http://health.groups.yahoo.com/group/meningioma/ Meningioma Support and Information Sun, 08 Nov 2009 02:03:56 GMT annetteh http://health.groups.yahoo.com/group/meningioma/message/7224 http://health.groups.yahoo.com/group/meningioma/message/7224 I have it too. My docs (after 6 years of this) just told me there are no good options left for my TN. They say even morphne type drugs won't help this type Tue, 03 Nov 2009 03:41:52 GMT meg_kolodick http://health.groups.yahoo.com/group/meningioma/message/7223 http://health.groups.yahoo.com/group/meningioma/message/7223 I am on gabapentin and Tylenol. My primary doc is pretty conservative and since gabapentin has the fewest side effects, left me on it. I really don't think it Mon, 02 Nov 2009 20:24:09 GMT Kathy Adamcio http://health.groups.yahoo.com/group/meningioma/message/7222 http://health.groups.yahoo.com/group/meningioma/message/7222 Hi I had my last surgery in 2002 and i am left with trigemial neuropathy and i would not wish it on my ex husband HA! HA! [we need a little humor].But Mon, 02 Nov 2009 19:09:39 GMT Susie McAllister http://health.groups.yahoo.com/group/meningioma/message/7221 http://health.groups.yahoo.com/group/meningioma/message/7221 Does anyone have nerve pain in their legs?  My tumor was on the right side, with left side weakness as a symptom.  Ever since the surgery last November, I Mon, 02 Nov 2009 18:07:54 GMT wvmtlady http://health.groups.yahoo.com/group/meningioma/message/7220 http://health.groups.yahoo.com/group/meningioma/message/7220 Welcome Meg!! I sure hope they have found a med that will keep you pain- free! There is nothing quite like nerve pain. Are you on Neurotin or Gabapentin? All Mon, 02 Nov 2009 15:42:18 GMT meg_kolodick http://health.groups.yahoo.com/group/meningioma/message/7219 http://health.groups.yahoo.com/group/meningioma/message/7219 Thankyou for admitting me to this group. I had surgery to remove a meningioma that was compressing my 5th cranial nerve, that runs across the upper jaw. I Thu, 22 Oct 2009 15:08:59 GMT Kathy Boglarski http://health.groups.yahoo.com/group/meningioma/message/7218 http://health.groups.yahoo.com/group/meningioma/message/7218 I had a craniotomy in June 2005. They were not able to remove the whole tumor so I had Gamma Knife in August 2005. There was regrowth in 2008 so I had Thu, 22 Oct 2009 00:35:03 GMT Dennis/Jane Arnholt http://health.groups.yahoo.com/group/meningioma/message/7217 http://health.groups.yahoo.com/group/meningioma/message/7217 Thanks Tanja, and I am glad you are doing better ! Jane [Non-text portions of this message have been removed] Thu, 22 Oct 2009 00:34:13 GMT Dennis/Jane Arnholt http://health.groups.yahoo.com/group/meningioma/message/7216 http://health.groups.yahoo.com/group/meningioma/message/7216 Kathy, have you had surgery or anything? Jane [Non-text portions of this message have been removed] Wed, 21 Oct 2009 16:44:07 GMT Kathy Boglarski http://health.groups.yahoo.com/group/meningioma/message/7215 http://health.groups.yahoo.com/group/meningioma/message/7215 Hi Jane, Mine is on the right side. I was having double vision and a nuero opthamologist had me get an MRI. Kathy ________________________________ From: Wed, 21 Oct 2009 15:36:24 GMT tkworkerbee http://health.groups.yahoo.com/group/meningioma/message/7214 http://health.groups.yahoo.com/group/meningioma/message/7214 Mine was impacting both optical nerves and caused blind spots in both eyes - having vision problems is why I originally went to my optometrist.... she realized Wed, 21 Oct 2009 10:21:02 GMT Dennis/Jane Arnholt http://health.groups.yahoo.com/group/meningioma/message/7213 http://health.groups.yahoo.com/group/meningioma/message/7213 Reenie, did you have surgery? Jane [Non-text portions of this message have been removed] Wed, 21 Oct 2009 01:31:15 GMT reenie lyell http://health.groups.yahoo.com/group/meningioma/message/7212 http://health.groups.yahoo.com/group/meningioma/message/7212 Hello I had one on left optic nerve but unfortunately it damaged the nerve, compressed the nerve and I am blind in that eye now.  I see a dr at Johns Hopkins Wed, 21 Oct 2009 00:35:12 GMT finch1299 http://health.groups.yahoo.com/group/meningioma/message/7211 http://health.groups.yahoo.com/group/meningioma/message/7211 Hi all, Jane here. I am the new member in IND that posted last week about the neurosurgon from hell visit, remember? : ) I saw my opthalmologist today, I Mon, 19 Oct 2009 23:46:25 GMT Norma Stephens http://health.groups.yahoo.com/group/meningioma/message/7210 http://health.groups.yahoo.com/group/meningioma/message/7210 I drfinitely have a couple of different kinds of seizures. 'Specially the one where you smell something that is not there. I am always smelling smoke and