http://health.groups.yahoo.com/group/myastheniagravisaustralia/ Myasthenia Gravis Australia - Myasthenia Gravis in Australia Tue, 08 Jul 2008 20:47:35 GMT Douglas Culver http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1529 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1529 Chrissie,   I just found out that I am going for the EMG test tomorrow instead of the 21rst. I will be glad to get it over with. I am going to try to get the Tue, 08 Jul 2008 20:31:40 GMT chrissie_liz http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1528 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1528 Oh I do sympathise with you Doug and Anna. Some neurologists are so hung up on the drooping eyelid. I almost wished my eyelids did droop in the early days. But Tue, 08 Jul 2008 16:35:00 GMT Douglas Culver http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1527 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1527 Anna, I live in a small mining town in America. I have been ill over a year now with no answers like you. I tested negitive for the antibody so in a few weeks Tue, 08 Jul 2008 15:18:26 GMT pyzamas http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1526 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1526 Thanks for just being there for me. A lot of the symptoms u all describe are just like mine. It's summer here in greece and I find that I get tired easily. Mon, 07 Jul 2008 07:50:43 GMT Douglas Culver http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1525 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1525 I would like to add my .2 cents worth. I have been ill now for over a year. After a long road to more doctors than I care to remember I still have not been Sun, 06 Jul 2008 23:13:23 GMT chrissie_liz http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1524 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1524 Well I am the same with no really sure diagnosis of MG and I've been like this for over 12 years. But I do take Mestinon and that helps my symptoms enormously. Sun, 06 Jul 2008 16:37:47 GMT karen campbell http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1523 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1523 Hello - I am very new to MG and this board, but I can tell you that all my tests for MG have been negative, yet when I'm on Mestinon (which I am now), my eye Sun, 06 Jul 2008 10:25:19 GMT pyzamas http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1522 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1522 Four years ago I started to get tired. I had difficulty walking up the stairs. I went to the hospital and a neuroligist diagnosed MG. They started me on Thu, 12 Jun 2008 04:29:59 GMT erwanog http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1521 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1521 Sorry, I can't point you to an article on Osserman, but I ran across it a list of the Osserman classification in an online book preview. Wed, 11 Jun 2008 05:18:53 GMT christina pitter http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1520 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1520 Hi Everyone, I am in the process of setting up a support group for women with MG and other chronic illnesses to meet, support each other and discuss positive Tue, 27 May 2008 18:50:56 GMT bette_75494 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1519 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1519 *SNOWFLAKE INFORMATION FOR MYASTHENICS* *WHY A SNOWFLAKE? Each snowflake is unique; each MG patient has unique symptoms and reactions *Each snowflake is Sat, 17 May 2008 04:20:28 GMT donnasjmo http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1518 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1518 Please join Deb Butler in the MGnet Chat room today. She will be presenting MG Friendly Vacations. A very timely topic! Join her and share your experiences! Tue, 06 May 2008 05:41:33 GMT aussi_jane http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1517 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1517 It was a bit scarey when I read about how too much of it can kill you - sort of thing. I suppose if the GP is inexp in how to use it - just start slow and Tue, 06 May 2008 05:18:52 GMT chrissie_liz http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1516 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1516 Don't worry about the Mestinon. You may be started on just a half, or maybe one. It may give you some pains in your gut at first but if it relieves your Tue, 06 May 2008 01:14:46 GMT aussi_jane http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1515 http://health.groups.yahoo.com/group/myastheniagravisaustralia/message/1515 The GP has already spoken of being willing to trial me on Mestinon - just waiting for Neuro and first appts to see what he says. I have also been told of a