http://health.groups.yahoo.com/group/multiplemyelomachat/ Multiple Myeloma Chat - Support for all touched by Multiple Myeloma Thu, 07 Jan 2010 00:08:19 GMT Barbara Pearse http://health.groups.yahoo.com/group/multiplemyelomachat/message/3358 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3358 My husband is 48.  We found out Sept 2008.  He was on Dex for awhile but could not tolerate it and switched to Thalidomide.  He had his transplant July Wed, 06 Jan 2010 21:21:31 GMT jbenguiat http://health.groups.yahoo.com/group/multiplemyelomachat/message/3357 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3357 I am not familiar with carfilzomid. However, a great deal of information about its efficacy appears on numerous websites - mostly positive. Good luck. Wed, 06 Jan 2010 21:17:44 GMT Sue Brady http://health.groups.yahoo.com/group/multiplemyelomachat/message/3356 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3356 I, too, am about to enter a clinical trial at MD Anderson using carfilzomid, revlimid and a third drug, too, I think. I have had chest x-rays and bone scans Wed, 06 Jan 2010 20:48:27 GMT sreilly924 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3355 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3355 i am going to be put on a study with this new drug carfilzomid at the univ. of ark. i had 2 SC back in 2001. was put on revlimid for a couple of years, with Mon, 04 Jan 2010 18:56:57 GMT jill anthony http://health.groups.yahoo.com/group/multiplemyelomachat/message/3354 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3354 yes.........i have pain where ever the cancer damaged.......mostly the spine and right arm....i am on pain meds too and need them every day....jillian Sun, 03 Jan 2010 23:15:57 GMT daytripperartist http://health.groups.yahoo.com/group/multiplemyelomachat/message/3353 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3353 Sounds like my husband exactly..He is also taking morphine and methadone..The pain is just there all the time or he is asleep. He is in stage 4.....We found Sun, 03 Jan 2010 22:50:07 GMT Phyllis Smith http://health.groups.yahoo.com/group/multiplemyelomachat/message/3352 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3352 He also had a spina cord compression and had a kyphoplasty at T7.  His pain is mostly in his rib area.  It is a band like pain that goes around his body.  Sun, 03 Jan 2010 17:06:39 GMT Darlene G http://health.groups.yahoo.com/group/multiplemyelomachat/message/3351 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3351 Where is your husbands pain. Have they pinpointed what the "cause" of the pain is. I too had a high level of pain Sept = Nov.. after being written RX's for Sun, 03 Jan 2010 16:47:33 GMT Phyllis Smith http://health.groups.yahoo.com/group/multiplemyelomachat/message/3350 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3350 Yes.  If he is late with his pain meds he will be in a lot of pain.  He is on the Dilaudid for the breakthrough pain every couple hours and the OxyContin 3-4 Sun, 03 Jan 2010 14:51:12 GMT John http://health.groups.yahoo.com/group/multiplemyelomachat/message/3349 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3349 My Doctor offered me neurontin for neuropathy but I did not fill the prescription. No other pain meds were prescribed. How old is your husband and is he in Sun, 03 Jan 2010 03:40:24 GMT jbenguiat http://health.groups.yahoo.com/group/multiplemyelomachat/message/3348 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3348 Is your husband still in pain? Sun, 03 Jan 2010 02:51:53 GMT sphyllis68 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3347 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3347 My husband had his SCT in August of this year. Has done well with his counts, etc., and is considered to be in remission. His problem is that he is still on Wed, 30 Dec 2009 15:39:22 GMT Bella H. http://health.groups.yahoo.com/group/multiplemyelomachat/message/3346 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3346 I'm so sorry, Lori. Bella [Non-text portions of this message have been removed] Tue, 29 Dec 2009 23:30:03 GMT Lois Turley http://health.groups.yahoo.com/group/multiplemyelomachat/message/3345 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3345 I'm sorry for your loss, Lori. Praying for God to bring comfort and strength to you and your family. Lois ... From: multiplemyelomachat@yahoogroups.com Tue, 29 Dec 2009 21:52:15 GMT Lori Atwood http://health.groups.yahoo.com/group/multiplemyelomachat/message/3344 http://health.groups.yahoo.com/group/multiplemyelomachat/message/3344 Thank you for all the prayers...my dad passed away this morning. Lori ... From: multiplemyelomachat@yahoogroups.com