http://health.groups.yahoo.com/group/immotile_cilia_syndrome/ Immotile Cilia Syndrome Sun, 07 Feb 2010 23:43:18 GMT Margaret E Franks http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/23 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/23 I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join Fri, 29 Jan 2010 18:07:49 GMT Clark Franks http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/22 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/22 my grand baby was born 10/19/09 with cilia dis morph and situs inversus 3wks& 3m Sun, 29 Nov 2009 23:48:59 GMT Clark Franks http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/21 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/21 my grand daughter was born oct 19 09 she has situs inversis and is waiting for the test results for the kartageners syndrome on tuesday Tue, 16 Sep 2008 10:00:37 GMT dicikamethew http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/20 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/20 As the business war on the air is hotting up with so many low-budget airlines dominating the sky, the passengers can now enjoy the best deals. The webguide - Mon, 08 Sep 2008 10:05:55 GMT amanda_boris2001 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/19 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/19 We don't have to spend fortunes to get software for different applications. They are available in plenty as freeware. Have a look at a list of all essential Sat, 06 Sep 2008 09:37:30 GMT lesliegrady344 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/18 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/18 The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a Wed, 20 Aug 2008 01:53:04 GMT raamah_oakes http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/17 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/17 There are several scholarship programs that help us go for higher studies leaving behind all the financial worries. The website http://www.scholarshiponnet.com Thu, 08 May 2008 15:01:53 GMT Dan Stover http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/16 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/16 Lynn he was diagnosed in Ft Worth Texas.DO you know if they are doing any research in Texas?I will search PCD instead. Thank you for you help Alicia Lynn E Wed, 07 May 2008 03:51:27 GMT Lynn E http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/15 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/15 Hi Alicia, Where was your son diagnosed? Check out www.pcdfoundation.org . ICS is an older term. You can find much more information if you search for PCD Tue, 06 May 2008 23:49:16 GMT Alicia http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/14 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/14 My seven year old was just diagnosed after being sick his whole life and having 14 surgeries on his ears.He has had seven skin grafts on his ear to repair the Sat, 19 Jan 2008 14:54:29 GMT shapowm http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/13 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/13 Hi, I live in Michigan, and my 2 yr. old daughter was just diagnosed this week with immotile cilia syndrome after a whole year of almost constant sickness, Sat, 19 Jan 2008 14:51:00 GMT shapowm http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/12 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/12 Hi, I live in Michigan, and my 2 yr. old daughter was just diagnosed this week with immotile cilia syndrome after a whole year of almost constant sickness, Sun, 30 Dec 2007 19:04:55 GMT janicep731 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/11 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/11 I actually don't have PCD, but my husband does. I'm an RN and have checked into the condition quite a bit, but wanted to see what others said about it and Sat, 29 Dec 2007 18:55:34 GMT Christa Pearcy http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/10 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/10 Just PCD with 1 gene of CF (and the worst mutation - same problems as CF patients). ... From: Krystal Wood To: immotile_cilia_syndrome@yahoogroups.com Sent: Sat, 29 Dec 2007 16:48:47 GMT Krystal Wood http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/9 http://health.groups.yahoo.com/group/immotile_cilia_syndrome/message/9 Hi I forgot to mention that he has PCD with Kartagener's Sydrome, meaning all his internal organs are reversed. Is this what you have too? or is it just the