marfans_support_and_chat at Yahoo! Groups

Re: FW: Oregon new dx

larie beck — Wed, 18 Nov 2009 04:59:45 GMT

Hi Becky, My name is Larie ( Ree for short). We have several fam's in the Portland area and they are starting to get ready for a National Marfan Foundation

FW: Oregon new dx

Iowa Marf — Wed, 18 Nov 2009 02:38:03 GMT

Becky, I'm forwarding this, it looks like it just went to the moderators. We're glad you found us and we will try to help you through questions, ups and down

looking for other

elitefurball — Fri, 13 Nov 2009 00:33:55 GMT

hi i'm a 33 year old woman, i was diagnosed with marfan syndrome when i was 4. i'm looking for others to chat too about how they feel, i'm in scotland, thanks

Re: Need Some Help!

Monie Luv — Mon, 09 Nov 2009 04:30:24 GMT

It's very normal to do exercises, do them, your body will feel better when you exercise. ... From: kherome Subject:

Re: Need Some Help!

Tammy Ranft — Thu, 22 Oct 2009 15:51:24 GMT

Hi Jessi-My daughter is 18 and she has Marfans too. I have several kids, 2 definately have Marfans, the others are suspected of having it.My kids also have

Re: Need Some Help!

kherome — Sat, 17 Oct 2009 21:58:37 GMT

She didn't say she wanted to be a teachers daughter, she said her mother's screen name is "want2bteacher" the creator of the group. The thing is Jesse,

Re: Need Some Help!

Scott Allen — Sat, 17 Oct 2009 15:28:08 GMT

YOU have to do what is best for YOU. Each person with marfans has a different level and combination of problems. Maybe you can go out and do light workouts

Re: Need Some Help!

LoverGirl9216 — Sat, 17 Oct 2009 15:06:37 GMT

thank you Lee i just needed a little insight what you said was very helpful thankz

Re: Need Some Help!

lisa_laybs — Sat, 17 Oct 2009 05:09:26 GMT

want2bteacher created this group lee.

Re: Need Some Help!

Lee Parks — Sat, 17 Oct 2009 03:58:26 GMT

Hi Jesse, I'm not sure I know what you are asking for. You said you wanted to be a "teacher's daughter." What exactly does that mean? THen you say you don't

Need Some Help!

LoverGirl9216 — Fri, 16 Oct 2009 23:08:53 GMT

Hi, I'm Jessi and I am 17 yrs old, I'm want2bteacher's daughter (the group creator). I have spinal stenosis and slight scoliosis and, I have exercises that I

Re: Health insurance issues

graciela romero — Tue, 06 Oct 2009 15:18:31 GMT

It was Blue Shield Blue croos. I was yesterday nicght checking your website, and I found about the pool insurance and I'm going to apply for that one.

Re: Health insurance issues

Iowa Marf — Tue, 06 Oct 2009 04:08:30 GMT

Graciela, You're in Texas right? What kind of insurance was she on? For the most part the US has laws that prevent this. There can be a waiting period until

FW: NMF Email Network-Healthcare Coverage and SSI/SSDI

Iowa Marf — Tue, 06 Oct 2009 04:06:21 GMT

National Marfan Foundation New Website Content: Healthcare Coverage and SSI/SSDI The NMF is pleased to announce that two new sections have been added to our

Health insurance issues

graciela romero — Mon, 05 Oct 2009 21:24:22 GMT

Hi, My name is Graciela and I have my daughter Naomi with Marfan. The insurance cancelled the policy because the marfan, and I need to get health insurance for