http://health.groups.yahoo.com/group/nzbraintumour/ NZ Brain Tumour Support Sun, 05 Jul 2009 01:29:36 GMT methompson@... http://health.groups.yahoo.com/group/nzbraintumour/message/1646 http://health.groups.yahoo.com/group/nzbraintumour/message/1646 Should be no difference whether taken with food or not, but most important dietary advice is to keep a medium but regular diet of veges etc and never go Fri, 03 Jul 2009 22:43:01 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1645 http://health.groups.yahoo.com/group/nzbraintumour/message/1645 Thanks for the info Liz, that helps. We got a weeks supply from ED this morning, only a 90 minute wait to be seen!!!!! Am going to discuss it again once he has Fri, 03 Jul 2009 11:05:53 GMT methompson@... http://health.groups.yahoo.com/group/nzbraintumour/message/1644 http://health.groups.yahoo.com/group/nzbraintumour/message/1644 NZ Brain Tumour SupportHi I work in a lab and test warfarin levels (INRs) all the time...Hopefully I can be of some help here. If Glen has been on 15mg of Fri, 03 Jul 2009 09:20:46 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1643 http://health.groups.yahoo.com/group/nzbraintumour/message/1643 Because Glen developed a dvt after surgery he has been on warfarin and clexane to try and get his blood to 'therapeutic levels'. They are wanting his level to Thu, 02 Jul 2009 06:19:14 GMT Tse Family http://health.groups.yahoo.com/group/nzbraintumour/message/1642 http://health.groups.yahoo.com/group/nzbraintumour/message/1642 Hi Jo I sent PHARMAC an email to just see where they were at with this funding recommendation. See their response below. Unfortunately this looks like another Tue, 30 Jun 2009 07:09:29 GMT jo binnie http://health.groups.yahoo.com/group/nzbraintumour/message/1641 http://health.groups.yahoo.com/group/nzbraintumour/message/1641 Hi Chris Thanks for the info. Jo :) ... From: Tse Family To: nzbraintumour@yahoogroups.com Sent: Tuesday, June 30, 2009 6:06 PM Subject: [nzbraintumour] Re: Tue, 30 Jun 2009 06:06:27 GMT Tse Family http://health.groups.yahoo.com/group/nzbraintumour/message/1640 http://health.groups.yahoo.com/group/nzbraintumour/message/1640 Hi Jo Awhile back a member of this list, Diane Toscano, wrote to Dr Peter Moodie of PHARMAC about funding of TMZ (see posting #1484). In his reply he included Tue, 30 Jun 2009 01:30:08 GMT lauren atkins http://health.groups.yahoo.com/group/nzbraintumour/message/1639 http://health.groups.yahoo.com/group/nzbraintumour/message/1639 Hi Jo, My son who is 16 has pilocytic astrocytoma.  Two tumours in his brain and two on his spine and through his nervous system.  The doctors here wanted to Mon, 29 Jun 2009 11:16:58 GMT Kathryn Mills http://health.groups.yahoo.com/group/nzbraintumour/message/1638 http://health.groups.yahoo.com/group/nzbraintumour/message/1638 Hi Jo my husband had temozolomide and for 6 months it was approx $22,000.  It all depends on your weight and height as to the dosage of it.  We got quotes Mon, 29 Jun 2009 10:42:13 GMT jo binnie http://health.groups.yahoo.com/group/nzbraintumour/message/1637 http://health.groups.yahoo.com/group/nzbraintumour/message/1637 Hi Heather Thanks for the info Jo x ... From: Heather Linncoln To: nzbraintumour@yahoogroups.com Sent: Monday, June 29, 2009 10:21 PM Subject: Re: Mon, 29 Jun 2009 10:21:35 GMT Heather Linncoln http://health.groups.yahoo.com/group/nzbraintumour/message/1636 http://health.groups.yahoo.com/group/nzbraintumour/message/1636 Hi Jo, There is a website called: www.pharmacydirect.com.au who can supply Temodal The cost for 5 x 250g tablets $ 2000.00 approx I have heard on the grapvine Mon, 29 Jun 2009 09:17:40 GMT kiwijo69 http://health.groups.yahoo.com/group/nzbraintumour/message/1635 http://health.groups.yahoo.com/group/nzbraintumour/message/1635 hi everyone, its been a while since I've been on there group but I do check emails from time to time. I'm in Christchurch and was originally diagnosed with a Sun, 28 Jun 2009 23:36:41 GMT thefowlers97 http://health.groups.yahoo.com/group/nzbraintumour/message/1634 http://health.groups.yahoo.com/group/nzbraintumour/message/1634 Just something I found out this weekend, we took out all our insurances with BNZ when we did our mortgage with them, and it turns out that if you have 'premier Thu, 25 Jun 2009 09:01:09 GMT linbrusco http://health.groups.yahoo.com/group/nzbraintumour/message/1633 http://health.groups.yahoo.com/group/nzbraintumour/message/1633 Heather I am so sorry to hear of Denis's recent setbacks and also Linda of Glenns continuing recovery post op. Having had to cope with this for the past 5 yrs Thu, 25 Jun 2009 06:58:38 GMT Heather Linncoln http://health.groups.yahoo.com/group/nzbraintumour/message/1632 http://health.groups.yahoo.com/group/nzbraintumour/message/1632 Hi all, I wish to apologise to everyone I have emailed saying how amazing Dennis's recovery has been over the last twelve months since diagnosis and 1st