kfs at Yahoo! Groups

Re: Checklist, anyone?

Tammy — Fri, 17 Apr 2009 01:34:13 GMT

Yes they are. I love St. Louis Childrens Hospital they are great. we go in June 18 for his neck and back (Dr. Linky) July 28 to see his eye dr. (Dr. Rallo) and

Re: Checklist, anyone?

KimBeWavn@... — Fri, 17 Apr 2009 00:34:26 GMT

In a message dated 4/16/2009 6:30:49 P.M. Eastern Daylight Time, tammy.long35@... writes: Is this group still active? I haven't checked in for awhile

Re: Checklist, anyone?

Melinda — Thu, 16 Apr 2009 22:37:06 GMT

Are they helping him? I still havent fount anyone in Tennesse familiar with it.. ... From: Tammy Subject: [kfs] Re: Checklist, anyone?

Re: Checklist, anyone?

Tammy — Thu, 16 Apr 2009 22:30:23 GMT

... My son goes to St. Louis Childrens Hospital they're familuar w/Klippel feil. they had dignose my son w/that 7 yrs ago.

Re: Checklist, anyone?

Susan — Sat, 09 Aug 2008 19:21:08 GMT

... Is this group still active? I haven't checked in for awhile am going through my KFS groups, deciding if I should end any. Thfank you ...Susan/Raven

Re: Checklist, anyone?

melinda — Fri, 25 Jul 2008 01:32:49 GMT

find a genic doc

Re: Ahnuka's story

AnnMarie Allen — Thu, 17 Jul 2008 23:12:40 GMT

Wow, what a story! If this incident did not happen in school, you would have never known! Interesting! (I hope she continues to do well). We have been

Ahnuka's story

Joelle — Thu, 17 Jul 2008 19:16:32 GMT

We had never heard of KFS until 2 weeks ago when my 6-year old daughter was diagnosed. It's been a tough 8 months but we're finally getting some answers. In

Re: Here is my story on my Genetics Specialist

melinda — Tue, 29 Apr 2008 18:12:00 GMT

how did they find out your rib was closing in i have had CT scans etc feels like mine is but they find nothing and it feels like alot of pressure on my left

Re: Here is my story on my Genetics Specialist

Rosa Ch. — Thu, 27 Mar 2008 18:50:42 GMT

San Diego... Wow, how do you guys like it? Welcome to CA, are her doctors in San Diego? Armyfmly@... wrote: She is doing really good. She did not have to

Re: Here is my story on my Genetics Specialist

KimBeWavn@... — Thu, 27 Mar 2008 17:19:37 GMT

In a message dated 3/27/2008 10:38:06 A.M. Eastern Daylight Time, rosa_libra2001@... writes: Hello KimBeWavn What they did was, they went in an stuck

Re: Here is my story on my Genetics Specialist

Armyfmly@... — Thu, 27 Mar 2008 16:47:00 GMT

She is doing really good. She did not have to wear any brace after surgery. She did have some complications and they had to readmit her and open her back up

Re: Here is my story on my Genetics Specialist

Rosa Ch. — Thu, 27 Mar 2008 16:39:08 GMT

Oh wow, How is she? Is she wearing the Torso Brace? I had to, I wore it for like a good 8 months.. I think. How long was she in the Hospital for? How old is

Re: Here is my story on my Genetics Specialist

Armyfmly@... — Thu, 27 Mar 2008 16:04:50 GMT

My daughter just had this done 5 months ago. They fused from T-3 all the way down to her pelvis....and they used 2 rods and many screws. Amy In a message

Re: Here is my story on my Genetics Specialist

Rosa Ch. — Thu, 27 Mar 2008 14:37:37 GMT

Hello KimBeWavn What they did was, they went in an stuck metal bars in my back to stop the leaning, and there fore, stop the closing of my rib cage, hense the