http://health.groups.yahoo.com/group/marfans_support_and_chat/ Marfans Syndrome support and chat Tue, 08 Jul 2008 16:51:26 GMT THANDP@... http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5763 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5763 Last year I asked for and got a copy of my 16 year olds complete medical records, (she went undiagnosed with Crohn's for over five months and the doctors just Tue, 08 Jul 2008 16:20:09 GMT CELESTE HANSEN http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5762 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5762 I agreewith you 100%. I have so far found 40 CTDs. it is interesting to me that you mention chronic Fatigue syndrome as I have been diagonsed with that. I Tue, 08 Jul 2008 15:47:22 GMT THANDP@... http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5761 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5761 You can do a basic search of CTD.? Ehler Danlos, Marfan, Loeys Dietz, Hypermobile Joint Disorder and then others are Lupus, Scleroderma, Rheumatoid Arthritis, Tue, 08 Jul 2008 15:22:13 GMT Celeste http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5760 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5760 Does anyone know of a website that would list all of the connective tissue disorders?? Thanks Celeste Tue, 08 Jul 2008 15:21:00 GMT Celeste http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5759 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5759 I will just quickly give an overview of the doctor appointment. Dallas. He had an EKG which was again abnormal due to a slow heart rate. the doctor does not at Mon, 07 Jul 2008 19:25:29 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5758 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5758 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Monday July 7, 2008 4:00 pm - Mon, 07 Jul 2008 07:55:55 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5757 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5757 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Monday July 7, 2008 4:00 pm - Sun, 06 Jul 2008 23:25:25 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5756 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5756 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday July 6, 2008 8:00 pm - Sun, 06 Jul 2008 11:58:33 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5755 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5755 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday July 6, 2008 8:00 pm - Fri, 04 Jul 2008 23:25:27 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5754 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5754 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan chat time Friday July 4, 2008 8:00 pm - Fri, 04 Jul 2008 11:57:51 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5753 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5753 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan chat time Friday July 4, 2008 8:00 pm - Thu, 03 Jul 2008 15:19:22 GMT rothko.gurl26 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5752 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5752 Hello everyone, My name is Leah and this is my first time at using the support group. I'm 27 and have been aware of Marfans all of my life. I have recently Wed, 02 Jul 2008 23:25:14 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5751 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5751 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday July 2, 2008 8:00 pm Wed, 02 Jul 2008 11:58:05 GMT http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5750 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5750 Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday July 2, 2008 8:00 pm Tue, 01 Jul 2008 19:12:19 GMT Scott Allen http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5749 http://health.groups.yahoo.com/group/marfans_support_and_chat/message/5749 OUCH!!! Looking things over, plane tickets have skyrocketed in price recently. Looking like after covering a part of one nights room, the Conference will cost