http://health.groups.yahoo.com/group/nomidsyndrome/ N.O.M.I.D/C.I.N.C.A. Syndrome Mon, 09 Nov 2009 07:26:35 GMT newaikfriends http://health.groups.yahoo.com/group/nomidsyndrome/message/2346 http://health.groups.yahoo.com/group/nomidsyndrome/message/2346 I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page here: Sat, 07 Nov 2009 17:17:44 GMT sfokaren2003 http://health.groups.yahoo.com/group/nomidsyndrome/message/2345 http://health.groups.yahoo.com/group/nomidsyndrome/message/2345 Dear All, This is a great new art contest to increase awareness and empower patients with rare diseases. If you or your child wants to enter, please read the Tue, 03 Nov 2009 16:00:18 GMT Marie Parker http://health.groups.yahoo.com/group/nomidsyndrome/message/2344 http://health.groups.yahoo.com/group/nomidsyndrome/message/2344 Find what you love at Mall-good.com 2009 new electronic products preferential promotion Dear friend: If you are confused with what electronics (aCellular Tue, 27 Oct 2009 10:10:49 GMT karen moore http://health.groups.yahoo.com/group/nomidsyndrome/message/2343 http://health.groups.yahoo.com/group/nomidsyndrome/message/2343 Hi All   I saw professor woo friday at great ormond st and she said that yes charlie should have the dead vaccine for swine flu, he has had his seasonal flu Tue, 27 Oct 2009 01:05:19 GMT Sherri http://health.groups.yahoo.com/group/nomidsyndrome/message/2342 http://health.groups.yahoo.com/group/nomidsyndrome/message/2342 Hi Karen,On october 7th, we wrapped up with Dr. G. I specifically asked her if miranda should get the H1N1 vaccine, she said yes, but NOT the NASAL one because Mon, 26 Oct 2009 16:01:56 GMT KAREN ATKINSON http://health.groups.yahoo.com/group/nomidsyndrome/message/2341 http://health.groups.yahoo.com/group/nomidsyndrome/message/2341 Hi Karen, No, they are referring to both, as I understand it, they are not sure how it will affect the NOMID patients and are advising to avoid it. I was told Mon, 26 Oct 2009 03:27:49 GMT sfokaren2003 http://health.groups.yahoo.com/group/nomidsyndrome/message/2340 http://health.groups.yahoo.com/group/nomidsyndrome/message/2340 Dear Karen A, Was the NIH referring to the H1N1 nasal vaccine, which is a form of a live vaccine, or did they say to avoid the vaccine that is to be released Mon, 26 Oct 2009 03:23:23 GMT sfokaren2003 http://health.groups.yahoo.com/group/nomidsyndrome/message/2339 http://health.groups.yahoo.com/group/nomidsyndrome/message/2339 Dori, I posted a detailed message last week if you are interested in how Seth fared with it over the summer. I am not sure if all will be as lucky as him, but Mon, 26 Oct 2009 03:20:48 GMT sfokaren2003 http://health.groups.yahoo.com/group/nomidsyndrome/message/2338 http://health.groups.yahoo.com/group/nomidsyndrome/message/2338 Colleen, I hope your visit goes well and that there are lots of fun things to do at the Children's Inn for this week of Halloween! Karen Sun, 25 Oct 2009 21:58:13 GMT KAREN ATKINSON http://health.groups.yahoo.com/group/nomidsyndrome/message/2337 http://health.groups.yahoo.com/group/nomidsyndrome/message/2337 Hi Dorelia, I called the NIH about this this week and was told, NO do not give the H1N1 vaccine, they are recommending the regular flu shot only. I hope your Sun, 25 Oct 2009 17:12:05 GMT dorelia.rivera@... http://health.groups.yahoo.com/group/nomidsyndrome/message/2336 http://health.groups.yahoo.com/group/nomidsyndrome/message/2336 Hello all. Hope you are well. Need some advice on swine flu and NOMID.... A family member now has it and I'm concerned about Kayla. Any advice on shot? Anyone Sun, 25 Oct 2009 11:00:45 GMT colleen.paduani http://health.groups.yahoo.com/group/nomidsyndrome/message/2335 http://health.groups.yahoo.com/group/nomidsyndrome/message/2335 Good morning everyone! It's been a while since I've been on here, I hope you and your families are all keeping well. We are off to the N.I.H this morning, if Mon, 19 Oct 2009 16:19:05 GMT sfokaren2003 http://health.groups.yahoo.com/group/nomidsyndrome/message/2334 http://health.groups.yahoo.com/group/nomidsyndrome/message/2334 Dear Mike, Great job! Thanks so much for doing this event, and I am going to see if there are other ones like this around the country too. I am sure that Mon, 19 Oct 2009 10:11:39 GMT mike.oisten http://health.groups.yahoo.com/group/nomidsyndrome/message/2333 http://health.groups.yahoo.com/group/nomidsyndrome/message/2333 The last statement about no other apparent conditions is not true. I did not mention that we are going to see an Orthopaedic surgeon about her legs and the Mon, 19 Oct 2009 02:43:25 GMT mike.oisten http://health.groups.yahoo.com/group/nomidsyndrome/message/2332 http://health.groups.yahoo.com/group/nomidsyndrome/message/2332 Hello everyone - Just wanted to drop a note to say that we had a great opportunity Oct 9th as we were asked by our Dermatologist to attend a program for rare