hi everyone

scoom66 — Sat, 18 Apr 2009 10:54:00 GMT

i just got online & as a 38 year sufferer of MHE i just wanted to say i am willing to give any advice or support i can to any members. I have had 17 ops to

Re: Spine Stimulation

Rommie — Mon, 13 Apr 2009 03:13:18 GMT

Best of luck to you Chris... I certainly hope your procedure goes well and provides alleviation of your pain. With kindest regards, Rommie

Spine Stimulation

christakisandreou — Mon, 13 Apr 2009 02:20:28 GMT

I am going this Wednesday for Spine Stimulation, hopefully to alleviate the pain on the legs. The nerves have been compressed and since I have already done

Re: First Pregnancy & Genetic Testing

jjicaza@... — Fri, 10 Apr 2009 22:33:44 GMT

I am a 37 year old female with HME. My mother has it and both of her children (my sister and I) have it. As far as we can tell, my mother was a spontaneous

Re: response to meetoohme

selitarichardson — Fri, 10 Apr 2009 00:51:44 GMT

DOTTIE, I HOPE YOU ARE RIGHT! I HAVE A 12 PAGE REPORT FROM A GENETICIST, SHE IS NOT AFFECTED AND THE GENE WAS NOT RECOGNIZED. I WILL SEE WHAT I CAN FIND

response to meetoohme

selitarichardson — Fri, 10 Apr 2009 00:23:47 GMT

I am also a 35 year old female with HME. I have a mild case of the disease, nevertheless, I have had one tumor removed and a total of 8 surgeries to

Re: 1st operation

carrie small — Thu, 09 Apr 2009 22:44:38 GMT

I love this posting, Lisa!! I have posted enough regarding the atrophic issues that I have realized as being possibly the worst part of MHE for me. I am