http://health.groups.yahoo.com/group/nzbraintumour/ NZ Brain Tumour Support Fri, 20 Nov 2009 08:43:19 GMT Lindsay http://health.groups.yahoo.com/group/nzbraintumour/message/1794 http://health.groups.yahoo.com/group/nzbraintumour/message/1794 Hiya Elaine I'm sorry there are no replies for you? Let me know if you want me to post on your behalf a few other sites I'm member of. I'll get back to you on Tue, 17 Nov 2009 05:53:04 GMT Diane http://health.groups.yahoo.com/group/nzbraintumour/message/1793 http://health.groups.yahoo.com/group/nzbraintumour/message/1793 Subject: Breaching the Blood-Brain Barrier With Avastin to Fight Glioblastoma - NYTimes.com Thought some of you might like to read this article. Sun, 15 Nov 2009 21:52:37 GMT Elaine http://health.groups.yahoo.com/group/nzbraintumour/message/1792 http://health.groups.yahoo.com/group/nzbraintumour/message/1792 hiya, long time no post! I have to have a "limited ct scan" to determine if I can have an epdiural or not for this last pregnancy. My neurosurgeon at wgtn Sun, 15 Nov 2009 00:36:00 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1791 http://health.groups.yahoo.com/group/nzbraintumour/message/1791 I have tried to go back through the messages here and see who put me onto this article (hell, maybe it was OzBT!!!!) but I thought I would put the link up here Sat, 14 Nov 2009 04:30:07 GMT Susan Peake http://health.groups.yahoo.com/group/nzbraintumour/message/1790 http://health.groups.yahoo.com/group/nzbraintumour/message/1790 Hi Linda   Have you been getting copies of Glens MRI's? As then you can compare for yourselfs how things are looking, we also found that once the docs knew Fri, 13 Nov 2009 22:32:02 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1789 http://health.groups.yahoo.com/group/nzbraintumour/message/1789 Thanks so much for your moral support Chris, it is so helpful. I am quite concerned that our oncologist has said that Glen should not take TMZ this round if Fri, 13 Nov 2009 11:35:12 GMT tsetribe http://health.groups.yahoo.com/group/nzbraintumour/message/1788 http://health.groups.yahoo.com/group/nzbraintumour/message/1788 Hi Linda The mere fact that you know about pseudoprogression, alternative TMZ schedules and Avastin means you are 2-3 steps ahead of a lot of other caregivers Fri, 13 Nov 2009 10:00:19 GMT Susan Peake http://health.groups.yahoo.com/group/nzbraintumour/message/1787 http://health.groups.yahoo.com/group/nzbraintumour/message/1787 Hi Linda,   We also had the same thought as Chris about the TMZ, as with Stefan the registar said to us after Stefs July scan that proberly the TMZ wasn't Fri, 13 Nov 2009 09:59:40 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1786 http://health.groups.yahoo.com/group/nzbraintumour/message/1786 To be honest I am a little confused about the whole thing, we havent actually been shown Glen's MRI, and I also wondered about the whole psuedo progression Fri, 13 Nov 2009 09:10:06 GMT tsetribe http://health.groups.yahoo.com/group/nzbraintumour/message/1785 http://health.groups.yahoo.com/group/nzbraintumour/message/1785 Linda Just a couple of things - you may have covered them already but just to make sure... 1. Why is your oncologist so sure that the TMZ isn't working? Is Fri, 13 Nov 2009 00:39:23 GMT Linda Fowler http://health.groups.yahoo.com/group/nzbraintumour/message/1784 http://health.groups.yahoo.com/group/nzbraintumour/message/1784 Ooh, I have just seen that I got Dragan's name wrong, it was given to me over the phone by Glen's oncologist and I can't have heard it correctly! Thanks for Fri, 13 Nov 2009 00:37:16 GMT Linda Fowler http://health.groups.yahoo.com/group/nzbraintumour/message/1783 http://health.groups.yahoo.com/group/nzbraintumour/message/1783 That is so true, what price a life eh?  This has been a very difficult decision for us, given that we now have the means to fund something but that comes at Thu, 12 Nov 2009 21:48:41 GMT Lindsay http://health.groups.yahoo.com/group/nzbraintumour/message/1782 http://health.groups.yahoo.com/group/nzbraintumour/message/1782 Hi Linda, Bruce & I can also recommend Anthony Falkov, and Dragan Damianovich, which is who Bruce currently sees and has done for the past 2.5yrs at Thu, 12 Nov 2009 21:34:56 GMT tsetribe http://health.groups.yahoo.com/group/nzbraintumour/message/1781 http://health.groups.yahoo.com/group/nzbraintumour/message/1781 Hi Linda You are 100% right, it's very much a guessing game. At the end of the day you have to listen to all the professional advice, combine it with your own Thu, 12 Nov 2009 20:41:37 GMT tsetribe http://health.groups.yahoo.com/group/nzbraintumour/message/1780 http://health.groups.yahoo.com/group/nzbraintumour/message/1780 Hi Susan Great to hear Stefan is doing well at the moment - long may it continue! We will keep our fingers crossed for you both for the next scan in Jan/Feb.